Lymphedema treatment - hand & arm wrapped

SIROD
SIROD Member Posts: 2,194 Member

If you don't see me posting for a while it is due to my wrappings for lymphedema treatment.  Hard to type.  Reading all your posts, wishing you all the best.  Have 3 more weeks of it....

Doris

Comments

  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    Doris....

    I am so glad to hear you are getting treatment for your LE.

    I know it is uncomfortable and a pain in the butt, but I hope it works wonders for you!!!

    P.S. Make sure they teach Manual Lymphedema Drainage (the self massaging to get the fluid flowing). That will help,too.

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member

    Doris....

    I am so glad to hear you are getting treatment for your LE.

    I know it is uncomfortable and a pain in the butt, but I hope it works wonders for you!!!

    P.S. Make sure they teach Manual Lymphedema Drainage (the self massaging to get the fluid flowing). That will help,too.

    Hope the wrapping helps...

    And, yes - ask about MLD. I've done it daily, still do, for prevention.

    Kind regards, Susan

  • Dawne.Hope
    Dawne.Hope Member Posts: 823
    thinking about you

    Doris,

    I don't post much anymore but I've followed along your journey.  So thankful you received a good report from your scans.  

    I know the wrapping is not fun at all.  I go back to a therapist in a couple of weeks and I'm afraid I'm going to have to go through that too.  I'm thankful you were able to see a good LE therapist - they are hard to find.  

    Prayers that the swelling goes down ... and stays down.  I agree about the MLD.  

    Hang in there.  

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Good luck!  Sending healing

    Good luck!  Sending healing (((hugs))) and prayers!!!!

  • New Flower
    New Flower Member Posts: 4,294

    Good luck!  Sending healing

    Good luck!  Sending healing (((hugs))) and prayers!!!!

    wrapping not fun for sure

    Hi Doris,

     I am glad you have been going through the treatment. It is hard, especially when you feel weak from Chemo

    I need to do it too, as well as to order new sleve and glove. I have taken so much time off from work for clinical trials, shigles, side effects of experimental drug, that I had to sacrifice lymphdema treatment. Really i should restart oficial lymphedema treatment at the office too. daily MLD is my routeen, however it is not easy when you tired and fatigue. I got my Faslodex yesterday.

    Wishing you easy time.

    Hugs

    Olga

  • VickiSam
    VickiSam Member Posts: 9,079 Member

    wrapping not fun for sure

    Hi Doris,

     I am glad you have been going through the treatment. It is hard, especially when you feel weak from Chemo

    I need to do it too, as well as to order new sleve and glove. I have taken so much time off from work for clinical trials, shigles, side effects of experimental drug, that I had to sacrifice lymphdema treatment. Really i should restart oficial lymphedema treatment at the office too. daily MLD is my routeen, however it is not easy when you tired and fatigue. I got my Faslodex yesterday.

    Wishing you easy time.

    Hugs

    Olga

    DORIS ..... ahhhhhhh, we are going to miss you,

     and your so very valuable advise,  information and research.  ....  but, we understand.  Prayers, and strength to you dear dear dear Sister.

    Damnnnnnn lymphdema treatment - ... so necessary .. LOL 

     

    Vicki SamCry

  • missrenee
    missrenee Member Posts: 2,136 Member
    VickiSam said:

    DORIS ..... ahhhhhhh, we are going to miss you,

     and your so very valuable advise,  information and research.  ....  but, we understand.  Prayers, and strength to you dear dear dear Sister.

    Damnnnnnn lymphdema treatment - ... so necessary .. LOL 

     

    Vicki SamCry

    Oh, Doris

    if it's not one thing, it's about 3 more.  I'm still doing the manual drainage technique that I was taught and I use the sleeve and glove when I fly, etc.  Thankfully, even with 23 nodes removed on the one side, mine has been pretty manageable.  P.S.  I try never to lift using that arm.  My therapist said one lady she treats was over 10 years out, never had lymphedema issues to speak over, lifted a 20 lb. turkey out of her oven on Thanksgiving, felt a "gush" and her arm swelled up like a balloon!  That's the wonderful thing about this disease--it's never over.

     

    Good luck, Renee

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    missrenee said:

    Oh, Doris

    if it's not one thing, it's about 3 more.  I'm still doing the manual drainage technique that I was taught and I use the sleeve and glove when I fly, etc.  Thankfully, even with 23 nodes removed on the one side, mine has been pretty manageable.  P.S.  I try never to lift using that arm.  My therapist said one lady she treats was over 10 years out, never had lymphedema issues to speak over, lifted a 20 lb. turkey out of her oven on Thanksgiving, felt a "gush" and her arm swelled up like a balloon!  That's the wonderful thing about this disease--it's never over.

     

    Good luck, Renee

    Doris ...

    I do hope you are doing better ..  Thinking about you Dear Sister!  I am also keeping your mom in good thoughts, and prayers.

     

    Vicki Sam

  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    You will sure be missed while

    You will sure be missed while your not posting. Wishing you all the best. Party when you get back Ok.

    Take care darlin Kay