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I heard those 3 little letters today... NED!
Hi everyone,
I just got back from my post surgery follow up w/my cancer specialist up in Baltimore. My husband talked briefly to the surgeon right after surgery...but i was still in recovery. He did a laparoscopic surgery 2 weeks ago on me to rule out progression of the cancer as a cause of my pain that I have been having since February. i have signet ring adenocarcinoma...which has a high probability of peritoneal spread. Well, they went in and looked and did not find any evidence of disease. They did a belly wash w/saline and tested the fluid...also they checked my cancer markers. Cancer markers are within normal range...down a little from earlier this Spring! The plan now is to check CEA again in 3 months ... Then do a CT/PT scan at 6 months. Oh, and since I do not need chemo again for the foreseeable future...I can have my port taken out!
alex
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Hip hip hooray!Cathleen Mary said:What wonderful news!!!! i
What wonderful news!!!! i hope NED becomes a permanent member of your family. Enjoy and celebrate.
Cathleen Mary
Congratulations and thanks to modern medicine! -
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No...will follow up with mytraci43 said:Happy, happy, joy, joy!
What we all want to hear. What wonderful news. Do they have an idea about the pain? Hope continue to be NED!
No...will follow up with my primary care and then if it is kidney see a nephrologist??? I can live with the pain...so long as it is not something serious. It is hard just having a constant full feeling that I have had since the surgery. I am eating but only because I know shined to eat. I still have some pain from the surgery...deep inside...I know that is just my body healing up.
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No chemo or anything reallytanstaafl said:congrats.
Congratulations ! May you enjoy NED forever. Do you have a maintenance program?
No chemo or anything really needed according to the specialist. But he did say that this can come back...and because it is signet ring it can be aggressive...so just keep an eye on cancer markers and rescan in 6 months. Unless I have changes in bowel habits or start to develop other signs...like fever. He did not know why I am still uncomfortable...some people just take longer to heal from the surgery and all of the looking around and under things in there.
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