my wifes hipec surgery
background: I am 43, my wife 39, we have 2 boys, 5 and 9...........................
my wife was diagnosed with stage 4 colon cancer in March 12. she had 12 rounds of chemo (1 every 2 weeks )
last one was sept 12. she was scheduled for hipec dec.4,2012 ..somehow she got an awful staff infection in her foot late october
and was in hospital for 8 days. luckily she was well enough to have the surgery in December as scheduled,,,,
Since then , it has been a nightmare.. ( not to be negative about all this, just letting you know how hers went)
Her hospital stay was 14 days and she finally got to come home a week before christmas , yay !!
the day after christmas her incision started leaking really bad, so back to the hospital we went.
she stayed in the hospital for 9 days. ( she had 2 drain bags, they added a 3rd due to the spot that was leaking )
after she got back home, she was on a tpn ( her feed bag ,the kids called it )
mid january she started leaking again , so back to hospital .. another 6 days in hospital this time..
late January early Feb. she was off her TPN . During all this , we had to pack 2 different spots along her incision that they
left open with gauze to soak up excess drainage.. (that was not for someone with a weak stomach)
late February, she was really weak and lethargic , i begged her to go to the hospital,but hard head said NO!
Finally , her best friend basically tricked her into going to town and drove her to the hospital, thank God she did,
she was horribly dehydrated and her whole body was out sync (enzyme level, blood count etc.) she also had an infection (fluid) on her liver and 2 more spots like it in her stomach area.. (can't remember exactly where)
Needless to say ,her Dr. was mad and told her had she not come in, she would most likely not made it thru the weekend ,due to her body being so out of whack.
this time , she was in there 15 days,and she complained constantly that her back hurt. they did ct's etc. but saw nothing to explain it.
when she finally got to come home, she was stil in continuous pain in her back. She had prescription lidocain patches,heating pad, morphine pills,oxycodone, you name it,she had it, nothing helped. They had put her back on a TPN due to her not eating and the dehdration. She also basically had to take a small trash can around with her in the house because she would throw up pretty much continuously She barely ate anything and i attributed that from having the TPN as many patients have a hard time eating during and after TPN'S ... So the whole month of April was about back pain and throwing up.. ( i felt SO bad for her)
she had 2 more ct's in April and still, they found nothing. i told her it was probably her muscles being sore from her being pretty much bed ridden over the last 4 months and from the soreness when she stretched and tried to exercise them etc
Yesterday, she went back to her Dr. and they decided to do another ct and more tests...he had several radiologists , 2 surgeons, and a Dr. from Cleveland clinic look at it
They concluded that she has a mass ( tumor ) that is pressing into her intestine causng the pain and naseau .
They cannot operate on her because of her condition and i guess since she had the hipec not long ago,,,
i wasn't there when the Dr. came in, so I am not sure the size of it, but if it wasn't there or they didn't see it 3 weeks ago, why has she had this pain for over 2 months and that cannot be good it grew that fast,that quick is it???
Anyone with similar experiences or suggestions, please reply. Also, if you have any ideas etc. as what we should do from here.....
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