I heard those 3 little letters today... NED!

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Maxiecat
Maxiecat Member Posts: 544 Member
in Colorectal Cancer #1

Hi everyone,

I just got back from my post surgery follow up w/my cancer specialist up in Baltimore.  My husband talked briefly to the surgeon right after surgery...but i was still in recovery.  He did a laparoscopic surgery 2 weeks ago on me to rule out progression of the cancer as a cause of my pain that I have been having since February.  i have signet ring adenocarcinoma...which has a high probability of peritoneal spread.  Well, they went in and looked and did not find any evidence of disease.  They did a belly wash w/saline and tested the fluid...also they checked my cancer markers.  Cancer markers are within normal range...down a little from earlier this Spring!  The plan now is to check CEA again in 3 months ... Then do a CT/PT scan at 6 months.  Oh, and since I do not need chemo again for the foreseeable future...I can have my port taken out!

alex

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Comments

  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #2
    Very Happy for You!

    You've had to wade through quite abit to enjoy this one!

    May these feelings continue:)

    Here's your Hall Pass....enjoy your non-cancer time now!

    Just so relieved for you...

     

  • lp1964
    lp1964 CSN Member Posts: 1,239 Member
    #3
    That is A.W.E.S.O.M.E !!!

    I wish we had more news like this.

    Enjoy the good times and let us know what you did to celebrate.

    Laz

  • karguy
    karguy Member Posts: 1,020 Member
    #4
    Congratulations

    Congratulations,now you can do the happy dance.I hope you continue to be NED.

  • danker
    danker Member Posts: 1,276 Member
    #5
    Alex

    NED is great news. Stay that way!!!

  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #6
    danker said:

    Alex

    NED is great news. Stay that way!!!

    What wonderful news!!!!  i

    What wonderful news!!!!  i hope NED becomes a permanent member of your family. Enjoy and celebrate.

    Cathleen Mary

  • Easyflip
    Easyflip CSN Member Posts: 588 Member
    #7
    Cathleen Mary said:

    What wonderful news!!!!  i

    What wonderful news!!!!  i hope NED becomes a permanent member of your family. Enjoy and celebrate.

    Cathleen Mary

    Hip hip hooray!
    Congratulations and thanks to modern medicine!
  • chp
    chp Member Posts: 29
    #8
    Easyflip said:

    Hip hip hooray!
    Congratulations and thanks to modern medicine!

    Fantastic news!  I am so

    Fantastic news!  I am so happy for you!

    Cathy

  • Hooley
    Hooley Member Posts: 156
    #9
    Wahoo

    Congrats on the good news.    what is your current CEA level?

  • traci43
    traci43 CSN Member Posts: 771 Member
    #10
    Happy, happy, joy, joy!

    What we all want to hear.  What wonderful news.  Do they have an idea about the pain?  Hope continue to be NED!

  • jen2012
    jen2012 CSN Member Posts: 1,607 Member
    #11
    Yay Alex!  So happy to read

    Yay Alex!  So happy to read this great news!

  • janderson1964
    janderson1964 CSN Member Posts: 2,215 Member
    #12
    Thats awesome. NED is a

    Thats awesome. NED is a wonderful thing. Enjoy.

  • tanstaafl
    tanstaafl CSN Member Posts: 1,312 Member
    #13
    congrats.

    Congratulations ! May you enjoy NED forever.   Do you have a maintenance program?

  • Maxiecat
    Maxiecat Member Posts: 544 Member
    #14
    traci43 said:

    Happy, happy, joy, joy!

    What we all want to hear.  What wonderful news.  Do they have an idea about the pain?  Hope continue to be NED!

    No...will follow up with my

    No...will follow up with my primary care and then if it is kidney see a nephrologist???  I can live with the pain...so long as it is not something serious.  It is hard just having a constant full feeling that I have had since the surgery.  I am eating but only because I know shined to eat.  I still have some pain from the surgery...deep inside...I know that is just my body healing up.

  • Maxiecat
    Maxiecat Member Posts: 544 Member
    #15
    tanstaafl said:

    congrats.

    Congratulations ! May you enjoy NED forever.   Do you have a maintenance program?

    No chemo or anything really

    No chemo or anything really needed according to the specialist.  But he did say that this can come back...and because it is signet ring it can be aggressive...so just keep an eye on cancer markers and rescan in 6 months.  Unless I have changes in bowel habits or start to develop other signs...like fever.  He did not know why I am still uncomfortable...some people just take longer to heal from the surgery and all of the looking around and under things in there.

  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,742 Member
    #16
    Wonderful

    That is wonderful news and I'm glad that you get to take a breather.

    Kim

  • marbleotis
    marbleotis CSN Member Posts: 720 Member
    #17
    Best News Ever

    Alex,

     As one signet cell to another................................NED is wonderful.

    Enjoy, now we just keep on top of it and manage.

    My Onc told me........... now just go live your life and we will watch you.

    Best always,

  • KathiM
    KathiM CSN Member Posts: 8,028 Member
    #18
    I have one word:

    DANCING!!!!!

     

    Hugs, Kathi

  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #19
    KathiM said:

    I have one word:

    DANCING!!!!!

     

    Hugs, Kathi

    Great news!  

    Great news!  

  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #20
    That is the best news ever!

    I'm so happy for you, Alex!  No chemo, AND getting to take out your port...so awesome!  Nice to get some good news on the board too, so thanks for providing it.

    Hugs!  AA

  • PJS2012
    PJS2012 Member Posts: 3
    #21
    Congratulations and best wishes.

    I have signet ring too.

    PJ

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