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I heard those 3 little letters today... NED!

Maxiecat's picture
Posts: 544
Joined: Jul 2012

Hi everyone,

I just got back from my post surgery follow up w/my cancer specialist up in Baltimore.  My husband talked briefly to the surgeon right after surgery...but i was still in recovery.  He did a laparoscopic surgery 2 weeks ago on me to rule out progression of the cancer as a cause of my pain that I have been having since February.  i have signet ring adenocarcinoma...which has a high probability of peritoneal spread.  Well, they went in and looked and did not find any evidence of disease.  They did a belly wash w/saline and tested the fluid...also they checked my cancer markers.  Cancer markers are within normal range...down a little from earlier this Spring!  The plan now is to check CEA again in 3 months ... Then do a CT/PT scan at 6 months.  Oh, and since I do not need chemo again for the foreseeable future...I can have my port taken out!


Sundanceh's picture
Posts: 4408
Joined: Jun 2009

You've had to wade through quite abit to enjoy this one!

May these feelings continue:)

Here's your Hall Pass....enjoy your non-cancer time now!

Just so relieved for you...


lp1964's picture
Posts: 1240
Joined: Jun 2013

I wish we had more news like this.

Enjoy the good times and let us know what you did to celebrate.


karguy's picture
Posts: 1024
Joined: Apr 2009

Congratulations,now you can do the happy dance.I hope you continue to be NED.

Posts: 1271
Joined: Apr 2012

NED is great news. Stay that way!!!

Cathleen Mary
Posts: 827
Joined: May 2011

What wonderful news!!!!  i hope NED becomes a permanent member of your family. Enjoy and celebrate.

Cathleen Mary

Easyflip's picture
Posts: 588
Joined: May 2013

Congratulations and thanks to modern medicine!

chp's picture
Posts: 29
Joined: Dec 2012

Fantastic news!  I am so happy for you!


Hooley's picture
Posts: 156
Joined: Aug 2012

Congrats on the good news.    what is your current CEA level?

Maxiecat's picture
Posts: 544
Joined: Jul 2012

My CEA right now is 3.6 .. My specialist said that it probably is not a good indicator for me.  When I was first diagnosed it was .9 ... Yes...there is no typo there, .9!  It jumped to around 5 suddenly after I finished chemo...that they were concerned about...not because of the actual CEA number...but because it was so much higher than it had ever been.  It is still within normal, but since it was so low when I was diagnosed...they won't use CEA alone to measure how I am doing...if it jumps again...then they will start to look for a cause.



traci43's picture
Posts: 775
Joined: Jul 2007

What we all want to hear.  What wonderful news.  Do they have an idea about the pain?  Hope continue to be NED!

Maxiecat's picture
Posts: 544
Joined: Jul 2012

No...will follow up with my primary care and then if it is kidney see a nephrologist???  I can live with the pain...so long as it is not something serious.  It is hard just having a constant full feeling that I have had since the surgery.  I am eating but only because I know shined to eat.  I still have some pain from the surgery...deep inside...I know that is just my body healing up.

Posts: 1607
Joined: Aug 2012

Yay Alex!  So happy to read this great news!

Posts: 2215
Joined: Oct 2011

Thats awesome. NED is a wonderful thing. Enjoy.

tanstaafl's picture
Posts: 1299
Joined: Oct 2010

Congratulations ! May you enjoy NED forever.   Do you have a maintenance program?

Maxiecat's picture
Posts: 544
Joined: Jul 2012

No chemo or anything really needed according to the specialist.  But he did say that this can come back...and because it is signet ring it can be aggressive...so just keep an eye on cancer markers and rescan in 6 months.  Unless I have changes in bowel habits or start to develop other signs...like fever.  He did not know why I am still uncomfortable...some people just take longer to heal from the surgery and all of the looking around and under things in there.

Annabelle41415's picture
Posts: 6687
Joined: Feb 2009

That is wonderful news and I'm glad that you get to take a breather.


marbleotis's picture
Posts: 710
Joined: Mar 2012


 As one signet cell to another................................NED is wonderful.

Enjoy, now we just keep on top of it and manage.

My Onc told me........... now just go live your life and we will watch you.

Best always,

KathiM's picture
Posts: 8077
Joined: Aug 2005



Hugs, Kathi

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Great news!  

annalexandria's picture
Posts: 2573
Joined: Oct 2011

I'm so happy for you, Alex!  No chemo, AND getting to take out your port...so awesome!  Nice to get some good news on the board too, so thanks for providing it.

Hugs!  AA

Posts: 3
Joined: Aug 2013

I have signet ring too.


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