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Coronavirus/COVID-19
What cancer patients, their families, and caregivers need to know about COVID-19.
I heard those 3 little letters today... NED!
 |
Aug 06, 2013 - 5:03 pm
Hi everyone, I just got back from my post surgery follow up w/my cancer specialist up in Baltimore. My husband talked briefly to the surgeon right after surgery...but i was still in recovery. He did a laparoscopic surgery 2 weeks ago on me to rule out progression of the cancer as a cause of my pain that I have been having since February. i have signet ring adenocarcinoma...which has a high probability of peritoneal spread. Well, they went in and looked and did not find any evidence of disease. They did a belly wash w/saline and tested the fluid...also they checked my cancer markers. Cancer markers are within normal range...down a little from earlier this Spring! The plan now is to check CEA again in 3 months ... Then do a CT/PT scan at 6 months. Oh, and since I do not need chemo again for the foreseeable future...I can have my port taken out! alex |
Joined: Jun 2009
Very Happy for You!
You've had to wade through quite abit to enjoy this one!
May these feelings continue:)
Here's your Hall Pass....enjoy your non-cancer time now!
Just so relieved for you...
Joined: Jun 2013
That is A.W.E.S.O.M.E !!!
I wish we had more news like this.
Enjoy the good times and let us know what you did to celebrate.
Laz
Joined: Apr 2009
Congratulations
Congratulations,now you can do the happy dance.I hope you continue to be NED.
Joined: Apr 2012
Alex
NED is great news. Stay that way!!!
Joined: May 2011
What wonderful news!!!! i
What wonderful news!!!! i hope NED becomes a permanent member of your family. Enjoy and celebrate.
Cathleen Mary
Joined: May 2013
Hip hip hooray!
Congratulations and thanks to modern medicine!
Joined: Dec 2012
Fantastic news! I am so
Fantastic news! I am so happy for you!
Cathy
Joined: Aug 2012
Wahoo
Congrats on the good news. what is your current CEA level?
Joined: Jul 2012
My CEA right now is 3.6 .. My
My CEA right now is 3.6 .. My specialist said that it probably is not a good indicator for me. When I was first diagnosed it was .9 ... Yes...there is no typo there, .9! It jumped to around 5 suddenly after I finished chemo...that they were concerned about...not because of the actual CEA number...but because it was so much higher than it had ever been. It is still within normal, but since it was so low when I was diagnosed...they won't use CEA alone to measure how I am doing...if it jumps again...then they will start to look for a cause.
alex
Joined: Jul 2007
Happy, happy, joy, joy!
What we all want to hear. What wonderful news. Do they have an idea about the pain? Hope continue to be NED!
Joined: Jul 2012
No...will follow up with my
No...will follow up with my primary care and then if it is kidney see a nephrologist??? I can live with the pain...so long as it is not something serious. It is hard just having a constant full feeling that I have had since the surgery. I am eating but only because I know shined to eat. I still have some pain from the surgery...deep inside...I know that is just my body healing up.
Joined: Aug 2012
Yay Alex! So happy to read
Yay Alex! So happy to read this great news!
Joined: Oct 2011
Thats awesome. NED is a
Thats awesome. NED is a wonderful thing. Enjoy.
Joined: Oct 2010
congrats.
Congratulations ! May you enjoy NED forever. Do you have a maintenance program?
Joined: Jul 2012
No chemo or anything really
No chemo or anything really needed according to the specialist. But he did say that this can come back...and because it is signet ring it can be aggressive...so just keep an eye on cancer markers and rescan in 6 months. Unless I have changes in bowel habits or start to develop other signs...like fever. He did not know why I am still uncomfortable...some people just take longer to heal from the surgery and all of the looking around and under things in there.
Joined: Feb 2009
Wonderful
That is wonderful news and I'm glad that you get to take a breather.
Kim
Joined: Mar 2012
Best News Ever
Alex,
As one signet cell to another................................NED is wonderful.
Enjoy, now we just keep on top of it and manage.
My Onc told me........... now just go live your life and we will watch you.
Best always,
Joined: Aug 2005
I have one word:
DANCING!!!!!
Hugs, Kathi
Joined: May 2009
Great news!
Great news!
Joined: Oct 2011
That is the best news ever!
I'm so happy for you, Alex! No chemo, AND getting to take out your port...so awesome! Nice to get some good news on the board too, so thanks for providing it.
Hugs! AA
Joined: Aug 2013
Congratulations and best wishes.
I have signet ring too.
PJ