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ca125 up again!!

JulieL's picture
Posts: 141
Joined: Jan 2012

I was shattered to hear this week that my CA125 has jumped another 102 points to 525 (my 6th consecutive rise!).  I am continuing on with Topotecan but my Oncologist wants to add Avastin so that is planned for tomorrow.  Has anyone else had this combination?

Another complication - this week at chemo discovered my portocath has flipped over and can't be accessed!  It was back to the canula in my hand, difficult with my veins but looks like surgery to fix it.  Will find out about that tomorrow.

To add to that I have a pretty (ugly really) swollen ankle!!  U/S shows no sign of a clot which is a relief. 

Sorry about my whinge but it has been a bad week!

Julie x

poopergirl14052's picture
Posts: 1185
Joined: Nov 2010

I hope they find a good combo for you and get those numbers down. As Gilda says " It's always something"....stay strong...Val 


wholfmeister's picture
Posts: 315
Joined: Dec 2012

You certainly are justified in you exasperation! 

I don't know anything about the medicines you mentioned, but there is a very recent posting on this board about Avastin.

I'm sending lots of good thoughts your way!

scatsm's picture
Posts: 296
Joined: Apr 2013

I would want to share this news as well. I haven't had Avastin, but I hope it does its job for you soon. Please continue to post and let us know how you are doing. Sending hopeful and healing thoughts your way!

Hopefully your groodle, whose picture is adorable, will help get you through!


Alexandra's picture
Posts: 1311
Joined: Jul 2012

I hope they fix your port and Topotecan + Avastin turn CA125 trend around.

Sending positive thoughts and hugs towards Australia

2timothy1 7's picture
2timothy1 7
Posts: 348
Joined: Jan 2012


You've just hit a bump in the road. Take a deep breath and plan your next attack. 

Sorry you are dealing with this!

Hugs to you!

lovesanimals's picture
Posts: 1364
Joined: Sep 2011

Julie, I am so sorry that your CA 125 continues to rise but I hope that adding Avastin does the trick and you kick cancer's butt!  I also hope that your port is fixed quickly and that your ankle gets better soon.  Come back often to let us know how you're doing!



Mwee's picture
Posts: 1341
Joined: Nov 2009

So sorry that you're dealing with these set backs. I've not had that chemo combo, but I'm hoping that it kicks butt! I went through several different combos before they found the one that has been keeping me stable for the past two years.                ((((((((HUGS)))))))) Maria

zinaida's picture
Posts: 223
Joined: Oct 2007

Topotecan did not work for me too. CA125 was rising. July,2 I will start Avastin too, but smaller dose than normal. My blood pressure was affected two years ago with Avastin and doctor canceled it. I will have Avastin and Doxil. My CA125 380 now. I hope this Chemo will knock it down. I hope Avastin will work for you too Julie. I read a lot good about this drug. With best wishes, Zina :)

Honordon's picture
Posts: 49
Joined: Jun 2011

I  hope they  get you sorted   soon  Julie  my   potacot  is  being an issue  also but so  far so  good.  I  pray your  ca  125  starts  to come   down  and  your  chemo   starts  to  kick  it  .........hugs  Donna

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