Aug 01, 2013 - 10:10 pm
Hi, 7 weeks out from surgery. This is the third regrowth in 7 years. The first two removals were done thinking it was a cyst. The second pathology showed it was a pleomorphic adenoma on the parotid gland. I saw an ENT/head and neck surgeon last August. We Watched the area with MRI’s and decided to go forth with the paridectomy. After a 6 hour surgery and over night stay I have healed for the most part with no bruising and the scarring is already looking really good. She removed 80% of the parotid gland and old scar tissue from other surgeries and tissue in the jaw area. i still have no movement around the right nostril and right upper lip…however hoping this is muscle trama and not nerve damage. time will tell….The tumor was benign ..praise God…showing branching to multiple sites and radiation was highly recommended. Due to regrowth the probabilty of carcinoma and permanent nerve damage. I have only 20% of gland left and if they go beyonthesis capsulthis would involve severinneed verve, I am now 7 days into radiation...any advise or previous experience with this would be so appreciated. i have developed a thick on right insode of my mouth and ne mouth sore has develooed. My rad team has been amazing and so compassionate. Using all the Biotene products, wearing flouride trays at night and drinking aloe juice. Gargling with salt and baking soda warm water.
Thanks so very much for any advise and so happy to find the blog. It good to hear from others experiencing the same. I had never heard of this before last summer. Definitely a learning process and a lot of patience involved.