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It's been 6 years now

traci43's picture
Posts: 775
Joined: Jul 2007

Here I am at my 6th anniversary after being diagnosed with stage iv colon cancer with mets to the peritoneum.  I’m alive and well with most of my body parts intact.  I’ve lost bits and pieces along the way, but nothing vital.  I’ve had three surgeries, one was HIPEC, and 56 rounds of chemo.  I spend a small fortune each month on supplements.  I wish I could say that I’ve been NED for all that time, but no luck there.  I can't manage more than 12 months NED.  Still I beat my first oncologist’s projection of 18 months.  Every time I see him in the hall I want to smack him for his dire prediction, but part of me wants to thank him because it made me fight to live.

My last surgery was October 2012, to remove a small tumor at the bottom of my peritoneum.  That went well and I chose not to have chemo after.  All was well until January 2013 when my onc called and wanted me to come in for blood work.  Turns out I now have chronic myleogenous leukemia (CML).  This leukemia is the result of two genes exchanging parts and results in too many mature white blood cells.  Good thing is it’s easily controlled by a pill.  Only problem is when it is out of whack, it cannot control my colon cancer.

About 6 months ago I started cimitedine and PSK, after reading what many of you have said.  My CEA is slowly, and I mean, slowly rising---0.1 to 0.2 per month and is now at 5.0.  I attribute the slow growth to the cimitedine and PSK, in the past it would have been a lot higher by now.  A CT scan next month may shed some light on what is going on.  As I said, I wish I could say I’m NED but I can’t just yet.  Don’t know if I’ll ever be there with the CML.

Even with all this I can still see that my body is rejecting the colon cancer.  My mets have been limited to the fat in the peritoneum, with the exception of my ovaries which were removed in the first surgery.  So my organs, don’t want it.  Now if I could just convince the fat in the peritoneum of that, I’d be good.

I don’t post frequently, but I check in from time to time.  I still work full time and love what I do.  I stay busy spending time with family and friends.  I appreciate everyone’s comments and suggestions on this board, I think we all have to help each other through this.

Sundanceh's picture
Posts: 4408
Joined: Jun 2009


X6 !!!!!!

Congratulations Traci:)


thingy45's picture
Posts: 633
Joined: Apr 2011

Fantastic Tracy, wow, your post gives all of us hope for a longer life. Although you have challenges and worries you manage a productive live.

thanks for the post.

traci43's picture
Posts: 775
Joined: Jul 2007

Thanks everyone!  Not sure why it keeps showing up here and not at the end of the post.  Oh well!  Tongue Out

gizzyluv's picture
Posts: 144
Joined: Feb 2013

Ah yes....Duck Dynasty has helped Jason & I keep the laughter going!....And THAT'S A FACT JACK! lol Congratulations Traci! =) (this was suppose to be a reply to Sundanceh "happy happy happy" reply to Traci's post, but it keeps ending up half way down the page....? Oh well! Doesn't matter....) Tongue Out

AnnLouise's picture
Posts: 276
Joined: Mar 2013

You deserve a big congratulations although I realize it came with a price. Your strength is amazing and inspiring....it does give us hope. Thanks for sharing you journey....~ Ann

MaryCarol5's picture
Posts: 102
Joined: May 2013

congratulations Traci and thank you so much for sharing- it does give the newbies such as myself hope and encouragement to see that the treatments are worth it!  So happy for you Smile

Posts: 199
Joined: Nov 2012

Good to hear these positive survivor stories!!

Coloncancerblows's picture
Posts: 296
Joined: Feb 2013

Congrats!  Love to hear good news on this forum.

barbebarb's picture
Posts: 464
Joined: Oct 2011

Thank you for sharing and this is so encouraging.

Wishing you continued success!


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