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Artificial Urinary Sphincter Implant (AMS 800) -- help!!!

skoehler123
Posts: 5
Joined: Feb 2013

Seeking Others to Discuss Their Experience w/ AUS Implant (AMS 800):

I am inquiring for my father-in-law (fil) who has limited internet access. He is 63, prostate removed 13 months ago, now suffering from incontinence. Received 2nd opinion yesterday from Mayo and was told he had 2 options: 1) status-quo -- it won't get better over time, or 2) AMS 800 Implant. 

As you can imagine, he's feeling anxious about option #2. I am seeking any and all who can provide feedback about your experience (pre and post surgery). 

Some concerns: 1) Life post implant, 2) Infections common, 3) Reputable docs/hospital to perform procedure, 4) any other options, 5) life span of implant, 6) physical limitation post implant, 7) anything else you believe will be helpful making a decision.

Your input is greatly appreciated. My fil knows there are 1000s of men who've had this procedure, but sort of lost regarding how to connect with you all. Please help. We greatly appreciate your time and consideration.

Take care!

 

Trew
Posts: 891
Joined: Jan 2010

Incontinence is not way for any man to live.  My AUS 800 isn't a perfect solution.  There are certain positions, activies that will pressure the AUS to allow leakage at time.  Example for me:   bike riding- I will always have to change underwear after a 5- 10 mile bike run- even a short ride I will leak.  Just getting on my bike will almost always give me a little squirt of urine- but I am workig on  how I sit on the bike- helps some.  And when I backpack sitting on the ground seems to at times trigger some leakage.

 

But life with the AUS is a 100 times better than 8- 12 pads a day, leakage arund the pads, wet pants at times, etc, etc.  A good doctor whto has done many AUS surgeries at a good hospital should do just fine for your dad.  And even if the AUS doesn't take which happens sometimes- its well wortht he try.

 

 

skoehler123
Posts: 5
Joined: Feb 2013

Trew:

 

How long ago did you have the impant?  

 

My father in law does some biking and is active on a farm too -- tractors, mowers, etc.  So, I imagine he will have a similar experience as you.  I agree, that sure seems way better than the pads.

 

On a related note, I am a road bicyclist and wondered if you've ever considered riding a recumbent  or one of the fast trikes they make these days.  In both, you'd sit with much less pressure directly downward.  I have a CaTrike brand that I purchased due to lower back issues.  So, I know from sitting in that, there is much less pressure vs a road bike.  Just a thought.

 

I appreciate you comments above too.  Take care.

Trew
Posts: 891
Joined: Jan 2010

My AUS was installed at the U of MI hospital on Aug 23, 2011.  So this August will be my  2 yr anniversay.  First real positive after that nasty PSA test that started all the trouble.

I should look into a recumbent bike but I enjoy off road biking a lot.  You are the 2nd person to recommend one. maybe that is what I need, or at least take a look at one.

If your father would be interested in talking to me on the phone about the AUS I would do that. 

-Trew

 

 

 

 

Trew
Posts: 891
Joined: Jan 2010

My AUS was installed at the U of MI hospital on Aug 23, 2011.  So this August will be my  2 yr anniversay.  First real positive after that nasty PSA test that started all the trouble.

I should look into a recumbent bike but I enjoy off road biking a lot.  You are the 2nd person to recommend one. maybe that is what I need, or at least take a look at one.

If your father would be interested in talking to me on the phone about the AUS I would do that. 

-Trew

 

 

 

 

skoehler123
Posts: 5
Joined: Feb 2013

Trew:

Thanks again for the update / info.  I understand about the off-roading stuff...fun.  However, my lower back can't take much of that, although the Minnesota pot holes can be a "road" challenge!

I think he would like to talk to you.  I live in Minneapolis and he's in rural IA.  They have limited dial-up internet, so can be frustrating for them doing a lot of online research.  If the offer to talk via phone is still open, that would be great.

Take care and I appreciate you following up.

Scott

Trew
Posts: 891
Joined: Jan 2010

I sent you a private message with my phone number.  Your dad can call me if he wants.  I can discuss the AUS with him.

For me, the incontinence was so inconvienent and embrassing I would have settled for almost any option.  I guess some men are more accepting of the condition than others.  I just know I had pretty much reached my tolerance level and incontinence was making life so miserable for me I wanted a way out.  I looked at the AUS surgery joyfully as a way out of a terrible place in my life.  I have always been pretty active and incontinence was making me into an armchair recluse and I hated evey minute of it, I hated every pad, every wet spot on my pants from leakage, the problem with bed wetting.....  I was starting to even hate life.  I needed a change.  for me I think the AUS was a life saver.  Really.  I do not think I would have lived with that condition indefinitely.

 

 

 

 

skoehler123
Posts: 5
Joined: Feb 2013

I received your private message with a phone number.  My FIL has that information...he's processing everything I've sent to him.  I sure hope he calls you.

 

I can't even imagine what you've gone through.  I am glad the surgery has given your life back.

 

Thanks for the information.

Greg Maze
Posts: 2
Joined: Jul 2015

Greetings Trew:

Just joined the web site today.  I had my prostate removed over 4 years ago by DaVinci.  I'm another unlucky person as I still battle incontinence big time. I can easily go through 3 Depends diapers in a day and I mean soaked.  I'm over it.  I live in SW Fla and really don't want a Dr. here performing my surgery.  I noticied you went to U of M to have yours done?  I'm actually from Mich and know that U of M is a great medical school.  Can you give me the name of the Dr. that performed your surgery.  I would like to do some home work and ask him some questions?

Thanks,

ob66
Posts: 225
Joined: Apr 2010

What he sez is right on. Hard chairs, and bike seats can activate the AUS, but it is NOTHING compared to incontinence.

Trew
Posts: 891
Joined: Jan 2010

Ob66 and those of of us who have the AUS installed probably all have anxiety issues about the AUS surgery but looking back the surgery wasn't nearly as bad as anticipated and the freedom from incontinence on this side of the surgery was well worth the surgery.

 

And like my wife says,  women have babies....

 

No need to share the rest but it had something to do with pain, exposure, etc.

Trew
Posts: 891
Joined: Jan 2010

Somehow I made a double post.

 

 

 

 

PPdoc
Posts: 2
Joined: Mar 2013

The main question is how incontinent is he.  Consider discussing a Virtue male sling with your doctor as a first step before an AUS.

The virtue Male sling can be very effective. In patients with 1-3 pads per day (PPd) full continence can be achieved. In those patient with more than 3 ppd, "social continence" can be achieved. Best of all you dont burn any bridges. The AUS can still be implanted if significant incontinence persists.  In those cases that require an AUS after a Virtue male sling I do a penoscrotal approach and often times will place a penile prosthesis at the same time. 

He is 63 years old, I am sure he would like to regain his sexual function as well.  If he decides to have the AUS consider having a double implant (AUS and penile prosthesis) at the same time. The recovery from each procedure can be brutal with significant amount of pain and discomfort for the first 3 weeks. By having a double implant it will spare him a sinificant amount of discomfort and pain since he will be recovering from both procedures at the same time.

Hope this helps. 

PPdoc
Posts: 2
Joined: Mar 2013

The main question is how incontinent is he. Consider discussing a Virtue male sling with your doctor as a first step before an AUS.

The virtue Male sling can be very effective. In patients with 1-3 pads per day (PPd) full continence can be achieved. In those patient with more than 3 ppd, "social continence" can be achieved. Best of all you dont burn any bridges. The AUS can still be implanted if significant incontinence persists. In those cases that require an AUS after a Virtue male sling I do a penoscrotal approach and often times will place a penile prosthesis at the same time.

He is 63 years old, I am sure he would like to regain his sexual function as well. If he decides to have the AUS consider having a double implant (AUS and penile prosthesis) at the same time. The recovery from each procedure can be brutal with significant amount of pain and discomfort for the first 3 weeks. By having a double implant it will spare him a sinificant amount of discomfort and pain since he will be recovering from both procedures at the same time.

http://www.hindawi.com/journals/au/2011/178312/

Hope this helps

yankeefan
Posts: 69
Joined: Mar 2013

I'm sorry, but how does impotence relate to incontinence? It seems you think they go together, do they?

LeRoy W
Posts: 3
Joined: Mar 2013

I was scheduled to have the AMS800 implant surgery on Feb 25, 2013.  On Feb 15, 2013 I was called that the implant was on recall, and surgery was cancelled .    There was a pump problem.  Does anybody know anything about the recall or how long it may be before it is available.  I can't  get through to the company, they don't reply.

Trew
Posts: 891
Joined: Jan 2010

Interesting.  I had to wait 1 yr before my doc would do my AUS.  She was heavy into scar control.  During that time the AUS was put on hold while some problem was worked out.  The device went off recall just a month or so before my 1 yr was up and I was scheduled for surgery.  The doctor who did my surgery told me she had never seen a problem with the device.

So good men with a serious problem were put on hold while more testing was done.  If the device is on recall and they want mine back they will have to take it by force. 

 

JUMBO JIMBO
Posts: 2
Joined: Aug 2012

TREW -

 

I AM SERIOUSLY CONSIDERING THE AMS 800 UCS.  IS THIS THE MODEL YOU HAVE?  I HAVE SEEN YOUR COMMENTS NUMEROUS TIMES ON THIS WEBSITE AND YOU SEEM VERY SATISFIED WITH YOURS.  NOW I SEE THAT IT IS RECALLED?  DO YOU KNOW ANYTHING FURTHER ABOUT THIS?  I HAVE BEEN INCONTINENT FOR APP. 1 1/2 YEARS( FOLLOWING PROSTATECTOMY) - USING APP. 6 PADS PER DAY.  I'M LOOKING FOR EXPERIENCES (GOOD AND BAD) FROM PEOPLE WHO HAVE HAD THE IMPLANT AND WOULD APPRECIATE ANY FEEDBACK YOU CAN PROVIDE.

 

THANKS

JUMBO JIMBO 

ob66
Posts: 225
Joined: Apr 2010

     Jumbo Jimbo.....Have had my AMS800 for 2 years, 11 months and it is wonderful....No complaints, no problems, biggest worry is that someday it may wear out from use.....Now, I have read about the recalls, and I think you need to do your research here, but all I can tell you is that my experience has been nothing short of wonderful....Find out how real the recall is, and if you are not convinced it is a definite problem, go ahead with it.....I remember couselling Trew, prior to his going through same, and all you need to do is read the threads of his malaise prior to having same done....He seems a new person, far from the depressed wretch he was before the AMS surgery.....The surgery is no fun, but time cures all wounds, and you will be so thankful....Obviously I have had no "recallable" problems, so I really can't speak to that....Best of luck.....One and a half years of incontinence is a sentence from hell in itself....

dogbone1953's picture
dogbone1953
Posts: 1
Joined: Apr 2013

I am new here as you can see from my posting but I have been reading alot of your post. I had robotic surgery in 2009 for prostate cancer. It had escaped the capsule and so I had radiation in 2010. Have been incontinate from the start after surgery, 4 - 5 pads a day. In 2012 had the male sling installed, 3 months to the day they removed the male sling, Rubbing the bladder causing an infection. Now I am totaly incontenate, wear tenna underware, and tryed pads with that, changing every 2 hours. I am a pipefitter at work and this was not working out being wet all he time and welding really don't go together, I am sure you get the picture. I now use an extrenal cathadure and collection bag to make it thru the day. This has been working well for me but still not free. I want to be dry, panty liner dry would be great. I have been back to my dr.  and I plan on have the AUS insalled on june 12 20013. I just had scar tissue removed and was dialated three weeks ago. All looks good to go now, But would like some feed back from users that have the AUS and how life has changed for you. I am starting to become a hermit and I love the outdoors. I am willing to give up my bike if that is what it takes to be dry, and even my motorcycle if that is what it takes. Any info on what I can expect after surgery would be great. Thanks guys and my bashfullnes when out with the first surgery so don't hold back. Sorry about the spelling. Thanks again for your time,

Paul

LeRoy W
Posts: 3
Joined: Mar 2013

I was notified by my Dr. office the device was recalled.  That was Feb 15, 2013.  At the beginning of April,  I called the company,  American Medical Systems, Mn,  and they  said the pump  was repaired/redesigned and now  needed approval from the Food and Drug Administration before they will be available again.   They have no idea when that will happen.

LeRoy W
Posts: 3
Joined: Mar 2013

The Recall of the AMS 800 implant is over.  The implant is now available.  It had been off the market for about 3 months.

bamaboy101
Posts: 1
Joined: Mar 2016

I just had the AMS 800 installed by Dr Arthur Burnett at Johns Hopkins in Baltimore, MD on 2/2/2016.  So far, it has been great for me.  I do have a very light leakage...only a few drops, and I had one time where I accidentally activated the device by sitting across a ridge.  You do have to be conscious about how you sit, etc.  I am 63 years old, had a prostatectomy in Sep 2012.  Many complications...urinary stricture surgery, incontinence (6 pads/day) which led to the AMS 800.  I am happy with the results so far...some other issues, but little by little.  I was a little surprised by the overall cost of the procedure.  I have good private insurance...typically pays 80-85%.  Just received a $24,000 bill from Johns Hopkins, Dr was another $3k and anesthesia another $2k or so.  So far my part has run around $5k out of pocket.

Josephg
Posts: 104
Joined: Jan 2013

Yes, you need to be aware of how you sit and on what you sit on.  Remember where the cuff on the urethra is located (that nasty incision behind your scrotum).

If where/how you sit creates a pressure point in that area, it can compress the cuff and cause some minor leakage.

Hope that this helps.

hap4174
Posts: 5
Joined: Apr 2016

I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800

since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my bladder. then the swelling began big time and much pain. I was so looking forward to relief but so far it hasn't happened.

Has anyone had any similiar problems.

tpelle
Posts: 178
Joined: Aug 2003

Hap:  Probably the swelling is causing the weak stream.  There is a lot of pain during the first couple of weeks, but it improves gradually.  Be sure you take the pain meds as prescribed.  There won't be any relief from the leakage until the unit is turned on.  For me that was at about the 7th week post surgery.  In the meantime you will still have to deal with leakage but it shouldn't be any more than you experienced before the surgery.  The pain should mostly be gone by the time the unit is activated.  That's been my experience.  tpelle

hap4174
Posts: 5
Joined: Apr 2016

tpelle, thanks for your reply. I think you are right on about the swelling causing the weak stream as the problem has improved as the swelling improved. My doctor didn't warn me about what to expect after surgery so I was very concerned, his reply was oh I've seen much worse which wasn't all that comforting but now that I know I am dealing with it as best I can thanks to a wonderful wife who has been very supportive.

    When did you have the procedure..have you been satisfied with it?

     Hap

tpelle
Posts: 178
Joined: Aug 2003

Hello Hap:  My open radical prostatectomy was in 2003.  During the first ten years I was averaging 2.3 Depends pads per day.  At the end of the ten years I had the AMS 800 implanted.  As like you the biggest concern during the recovery period was not knowing what to expect.  However, several of the guys on this site were most helpful.  After activation, the unit worked beautifully for about 17 months, then failed, and I was back on 2.3 pads per day.  After a month or so I returned to the U.S.Med, Davis Urology Department for help.  The balloon had lost it's charge and the cuff was not closing.  Fifteen months ago the first unit was taken out and replaced.  The doctor discovered that the first balloon had a pin-sized leak and had lost it's fluid.  The new AMS800 has been functioning perfectly for the past thirteen months.  Although the second surgery was more extensive (removing the old and implanting the new), it seemed easier because I knew what to expect.  In a couple months when your AMS 800 is working, you'll feel that the post surgery trauma was worth not having to use pads.  Although, I still do wear a liner as from time to time there is a drip or two when I sit on an irregular surface.  Hope this helps.  I'll respond if you have further questions.  tpelle

hap4174
Posts: 5
Joined: Apr 2016

Hi Tpelle, my aus was activated on May 17 and the device is amazing. I stay completely dry all day and night. Like you I wear a liner which I could get by without.

I wanted to thank you for previous replies..they were very helpful. I still have one problem..The device appears to be causing me some pain and can be very uncomfortable especially if I am on my feet very long. Did you experience this at all? I noticed in your last post your surgery was in 2003. That ws the same year I had mine..April 3 @ 9:00 am to be exact. It is definitely a life changer. It has been more severe for me due to a condition called diabetes Insipidious.  It causes excess urination which complicates an already bad situation.

Thanks again  for your help

Hap

tpelle
Posts: 178
Joined: Aug 2003

Hello Hap.  It's good hearing that you have made substantial progress from those first few days following your AUS800 implant.  Those early days can be trying. My prostatectomy was on the first Thursday of 2003.  Was in the hospital for two nights.

I do have some pain in the cuff area by bedtime but it seems no worse after I'm on my feet working in the garden for six hours.   Here is my explanation -

The cuff on my first AUS800 implant in January 2013 was far back on the urethra nearer the anus - probably the recommended position.  That caused some irritation and minor pain when sitting as tubing somehow located under the cuff and close to the surface.  Surgeon prescribed daily 100 mg of Amitryptline (a anti-depressant med) to relieve the pain.  It work well.  On the second AUS800 implant in February of 2015 a different surgeon (the first retired) placed the cuff on the urethra nearer the scrotum to avoid any overlaping of the tubing.  It did, but having the cuff nearer the testicles causes chaffing and some pain in the scrotum by bedtime.  So I am continuing the Amitryptline.  This minor irritation and pain is a small price to pay for urinary continence.

I'll be happy if this second implant continues to function for a few more years.  

tpelle

 

dga5151
Posts: 3
Joined: Mar 2017

tpelle,

i had AUS800 implant at Mayo 6 weeks ago. It's being activated this week. I continue to experience pain, especially in late afternoon and evening. As you describe it is more like irritation, or chaffing. Has your pain improved, or is it something you just learn to live with? I'm hoping it'll improve.

dga5151

tpelle
Posts: 178
Joined: Aug 2003

dga:  After both my first implant in January 2013 and later my replacement AUS800 implant in January 2015 I had continuing pain/irritation in the scrotum. The 100 mg/da Amitriptyline, later changed to 75 Nortriptyline were prescribed helped but did not eliminate the pain.  Finally about 20 months after the second surgery (last fall) I noticed the pain was gone. When I saw the surgeon three weeks ago I told her the pain had subsided several months ago and asked if I should stop the med.  She said not yet -- that it's probably the medication finally working.  Further, she said that at some point later on I can wean off the Nortriptyline to see if the pain returns.  I hope this helps.  tpelle

 

dga5151
Posts: 3
Joined: Mar 2017

Thanks very much, tpelle. I'm at Mayo and saw doctor yesterday. Pain seems to be subsiding in the past 10 days, but not gone. He suggests OTC pain meds and believes it's still healing. But device was activated yesterday and seems to be working great. A little clumsy, but I'm sure I'll get used to it...I hope.

tpelle
Posts: 178
Joined: Aug 2003

dga - you will be an old "hand" in the new process of peeing in a matter of days!  At first, I occasionally stood at the toilet waiting for the flow, forgetting to turn on the faucet.  Good luck.  tpelle

dga5151
Posts: 3
Joined: Mar 2017

tpelle,

You were absolutely correct! Being 5 months post-op, I couldn't be happier with my AUS800. What a relief. Thanks so much for your counsel.

-dga

hap4174
Posts: 5
Joined: Apr 2016

I am so enjoying not carrying a pad in every pocket when I am out that the pain is minor. I have been thinking that the pump assembly inside  the scrotum has been my problem but the area around the cuff is very tender also so that coulld be very well be my problem also since pain is sometimes hard to pin point. My doctor tells me to give it time..maybe he is right.

   Thanks again for your help. Hope your garden does well.

Hap 

adwhiz
Posts: 8
Joined: Apr 2017

Nearly 2 years ago I had robotic surgery to remove my prostate. Following surgery I have had nearly continual incontinence and on average I've gone through 4-5 depends during the day and 1 or 2 in the evening. I read a comment on here where another individual with serious incontinence said it was the worst thing in his life and he hated every single pad, every leak and every moment he wasn't able to live a normal life. I know what he means. I detest this leakage; I have done all of the exercises and all of the other recommendations to no avail. I met with both my urologist and oncologist last week and both of them enthusiastically recommended the AUS 800 procedure. So, fellow sufferers I am heading into surgery on April 20th for the procedure. I have read everything pro and con, and at the end of the day I can't spend another year with endless depends on hand, and not a shred of normalcy. I sure hope I'll be as happy as many of you are who have done this procedure. I'll check back in following the surgery and share my thoughts going forward.

RobLee's picture
RobLee
Posts: 72
Joined: Feb 2017

Good luck! I hope everything goes well for you. I'll be right behind you... mine goes in May 22nd

adwhiz
Posts: 8
Joined: Apr 2017

 I appreciate your encouragement and I'll surely post an update following the procedure. I'm in for preop testing this morning and my anxiety meter is rising rapidly. 

adwhiz
Posts: 8
Joined: Apr 2017

Good morning --

So, you're a few days away from your big day. It'll be a challenge in the beginning and as many on here have noted it's going to take time to adjust to it all. Mine has been in for several weeks (June 5th is the magic activation day) and it's still hard to believe all of that equipment is inside me. Occasionally I feel a little pain but nothing to be concerned about. I've spent a fair amount of time fumbling around trying to imagine how it will work and all --

I really do wish you the very best in your own experience. Do let us all know how it works for you.

Cheers,

 

RobLee's picture
RobLee
Posts: 72
Joined: Feb 2017

Thanks for the well wishes!  The surgery was actually this past Monday, May 15th. I moved it up a week so it could be activated before the July 4th holiday. Coincidentally, it was July 5th last year that I received my cancer diagnosis by phone following the biopsy at the end of June.

Medically I think everything went okay. My scrotum is the color of an eggplant and everything is swollen but is not painful. I think that's to be expected. But the day of surgery was quite unpleasant. There were complications. It was not the quick procedure I had been led to believe it would be. I have been reluctant to post this because I don't want to discourage anyone else who may be considering having this device implanted. But what happened could have happened to anyone having anything done, and it was not specifically related to the AMS800. Sometimes we beat the odds and sometimes the odds beat us.

So now you're about halfway to your activation date, and it soulds like everything is going well for you. I am looking forward to eventually joining you "on the dry side"... And thanks again for thinking of me!

tpelle
Posts: 178
Joined: Aug 2003

adwhiz:  Please do check back and give us and those who may follow you an indication of your progress.  During the few days after April 20th you may be thinking why, oh why did I have this surgery. I did. Your testicles may be colorful and swollen, and you will have to deal with the dreaded catheter for a week or so. After removal of the catheter, as time approaches the activation date, the swelling and pain will have diminished greatly. All of the pain may not be gone by then, but your mind will be on learning the process of using the AMS800 pump --  stroking the pump two times or more to allow for a strong urine flow, yet not so many strokes that you have to wait at the toilet for for the balloon to fill the cuff and cut off any further flow.  In my case, one strong stroke of the pump and one short stroke is best for me.  Soon after activation you should be very happy with your decision to go with the AMS800.  tpelle

adwhiz
Posts: 8
Joined: Apr 2017

Well, I am 48 hours away from my surgery. There have been times in the last week that I thought of cancelling this; that I could manage the incontinence, and that it would magically return to normal. Then I realize I am standing in line at Costco to purchase yet another huge box of depends (72 in a box.) That brings this all back into perspective and reminds me once again that I truly detest every part of the incontinence and I'll be so happy when the procedure is complete. I'm frightened (heck, I am scared!) but I'm hopeful of a successful placement and return to a life without pads, social limitations and unhappiness.

RobLee's picture
RobLee
Posts: 72
Joined: Feb 2017

Well said. Mine is just four weeks away and I keep having the same thoughts. Scared. God I'm so scared. This is unlike any other surgery I've had before (and that's been about a dozen). The pain and swelling are to be expected. It's the strong possibility that the unit might fail, or require revision surgery to adjust size and placement, or perhaps just not be good enough to stop the leakage and still require a pad. I've met so many guys with that. Then there's the inevitable tissue erosion. I'm sure you've researched all of this yourself. None of us go into this lightly.

But it's got to better than what you (we) are going through now. So I wish you the best of luck, both on Thursday and in the six weeks or so to follow. Here's hoping for 100% success!

Josephg
Posts: 104
Joined: Jan 2013

Hopefully, you looked at my postings on my experiences with the surgery and recovery.

I would do it again in a heartbeat, if needed.

It is a game changer, and it will give you your normal life style back.  YOU will again be in control, again.

Good luck!!!

adwhiz
Posts: 8
Joined: Apr 2017

Good morning, all --

Well, it's a done deal. I had the implant placed yesterday and from all indications everything went well. I have pain in the area, primarily around the stiches and it's difficult to get up from a chair. I talked to my doctor at length this morning before leaving the hospital and yes, there are pitfalls and concerns about the device. However, on average he said with care and proper procedures it's good for something around 10 years before any replacement. I can live with that. I've got 6 weeks ahead of me until it's activated so I'll check back in as I progress. Thanks for all of the encouragement, my friends. I do appreciate it.

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RobLee
Posts: 72
Joined: Feb 2017

Congratulations, and happy healing :)

Hoping to be joining you soon "on the other side"

adwhiz
Posts: 8
Joined: Apr 2017

After spending the night in the hospital on the most uncomfortable bed in the world I was released yesterday morning. The pain comes and goes and I do have some medication if needed. When I was first able to urinate after coming home, I discovered two things: one, it was incredibly hard to aim the stream, and two, the stream is very weak. Writing the word stream is a misnomer - it's more like a spray at the beginning. I did read of another post where the person felt the swelling caused the weak stream, so I'll see how it goes over the weekend before hitting the panic button. All in all, I feel pretty good with the exception of serious pain when I try to get up from sitting on my couch. Ah well, I have images of some normalcy on the near horizon so it's all worth while.

adwhiz
Posts: 8
Joined: Apr 2017

Today my friendly urologist activated my implant. I am so hopeful that this will be the solution to my endless (and awful) incontinence. I have mixed emotions at this point, and I suppose after two years of continual incontinence I'm just skeptical that this will really work. Believe me, I am ready and willing to go ahead with the new equipment and learn the best practices to use the implant as rapidly as is possible. In the meantime, I will keep everyone informed as to my progress.

RobLee's picture
RobLee
Posts: 72
Joined: Feb 2017

Good luck with your new equipment Adwiz!  I don't remember if I had posted it here, but my implant surgery of three weeks ago had to be revised in emergency surgery last Tuesday, after having Foley catheters for the two weeks between.  It did push my activation back to mid July. Of course I went into this knowing that there is a high rate of revisions, so it was not a complete surprise. Hopefully everything with yours went without a hitch.

adwhiz
Posts: 8
Joined: Apr 2017

Hi again --

I'm sorry to hear of your difficulties and I know you'll be looking forward to the activation. Mine was activated on Monday and so far so good. After nearly 2 years of steady incontinence and endless Depends pads it's quite amazing to go through the day (and night) with no leakage. I'm certainly not the first and won't be last to say this however I'd do it again in a heartbeat. I'm confident you'll feel the same way, soon.

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