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Doc_Hawk's picture
Posts: 685
Joined: Jan 2012

Over the past couple of months, my CEA has been on a steady incline. This week, it's almost doubled again jumping from 939 all the way up to 1739. Me and the onc have been arguing with the insurance company to get a PET scan done like right freaking NOW. The onc's office says they keep getting denials and the insurance company says they haven't had any requests for a scan. I'm hoping to conference call on Monday and find out who is lying (my money is on the insurance company: it's their job to deny claims.)''

I've been sleeping almost all the time since I got home from chemo on Thursday evening (yeah, I slept right through the Mayan Apocalypse) partly from the fatigue and I'm sure there's some depression affecting me also. I was hoping that after three treatments of Zaltrap that I'd be showing some kind of progress instead of steadily increasing set back.

Lovekitties's picture
Posts: 3360
Joined: Jan 2010

I am so very sorry to hear that your CEA continues to rise and also about the insurance woes.

You may want to contact Patient Advocate. They offer assistance in getting things done for patients including dealing with insurance companies. See their site:


Also you might want to tell the insurance company that you plan to contact your state insurance commisioner about the situation.

State Insurance Commissioners Office
Utah Department of Insurance
3110 State Office Building
Salt Lake City, UT 84114-1201
Main Phone: 1-801-538-3800
Fax: 1-801-538-3829

Use any and all means to get that PET scan done soonest.


Miss Kitty

barbebarb's picture
Posts: 464
Joined: Oct 2011

Sorry to hear your cease has risen.
Hoping you will get the pet scan you need very soon ànd get all this worked out.
Thinking of you - Barb

Doc_Hawk's picture
Posts: 685
Joined: Jan 2012

Thank you all for the good thoughts and prayers. As I start to get more awake after this last bout of chemo, I find that my attitude is getting better. Hopefully this fatigue will pass tomorrow and I'll strap on the weapons and get back into the fight.

Hugs to you all!


Varmint5's picture
Posts: 384
Joined: Feb 2012

I hate to hear this, Doc. Hope you get that PET scan soon and find out what's going on and get a plan to get things under control again. I think you have a good attitude all the time, considering all you've been dealt with this disease. Hope you are feeling better today and have a good Christmas.


barbebarb's picture
Posts: 464
Joined: Oct 2011

Sorry to hear your cease has risen.
Hoping you will get the pet scan you need very soon ànd get all this worked out.
Thinking of you - Barb

Posts: 1170
Joined: Sep 2012

Sorry you have to deal with the insurance stuff while your not feeling well. Hope you get your scan soon.


JayhawkDan's picture
Posts: 206
Joined: Apr 2012

it's time for a turnaround in your fortunes. Hope somebody gets their sh!t together and you get that PET scan ASAP. Maybe Santa Claus can bring you one. Try and put this crap out of your mind (yeah, like I know that's easy) and enjoy the Holidays. Hugs, Dan

Momof2plusteentwins's picture
Posts: 508
Joined: May 2012

I had a PET last week, originally my ins co refused and my onc called and it was approved. I can't imagine them refusing with your CEA climbing. I would be so pissed. I wonder if it really wasn't ordered by error. Things get missed all the time. Best of luck Doc. Bad enough fighting cancer then fighting MDs and ins co.

dmj101's picture
Posts: 527
Joined: Nov 2011

wow.. I was turned down too by insurance in nov, but doc called and they approved..
I think its a game they play, especially at the end of the year for some reason as I only in Nov and Dec have a I experienced stuff not getting approved. Maybe it cuts into their profits. I don't know.
Well I am sorry you are getting depressed but it seems to be a normal response to stuff like this.. I know i find depression comes much easier lately. I know we try to resist bu sometimes it is best to give in.. it is the bodies way of protecting us I think..
Well hang in there buddy, I am sure you will get this straightened out..
thinking of you and sending you peace....

annalexandria's picture
Posts: 2573
Joined: Oct 2011

makes me wonder if this is one of those "flares" that they talk about, which occur when a lot of cancer cells die off at once. I hope they can get you that PET soon, so that you can get confirmation of what's going on. So tough to have to go through this, especially at the holidays. Way too stressful. Sending hugs and hope your way~Ann

herdizziness's picture
Posts: 3642
Joined: Apr 2010

Hope your CEA rising ends soon, and that a CT or PT scan comes soon!!!!
Winter Marie

Annabelle41415's picture
Posts: 6692
Joined: Feb 2009

Sorry to hear of it rising but hope it's due to killing off cells. It's got to be so frustrating dealing with insurance companies. Hoping that you, doc, and insurance can clear things up and get things moving to get better picture of things. Wishing you the best.


Posts: 1278
Joined: Apr 2012

I want to cry every time I learn of Financial troubles. Like you need something and the insurance doesn't want to pay for it. My total bills have run over $500,000 and all of it was covered by medicare or my supplement. Paying $290 a month premiums for the supplement seems like a lot, but it has proved to be a real bargain. Hope you can get them to cover you as they should!!!

PhillieG's picture
Posts: 4912
Joined: May 2005

The last thing you need is insurance crap.
I hope the CEA is due to the chemo working...

k44454445's picture
Posts: 494
Joined: Jul 2012

not fair what you have to go thru. i hope this gets straightened out monday & you get the scans you need. talk about STRESS!!!

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