Jan 26, 2013 - 12:58 pm
Hi, all. I had my first scan last week (PET) and I am more or less NED. I have a large rectal tumor (ouch), four decent sized mets to the liver, and four tic tac sized mets on the lungs. Affected lymph nodes as well. Had 12 hits of Folfox and Avastin and during last week's scan nothing lit up on the PET. I'm relieved, but dont feel that I am out of the woods yet. My Onc thinks some of the junk might be dormant - maybe the chemo shocked it into dormancy -, so I'm in the process of going to a more comprehensive facility for further treatment, probably Anderson. I"d like to have surgery to remove the primary tumor and anything else they can scoop out.
I didn't have a terrible time with the chemo. Got really tired, and now have some lingering neuropathy in my hands and feet. My fingertips feel like they've been frozen and dipped in wax - no pain but it's a different sensation. My feet are ok but they're tingly and I'll get these odd pulses. I can still walk normally, and the only thing I have difficulty with is putting on and taking off earrings (earring backs.) I get odd abdominal pains still and I can feel the rectal tumor (feels like a golf ball) or maybe it's a calcified remnant (no idea at this point), but am chugging along step by step and will pursue the next phase.
So. That's where I'm at. I hope for the best. You never know with our disease, however I've been alive seven or so months since diagnosis, and for that I am very thankful! I like this discussion board because people share their treatment regimens and experiences which makes me feel not quite so alone in all of this.