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Stopping by to say hello

rae_rae's picture
rae_rae
Posts: 300
Joined: Oct 2010

Hi All,

 

I am stopping by to catch up on what's going on and say hello. So many new members Cry but happy you found this forum as the support and friendship here can't be beat. I am still NED (last check up in March). I also lost my mom in March after caring for her for the past five years so my life has changed a lot this year! 

Wishing you all well-stay positive and have faith.

 

God Bless,

Rae

icemantoo's picture
icemantoo
Posts: 3317
Joined: Jan 2010

Rae,

 

Sorry to hear about mom. Glad to hear you are still NED . More so that you started with less than perfect baggage. Come back and be an example to the Newbies that start with Stage 2 and can see from you that they can look to you as an example of being NED for 2 and 1/2  years.

 

 

Icemantoo

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

So lovely to hear from you Rae and even more so to hear you're still NED. 

I'm sure yourMom enjoyed a lot more time and better quality of life for all the care you gave her. 

You must be feeling a bit of a vacuum now that she's gone and I hope you'll take up iceman's suggestion and spend a bit more time here again, helping to encourage and inspire all those newcomers (and us oldies too!).

Djinnie's picture
Djinnie
Posts: 945
Joined: Apr 2013

Hello Rae,

Being one of the newbies, I would like to say...Hi!!

I am sorry to hear about your sad loss, it must have been a comfort to your Mother you being there for her. I looked after my Mother for quite some time after my Father died, as she suffered a stroke, then sadly she developed bowel cancer. I was lucky that my lovely husband was happy for her to move in with us, we managed to give her a good quality of life for several years until she passed. I am very thankful for that!

I am obviously not familiar with your story, but the fact that you have been in our shoes, and are doing so well is very good news. Congratulations to you! ..... Keep up the good work:)

Look forward to seeing you on here again sometime. All the best.

 

Djinnie x

 

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

Its nice to hear another success story and to see such a happy face! 

I am sorry for your loss. It is a path travelled far too often for all of us.  Be thankful for her life, her company and the lessons she passed on to you! Treasure her memory.

Warmly

Michael

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I've missed that smiling face. Glad you are well.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Rae,

Really sorry to hear about your mom, but its good to hear you are doing great.  I too have been a bit scarce around here, but working on a comeback, I hope you'll stick around and help cheer up the new members with your wonderful smile.

God bless you too.

Gary

tampatownguy
Posts: 6
Joined: May 2013

Hi Rae:

Being new to the forum I know little about your history - it is, however, wonderful to learn that you're doing so well at this point in time, and I wish you continued success and a rich and rewarding future.

Tony

 

alice124's picture
alice124
Posts: 898
Joined: Mar 2012

Condolences on the loss of your mom; sincerely sorry.  You can take comfort in your selfless caring for her  despite your own problems. I'm sure she's guiding your NED status from a better place. Good to have you back!

 

 

rae_rae's picture
rae_rae
Posts: 300
Joined: Oct 2010

Thanks for the well wishes. It's nice to see all of your smiling faces as well. Between my busy job and chronic migraine issues I've been having, I feel I have less time now than when I was caring for my mom, but I do miss her. For those that are new and don't know my history (and for the old and faithful that have forgotten), I will share with you and you can read my profile as well.

I was diagnosed in July of 2010 after have symptoms - clear cell carcinoma, stage 2a, grade 3, 9cm tumor, left kidney. Lots of necrosis which means it was growing quickly.  One small area (1mm) of breakthrough. It was butting up against my spleen and pancreas. Radical nephrectomy in October of 2010 with a nick to my spleen and to the tail of my pancreas which required a specialist to stitch it up and also follow up with me during my six day stay in the hospital to make sure it was healing. 

BP dropped to 74/42 after surgery. I was given two units of blood and still struggled to get my BP up the first night. I had an epidural for pain which was removed on day four. I had a fever on day two, three and four and my oxygen levels dropped to 74%. We eventually got that all sorted out (lots of coughing up junk). I caught the Norwalk virus the day my staples were removed and ended up in ER. I was very ill for four days. Ialso had a migraine the night before surgery and vomited all night and the next morning. Needless to say, my surgery was not the high point of my life.

The next year brought chronic fatigue mainly due to anemia and B12 deficiency, a recurrence scare and eventual road to feeling "normal" by late 2011. It is truly a unique exerience for each person. It's been two and a half years and my life is back to normal. You do eventually get past the worry of each little ache and pain and thinking about cancer every day. It took almost two years for me to get there. Of course, I still have reminders such as the giant scar and the nerve pain along my scar, but it's a gentle reminder to stay vigilant with my check ups. I have had CT scans every six months and now my next one will be at a year. It's nice not to think about it for awhile. 

For the newbies, all I can say the worry and the fear are understandable, but it won't add one day to your life. You eventually adjust to your new normal, whatever that may be. Life is nothing, if not ever changing. Accept the change and keep moving forward.

God Bless,

 

Rae

Texas_wedge's picture
Texas_wedge
Posts: 2798
Joined: Nov 2011

That's an excellent summary Rae with first-class advice for all newcomers, as well as reminders for those long-timers among us who don't remember every twist and turn of your story.  With your last sentence, in only seven words you've captured the crucial message:

Accept the change and keep moving forward.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Always trying to find some way to say that.

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