NED!!

corleone
corleone Member Posts: 312 Member

Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients he sees with this condition, I look exceptionally well.

I am 9.5 months post radiation and 6.5 months post last chemo. For the treatments I had for the nasopharyngeal carcinoma, please check my bio.

I was really anxious before the follow-up appointment, but who wouldn’t have been?! Otherwise I am doing great, with the usual side effects, really manageable. Dry mouth still there (saliva ~30-40% - my own estimation, but that’s highly subjective), taste a bit off but not by much, I can eat anything I want (with my best friend – bottle of water – around); level of energy very good (except sometimes in the afternoon when I feel like I need to take a nap – and I do, when I work from home, for about 20-30 minutes, and in the evenings); hearing loss (that’s permanent, but I am wearing hearing aids, helping me a little). Work is OK, I started 3 months ago (tough the first couple of weeks, until I got into the usual rhythm).

That’s about it; I wanted to share that with you.

Comments

  • sin9775
    sin9775 Member Posts: 199 Member
    NED

    Congratulatons on you NED results.  I am so looking forward to hearing my brother report the same.  He's not quite half way through treatments, so there's a long way to go.  May God bless you with continued healing.

     

    ~Shawn~

  • osmotar
    osmotar Member Posts: 1,006
    Congrats

    Wonderful news

  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    Wonderful news!! I am hoping

    Wonderful news!! I am hoping for the same thing on Tuesday! Glad things are going well for you!

     

  • Greg53
    Greg53 Member Posts: 849

    Wonderful news!! I am hoping

    Wonderful news!! I am hoping for the same thing on Tuesday! Glad things are going well for you!

     

    Congrats!

    Congrats!!  Another NED - gotta love it!

     

    Greg

  • phrannie51
    phrannie51 Member Posts: 4,716
    You know how much we love those words....

    NO EVIDENCE OF DISEASE!!  Nothing better than that.  Congrats on your latest meet up with Mr. Ned.

    p

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    NED all day all night

    Corleone,

    I nod to your NED!

    Dry mouth and taste improving, eat anything, back to work and naps in the afternoon, you had one good bus driver, way to go.

    Best always,

    Matt

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Happy news!

    Always happy to see NED!

    Deb

  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    D Lewis said:

    Happy news!

    Always happy to see NED!

    Deb

    Always the best news ..

    Very happy for you...

     

    Best,

    Tim

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Sharon....

    Thanks for sharin...., awesome news I never get tired of hearing...

    JG

  • hwt
    hwt Member Posts: 2,328 Member
    Skiffin16 said:

    Sharon....

    Thanks for sharin...., awesome news I never get tired of hearing...

    JG

    Congrats

    Celebrate!

  • katenorwood
    katenorwood Member Posts: 1,912
    Awesome !

    I am so happy for you !  Those three wonderfully put together letters of the alphabet N...E...D !  Continued success in everything !  Hugs sent !  Katie