Johnnybegood Is Here

wolfen
wolfen Member Posts: 1,324

She & her hubby got in around 8 this morning. We have been at the hospital all day & have come home for her to rest a bit & take meds.

The pulmonogolist talked to us & said he could remove the tube, but chances are he could not breathe & with most other systems failing, he would not last. I explained to Ron that if the tube was removed, he couldn't breathe & he shook his head no. He was surprised & glad to see JBG. She is taking this very hard.

The pallative care team also talked to us & said we could make the decision to put him in a Hospice facility or bring him home with hospice assistance. The chances are very slim that he will recover, but we asked them to give him some more time, just to try. His mind is all there, just fuzzy at times. If the decison is made to contiue care indefinitely, he will have to have a trach & go to a nursing facility forever.  Otherwise, no ventilator and he would expire fairly soon. It's just too soon to decide what to do. He is comfortable, or as much as he can be plugged up to everything and I know he's not ready to throw in the towel.

This is so hard. My heart is breaking and I just can't let go, yet. As we all do for one another, I'm praying for a miracle. Perhaps he will be the one to make the decision, but who really knows if he fully understands.

We'll grab a bite to eat & head back soon.

I love all of you.

Wolfen

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Comments

  • AnnLouise
    AnnLouise Member Posts: 276
    My heart is with you........

    I am glad JBG and husband got there safely and are there for you. So much for you to think about and decisions to make.....if it seems too soon, it probably is. I don't have any good advice or solutions but I am thinking about you and your family. Hope you have a meaningful evening together. ~ Ann

  • herdizziness
    herdizziness Member Posts: 3,624
    Wolfen

     

    This just breaks my heart. I was there once in that position with my dear little brother.

    There is no hurry in you and yours decision, I pray for a miracle for you all as well.  As long as he's in fighting mode there is some hope.

    I'm glad JBG made it there safe and sound and that she is with you.

    My heart is with all of you.

    love to you,

    Winter Marie

     

  • fatbob2010
    fatbob2010 Member Posts: 467
    So Hard

    Wolfen

    I am so sorry that you are in this difficult and what must be a seemingly impossible situation.  I hope that you, Ron and JBG can find peace at some point.  ((HUGS))  Art

  • Maxiecat
    Maxiecat Member Posts: 544
    you and your family are in my

    you and your family are in my thoughts and prayers at this very difficult part of his life.  try to get some rest as best as you can...and make sure JBG takes care of herself too.  You all need to be strong for each other.

     

    alex

     

  • Deena11
    Deena11 Member Posts: 199
    So sorry

    Your post made me cry.  I can only imagine how hard this is for you and your family.  I am praying for you.

    Deena

  • Deena11
    Deena11 Member Posts: 199
    Double Post

    double post

  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Oh My Goodness

    Your post has me so sad.  First, I'm glad that lovely daughter made it home ok, but sorry for the reason she is home.  You hubby has to make a big decision and you've been at his side for all of this.  I'm sorry that he is going through all that he is.  Just can't tell you how much you, as a caregiver, are such an inspiration.  Praying for the best.

    Hugs! Kim

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dearest Wolfen

    I am so very glad that JBG and her hubby got there safely. 

    Yes, it is so very hard to be in the situation of determining how to proceed.  I am praying that there will soon be a sign to help you to feel in your heart which is the right one. 

    Please take care of you and make sure JBG's hubby takes care of her.

    Prayers for the miracle you are hoping for, but know if it does not happen, you have done all humanly possible for your dear hubby.

    Hugs and love,

    Marie who loves kitties

     

  • Chelsea71
    Chelsea71 Member Posts: 1,169
    Hi Wolfen
    So pleased that JBG

    Hi Wolfen

    So pleased that JBG arrived safely and that you now have some company. I am praying that you will get your miracle.

    Chelsea
  • KathiM
    KathiM Member Posts: 8,028
    I'm so happy...

    I am so happy that she arrived safely!  I have been sending safe thoughts to her the whole way, as have many others.

    My heart is breaking, as well, dear one!  You are so wise that for the moment, giving him the right to fight.  From my experience (and only a few times, at that), I have found that a seriously ill patient at some point becomes peaceful and stops the struggle.  That is the right time to consider other options...in my opinion.  My mom was overheard to say, from her faraway place (almost comatose) "Mother, please take me home".  She became alert for a few hours, and then passed peacefully.

    I know it is devastating to imagine the world without him, dearest friend, but you are also wise to not want to keep him here at all costs.  What dignity you are giving to him!

    I believe that we all have a list of things to accomplish in our lives.  This list is not made by us, and we do not know what is on it, or how much more there is for us to do before we are allowed to go on.  As I stopped breathing from a severe reaction to one of my chemotherapies, I saw (or so I believe) what is waiting for me.  It is a bright, peaceful place, with a warm glow about it.  I hold that image with me now...and remind myself that when my list is complete, I am done and will be allowed to go on to this place.  Maybe this place is just a spot in other people's hearts.  I do not know.

    I wish for a miracle (they do happen). I wish him peace.  And you also my dearest friend....

    Love to you and JBG and your darling Ron.  Kathi

  • LivinginNH
    LivinginNH Member Posts: 1,456
     
    :'(
    I am so thankful that

     

    :'(

    I am so thankful that JBG has arrived safely. And I am certain that your dear husband is comforted by having you both by his side.

    Luv,

    Cynthia

  • thxmiker
    thxmiker Member Posts: 1,278
    Keep Strong

    We are glad your family is together.  The strength of the family is powerful.  We are sending our prayers and good thoughts to add to the strength.

     

    Best Aways,  mike n laurie

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    Long Overdue Family Reunion

    Mama

    This is not the way I envisioned it many moons ago...but I am grateful that all of you are there together in the same room, though I wish it were under much different circumstances....

    You know how much I was trying to get you guys together before things began to turn...and this was the reason why.  So, this leaves my heart heavy to read of your news...but still very glad that you are all together during this most difficult time. 

    May your time spent together as a family be filled with memories that will last a lifetime:)

    Hugs/Craig

  • johnnybegood
    johnnybegood Member Posts: 1,117
    Sundanceh said:

    Long Overdue Family Reunion

    Mama

    This is not the way I envisioned it many moons ago...but I am grateful that all of you are there together in the same room, though I wish it were under much different circumstances....

    You know how much I was trying to get you guys together before things began to turn...and this was the reason why.  So, this leaves my heart heavy to read of your news...but still very glad that you are all together during this most difficult time. 

    May your time spent together as a family be filled with memories that will last a lifetime:)

    Hugs/Craig

    hello all

    just a short post to tell everyone thank you so much for your support and please keep the prayers coming for wolfen my mother.as she is not strong in faith as i am and i believe this is the reason for our short and loving reunion.my stepdad looks so frail and i know a better place is awaiting him but i know my mom is not ready for this decision as it is so hard on all of us.i can feel the stress of this is not good for my health but right now i need to be by my mothers side if it is only for a few days as hubby has to get back to work.please keep yor prayers coming that our family will finally reach some peace from this nightmare.hugs to all and Godbless...johnnybegood

  • smokeyjoe
    smokeyjoe Member Posts: 1,425

    hello all

    just a short post to tell everyone thank you so much for your support and please keep the prayers coming for wolfen my mother.as she is not strong in faith as i am and i believe this is the reason for our short and loving reunion.my stepdad looks so frail and i know a better place is awaiting him but i know my mom is not ready for this decision as it is so hard on all of us.i can feel the stress of this is not good for my health but right now i need to be by my mothers side if it is only for a few days as hubby has to get back to work.please keep yor prayers coming that our family will finally reach some peace from this nightmare.hugs to all and Godbless...johnnybegood

    Thinking of you,  and prayers

    Thinking of you,  and prayers coming your way.   

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member

    hello all

    just a short post to tell everyone thank you so much for your support and please keep the prayers coming for wolfen my mother.as she is not strong in faith as i am and i believe this is the reason for our short and loving reunion.my stepdad looks so frail and i know a better place is awaiting him but i know my mom is not ready for this decision as it is so hard on all of us.i can feel the stress of this is not good for my health but right now i need to be by my mothers side if it is only for a few days as hubby has to get back to work.please keep yor prayers coming that our family will finally reach some peace from this nightmare.hugs to all and Godbless...johnnybegood

    Hey J

    I'm so glad that you and Mom are together once more .....this is all that I've wanted for a very long time...and I take some comfort from that in the midst of your family struggles.  Knowing you are all standing as ONE together....I've been a little teary about this as I've been thinking about it.  

    I was hardening back up....but your story has softened me:) 

    All of us are sitting in our virtual waiting rooms with all of you right now:) 

    Big hugs! 

     

  • KathiM
    KathiM Member Posts: 8,028
    Sundanceh said:

    Hey J

    I'm so glad that you and Mom are together once more .....this is all that I've wanted for a very long time...and I take some comfort from that in the midst of your family struggles.  Knowing you are all standing as ONE together....I've been a little teary about this as I've been thinking about it.  

    I was hardening back up....but your story has softened me:) 

    All of us are sitting in our virtual waiting rooms with all of you right now:) 

    Big hugs! 

     

    Oh, my gentleman cowboy....

    You say is so well!!!

    Family and friends are what it's all about...and, our extended family here makes it even bigger!

     

    Hugs, Kathi

  • annalexandria
    annalexandria Member Posts: 2,571
    Such a sad, hard situation to be in.

    Went through this with my MIL and it was terrible.  I'm so sorry you all have to go through this, Wolfen (and JBG), but I'm glad that you are getting a little time together.  That time will in the future have a value beyond gold.  Many hugs~AA

  • janderson1964
    janderson1964 Member Posts: 2,215
    I dont know what to say. Just

    I dont know what to say. Just please know that you and your family are in my thoughts and prayers.

  • maglets
    maglets Member Posts: 2,576

    I dont know what to say. Just

    I dont know what to say. Just please know that you and your family are in my thoughts and prayers.

    JBG

    oh Johnny sending you fondest love.....please look after yourself dear friend and give your mom a hug....

    prayers for all of you

    best love, mags