Caringbridge

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peggylulu
peggylulu Member Posts: 375
edited April 2013 in Head and Neck Cancer #1

What is caringbridge and how do I get to the site ?

Peggy

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  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #2
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    www.caringbridge.com   It's a

    www.caringbridge.com   It's a site designed to keep friends and relatives abreast of those with a major illness either dying or in recovery / treatments so that the family is not overwhelmed with calls / inquiries but can check in and leave comments, etc. etc. 

     

    Hope that helps.

     

    Tim

  • MICH4EL
    MICH4EL Member Posts: 73
    #3
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    Caring Bridge

    Caring Bridge is a really great way to keep friends, family and coworkers informed about your treatment progress.  Setting up the site is pretty easy.  You write a sort back story about your condition and any other background you want people to know, then you set up the site either as open access, where anyone can view it, or through a passward that you assign to the site and forward the password to the people you want to view it.  Everyone who views the site will need to register with Caring Bridge by creating their own personal user name and password, then they can use your site password to see your site.

    On the site, you or your family members can post Journal entries with updates on your treatment.  Then anyone else can post comments and their words of support and encouragement in the "Guestbook." You can post pictures, too.

    I recommend it.  It is easier than trying to send email updates to people and responding to every individual email that you get in reply.  Sometimes I am not up to replying to each comment individually.  On CaringBridge, no one expects you to reply individually.

    Michael

     

  • peggylulu
    peggylulu Member Posts: 375
    #4
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    MICH4EL said:

    Caring Bridge

    Caring Bridge is a really great way to keep friends, family and coworkers informed about your treatment progress.  Setting up the site is pretty easy.  You write a sort back story about your condition and any other background you want people to know, then you set up the site either as open access, where anyone can view it, or through a passward that you assign to the site and forward the password to the people you want to view it.  Everyone who views the site will need to register with Caring Bridge by creating their own personal user name and password, then they can use your site password to see your site.

    On the site, you or your family members can post Journal entries with updates on your treatment.  Then anyone else can post comments and their words of support and encouragement in the "Guestbook." You can post pictures, too.

    I recommend it.  It is easier than trying to send email updates to people and responding to every individual email that you get in reply.  Sometimes I am not up to replying to each comment individually.  On CaringBridge, no one expects you to reply individually.

    Michael

     

    Thank you

    So much Tim and Michael ! Sounds like a great site for family and friends. I will go to it and take a look and see if I can figure it out.

    Thanks , Peggy

  • VivianLee5689
    VivianLee5689 Member Posts: 546
    #5
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    peggylulu said:

    Thank you

    So much Tim and Michael ! Sounds like a great site for family and friends. I will go to it and take a look and see if I can figure it out.

    Thanks , Peggy

    Caring Bridge is really good

    I have been using Caring Bridge for months.  Being able to blog abour all the ups and downs of therapy have been very therapeutic for me.  I was tired of spending so much time saying the same thing over and over to people and trying to figure who I told what to.  It just kept everybody on the same page.

  • mls351w
    mls351w Member Posts: 90
    #6
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    I recommend it

    Personally, I highly recommend Caringbridge. It lets anyone, who is interested, know about your progress.

    My daughter posted daily and gave a "blow by blow" account of my treatment. It's like a diary dealing with this ordeal. Also, people can leave comments so that you are not overwhelmed with phone calls, ect.

    Of course, you have to make people aware of the site. And after a while you will be amazed at the number of friends that tell other friends about it. It kinda snoballs and you will be hearing from people you may have forgotten.

    Doesn't cost anythiing.

    Mark S.

  • mls351w
    mls351w Member Posts: 90
    #7
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    I recommend it

    Personally, I highly recommend Caringbridge. It lets anyone, who is interested, know about your progress.

    My daughter posted daily and gave a "blow by blow" account of my treatment. It's like a diary dealing with this ordeal. Also, people can leave comments so that you are not overwhelmed with phone calls, ect.

    Of course, you have to make people aware of the site. And after a while you will be amazed at the number of friends that tell other friends about it. It kinda snoballs and you will be hearing from people you may have forgotten.

    Doesn't cost anythiing.

    Mark S.

  • NJShore
    NJShore Member Posts: 429 Member
    #8
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    mls351w said:

    I recommend it

    Personally, I highly recommend Caringbridge. It lets anyone, who is interested, know about your progress.

    My daughter posted daily and gave a "blow by blow" account of my treatment. It's like a diary dealing with this ordeal. Also, people can leave comments so that you are not overwhelmed with phone calls, ect.

    Of course, you have to make people aware of the site. And after a while you will be amazed at the number of friends that tell other friends about it. It kinda snoballs and you will be hearing from people you may have forgotten.

    Doesn't cost anythiing.

    Mark S.

    it is a great site

    Dan's caringbridge site is accessed by his entire family, my entire extended family, almost the entire staff at the school, and many friends. In the last 6 months he has acquired 10,000 hits... that is a lot of inquiring telephone calls that weren't made! Particularly since I work from home.

    We post daily, or say we will take small breaks and once we get NED (later in April) we will probably reduce updates to dr's appts and scans, those bigger milestones, and stop the daily routine notices.

    But it's been awesome, and I love following others, and letting them know by "hearting" their posts.. it lets them know we care and are thinking about them.

    Kari

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