CSN Login
Members Online: 9

You are here

Just got the word....

fishmanpa's picture
Posts: 1217
Joined: Jan 2013

I got the call shortly before leaving work today. My 1st post treatment PET scan will be next week, Tuesday August 6th, 15 weeks post Tx. It's going to be a LONG day as I have to be in Baltimore by 8am (leave VA a little before 6am) as my appointment is at 8:30am. The test takes 2.5 hours. Then it's off to Speech/Language Pathology for a swallow study and exam at 12:30pm and off to Radiation Oncology to see my RO at 2pm. PEG should be coming out and I'll be scoped as well. The good thing is that I should have the results of the PET scan by then (according to the PET center folks that called). 

So it will be one tiring crazy and stressful day!  Then it's back to Baltimore on Friday the 9th for blood work and to see my MO. 

Positive thoughts and prayers appreciated!


CivilMatt's picture
Posts: 4317
Joined: May 2012

Hi “T”,

Do you need a “wheel man”? 

Clean scans ahead for you.

Positive thoughts for everything you do.


catfish_58's picture
Posts: 125
Joined: Feb 2013

Good Luck and am sending prayers your way,Let us know soon as you can.

phrannie51's picture
Posts: 4673
Joined: Mar 2012

made me appreciate one other little thing about getting further out from treatments.....the Dr. appointments aren't piled on top of one another so much.....like there's room now for space inbetween.  Laughing  I look at last years calendar and it makes me tired today....I must have been exhausted when it was actually happening!

I KNOW your scan will be clean and clear, but am tucking you in my pocket anyway.....and it's convenient that your swallow Doc, your RO, and your ENT will all see you on the same day....WAY too far to have to see them on separate occasions...


robswife87's picture
Posts: 208
Joined: Mar 2013

Best of luck and all my prayers being sent to find you NED. I can't wait to hear the good news


Posts: 839
Joined: May 2013

Prayers being said for you daily!  I'm glad you can see everyone in one day and get results!  You will get to meet NED that day and say goodbye to your Peggy :)  What a busy day you'll have! 

yensid683's picture
Posts: 319
Joined: Apr 2012

How could it not be?

I hope all goes great on your very full day.


hwt's picture
Posts: 2330
Joined: Jun 2012

Good thoughts and plenty of prayers coming your way.

Duggie88's picture
Posts: 703
Joined: Feb 2010

I'm looking into my crystal ball and I see NED. Ned Beatty holding a sign stating Mr. T is now Mr. Clean.

All kidding aside, T''s and P's coming your way and I am feeling good about your results.

Enjoy the day


Skiffin16's picture
Posts: 8286
Joined: Sep 2009

Headed down the road with you....

I'm sure you're going to be just fine.... Slightly well done, a bit more crusty, but other wise good to go.


Grandmax4's picture
Posts: 709
Joined: Dec 2011

be riding along, peering over your shoulder at all times, cheering you on when Ned is declared~~prayers for you

Ingrid K's picture
Ingrid K
Posts: 813
Joined: Mar 2011


sending you prayers and best wishes that a long, long day will bring only good news.....

and that you get to meet NED.


cureitall66's picture
Posts: 912
Joined: Aug 2012


Good thoughts for NED....Sounds like you have your itinerary ready!



debbiejeanne's picture
Posts: 3095
Joined: Jan 2010

t, positive thots and prayers by the cart full!!  can't wait to hear ur good news.


fishmanpa's picture
Posts: 1217
Joined: Jan 2013

I appreciate the kind words and positive vibes!


jcortney's picture
Posts: 503
Joined: Sep 2012

Literally as well as spiritually.  I'm getting my 6 mo CT Today and will have the results on Tuesday like you.  

My friend I wish you all the good things I wish for myself.


Hondo's picture
Posts: 6643
Joined: Apr 2009

I hope and pray that everything will go well for you, keep your positive attitude and marching forward to the finish line. Know this for sure, that no matter what the results are you are in God’s hands.

God Bless

Tim Hondo


jim and i's picture
jim and i
Posts: 1788
Joined: May 2011

Praying for NED and a safe, although exhausting trip.



CherieLW's picture
Posts: 472
Joined: May 2013


Sending lots of positive thoughts and prayers your way! Fingers crossed that your scans come out great! I'm sure they will! Thinking of you!


luv4lacrosse's picture
Posts: 1410
Joined: Jul 2010

Prayers and positive MOJO headed your way. The waiting sucks! I expect to hear good news from your scan. 



Hondo's picture
Posts: 6643
Joined: Apr 2009

Keeping you in prayer for tomorrow that everything will go well


God be with you

Tim Hondo


Posts: 15
Joined: Aug 2013

Thoughts and prayers for you!!!Laughing

peggylulu's picture
Posts: 375
Joined: Dec 2012

I will be thinking about both of you tomorrow ! Positive thoughts for both of you to hear the words , No Evidence of Diease !!!!!

jcortney's picture
Posts: 503
Joined: Sep 2012

I'll let T speak for himself but my scan came back clean.  Lots of swelling (6 months post treatment) still and eating is a chore but even all the weird little nodules that were in my lungs are either gone completely or have shrunk substantially.  Now if I could just eat and get rid of the remaining mucous I'd be really happy.

Thanks all for the good wishes.


peggylulu's picture
Posts: 375
Joined: Dec 2012

That's so good to hear J !!!  So amazing to be NED and the nodules gone !!! I"m the same about the eating being a chore and the mucous but the dry mouth bothers me the most , but hey we're still here and feeling good ! 

fishmanpa's picture
Posts: 1217
Joined: Jan 2013

That's awesome Joe...  Time will heal the rest. 

Positive thoughts and prayers!


janetluvsron's picture
Posts: 116
Joined: May 2013

been praying for you, hope today went well.



Posts: 80
Joined: Apr 2013

And know that all will be well :)

fishmanpa's picture
Posts: 1217
Joined: Jan 2013

For all intents and purposes I'm NED! The prelim report was no sign of anything that raised any red flags. I'll know "officially" tomorrow but I got a call from my RO's team about an hour ago and they said if they thought for a minute there was something up, I would have been admitted for more tests. 

Everything else was good and as expected for 15 weeks post Tx... see my post "Hit the Road Jack" :)

Next scope in three months...

Thank you for all your positive thoughts and prayers! 


donfoo's picture
Posts: 1648
Joined: Dec 2012

I heard that BIG sigh all the way over here! I'm sure you are more glad than I on getting a clean scan. Super news. don

Ruben and Jude's picture
Ruben and Jude
Posts: 155
Joined: Apr 2013

That's great news. NED forever!!!  Cool

Subscribe to Comments for "Just got the word...."