Stopping Chemo updated

Vickilg
Vickilg Member Posts: 281

Thank everyone for your kind words and support.  They truly mean so much to me.   I came to tHe doc to explain my plan.  He said that we can lower the dosage but that he thinks we can get to remissission. If i stop chemo i have six months to live.   My husband wants me to keep fightening for him our daughter.   I said fine because i canny bear their pain - my husband and daughter.  He also oeder me Cymbalta and something to increase my appetite.   Im back a biy reluctant back in the fight

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Comments

  • devotion10
    devotion10 Member Posts: 623
    I like your doctors positive attitude ...

    and his willingness to work with your dosage. I will say one thing ... I doubt that he knows that you would have six months to live as that is truly unknowable.  If you feel comfortable with your decision then give it a try.  Always know that ultimately, I feel at least, that these decisions are in your control.  The love and support of your family and those here can help you move forward. Very best to you. -- Cynthia

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Your post is heartbreaking

    Your post is heartbreaking Vicki.   This damn disease is so tough on all involved.    I think it's encouraging though that the doctor still thinks there is hope.   I hope the lower dose makes things easier and you reach that remission.  My prayers and thoughts are with you and your family.

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Vicki

    Life with cancer is definately a rollercoaster.  Each day can bring new information which influences our decisions.

    I am glad that your doc is willing to work with you to potentially improve quality of life while staying in treatment, and very glad he still believes remission is possible.

    Prayers are coming your way that all works well and remission becomes a reality.

    Marie who loves kitties

  • danker
    danker Member Posts: 1,276
    Vickilg

    Only God knows when you will die. The docs are only guessing based on experience of others. You hang in there and take it a day at a time.  Best of luck to you!!!

  • coloCan
    coloCan Member Posts: 1,944 Member

    Dear Vicki

    Life with cancer is definately a rollercoaster.  Each day can bring new information which influences our decisions.

    I am glad that your doc is willing to work with you to potentially improve quality of life while staying in treatment, and very glad he still believes remission is possible.

    Prayers are coming your way that all works well and remission becomes a reality.

    Marie who loves kitties

    While its only in a developmental phase

    you might want to find out more about Labetuzumab as a potential replacement for irinotecan with less side effects

    www.pipelinereview.com/index.php/2013041150670/Antibodies/Immunomedics-Reports-First-Results-of-Labetuzumab-SN-38-in-Colorectal-Cancer.html

     

  • Maxiecat
    Maxiecat Member Posts: 544
    Hang in there...my heart goes

    Hang in there...my heart goes out to you...this was still a difficult decision.  I will still keep you in my thoughts and prayers.

    alex

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    :)

    :)

  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Decision

    It's got to be a very difficult decision, but I'm glad that your doctor has given you hope.  Hoping that you tolerate the reduced treatment well.

    Kim

  • Chelsea71
    Chelsea71 Member Posts: 1,169
    I like this doctor! I really
    I like this doctor! I really think it's possible that just a change of dosage could make all the difference. Please let us know how the next session goes.

    Chelsea
  • maglets
    maglets Member Posts: 2,576
    Chelsea71 said:

    I like this doctor! I really
    I like this doctor! I really think it's possible that just a change of dosage could make all the difference. Please let us know how the next session goes.

    Chelsea

    oh vicki

    oh you are so brave.....my heart goes out to you.  All the very best.....I pray that this dose will be tolerable to you.....

    what a strong woman you are.....best love, mags

  • Vickilg
    Vickilg Member Posts: 281
    maglets said:

    oh vicki

    oh you are so brave.....my heart goes out to you.  All the very best.....I pray that this dose will be tolerable to you.....

    what a strong woman you are.....best love, mags

    Thank you!

    Thank you for all the beautiful support everyone. Big hugs!

  • AnnLouise
    AnnLouise Member Posts: 276
    Vickilg said:

    Thank you!

    Thank you for all the beautiful support everyone. Big hugs!

    Thinking of you......your husband and your daughter....

    I hope things become easier for you....you are so strong and you have all of our support....~ Ann

  • wawaju04976
    wawaju04976 Member Posts: 316
    You hang in there. Your

    You hang in there. Your doctor must see something coming out of this, which is a positive. Hopefully the lower dose will make it a little easier, so stay strong and think positive!

    Judy

     

  • vinaykumar
    vinaykumar Member Posts: 66
    fight on ...

    please consider doing a  combination of low dosage chemo with other herbal / TCM based options....they have worked for some here ...they might work for you !!

    i have also read up about yance's protocol recently...you might want to look at that

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Hope

    Hope is a good thing my friend and I am glad that the doctor shared some with you.  **** had to cut back on chemo about 1.5 years ago, it was just too much.  I hope and pray that this adjustment is good for you. 

     

    Aloha,

    Kathleen

  • janderson1964
    janderson1964 Member Posts: 2,215
    I was sad when I read your

    I was sad when I read your post about stopping chemo. I understood but didnt know how to respond. Now I can say that I am glad that youa good doctor rather than some of these doctors that I read about who basically give up on thier patiants. I refused the last 2 rounds of irinotecan after my first recurrence but I was NED so it was a much easier decision. I almost stopped early after my second recurrence but my friends and family talked me into doing the last 2 rounds.

    You have hope and a lot to fight for. You are in my thoughts and prayers no matter what you decide.

    Jeff

  • olgrizz
    olgrizz Member Posts: 16

    I was sad when I read your

    I was sad when I read your post about stopping chemo. I understood but didnt know how to respond. Now I can say that I am glad that youa good doctor rather than some of these doctors that I read about who basically give up on thier patiants. I refused the last 2 rounds of irinotecan after my first recurrence but I was NED so it was a much easier decision. I almost stopped early after my second recurrence but my friends and family talked me into doing the last 2 rounds.

    You have hope and a lot to fight for. You are in my thoughts and prayers no matter what you decide.

    Jeff

    As you can
    see you are not

    As you can

    see you are not alone. Keep up the good fight. We are all in this together.
  • PhillieG
    PhillieG Member Posts: 4,866
    Hi Vicki

    I'm glad you're giving things another try. It's not easy but like me and many others with kids, they really can be a great source of motivation and inspiration during tough times...

    I'm never crazy to hear when a doctor gives the "x months to live" nonsense. Ask him if he can tell me who's going to win the World Series this year so I can place my bets early!

    Hang in there, all the best

    -phil

  • SharonVegas
    SharonVegas Member Posts: 189
    Vicki you are so strong!  You

    Vicki you are so strong!  You are not alone. I think many of us think of throwing in the towel from time to time.  Sometimes we just need a break or an adjustment to our chemo dose to keep us moving towards our goal of remission or NED. My best to you, Ron

  • thxmiker
    thxmiker Member Posts: 1,278
    We are sending our thoughts

    We are sending our thoughts and prayers.    The fight never ends even if we decide quality of our life is better with or without chemo.  keep making the decision for the best quality of life for you and your family.

     

    Keep up the good fight, and go slay some dragons!

    Best Always, mike