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Nongerminomatous germ cell tumor

quaival
quaival CSN Member Posts: 1
in Brain Cancer #1
My son was diagnosed with a NGGCT of the pineal gland in 2009, he was 13. Happy to share stories if anyone else has had similar. I cannot find anyone in Australia who has had it.
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  • kbernie201
    kbernie201 CSN Member Posts: 1
    #2
    Wow! You're the first one
    Wow! You're the first one that I've found that has a son with NGGCT! My son is continuing treatment right now. He was diagnosed in June of this year and started chemotherapy right after his surgery for a shunt. My son is seven years old. I see that your son was diagnosed three years ago. How is he doing?
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  • rstowe
    rstowe CSN Member Posts: 1
    #3
    kbernie201 said:

    Wow! You're the first one
    Wow! You're the first one that I've found that has a son with NGGCT! My son is continuing treatment right now. He was diagnosed in June of this year and started chemotherapy right after his surgery for a shunt. My son is seven years old. I see that your son was diagnosed three years ago. How is he doing?

    How is your son now?

    How is your son now?

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  • Indrie
    Indrie CSN Member Posts: 2
    edited January 2018 #4
    kbernie201 said:

    Wow! You're the first one
    Wow! You're the first one that I've found that has a son with NGGCT! My son is continuing treatment right now. He was diagnosed in June of this year and started chemotherapy right after his surgery for a shunt. My son is seven years old. I see that your son was diagnosed three years ago. How is he doing?

    Hello

    Hi there, my son diagnosed same as ur son 5yrs ago when he was 8. He is now 13. Tumor has grown. back in 2012 he only went for 4 chemo cycles and we refused other treatments and seek alternatives but still going for Mri n blood tests. Hows ur son doing? We r still not keen in surgery.

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