Oct 29, 2012 - 10:58 am
Last scan at the end of cycle 5 trial drug TRC105 shows stable for the most part, a little shrinkage in the biggest liver tumor.
Stable is good, more shrinkage would be better, however, we will take it.
Our concern at the moment is in Robert's port...been trouble-free since day one. With the avastin and trial drug (works like avastin, except in a differnt way) the skin where they access the port is eroding, won't heal. It's gotten so bad that they are using an arm for his infusion... You can SEE the port, and I don't know if there is anything anyone can do for it. Re-placement would involve coming off treatment for 6 weeks.
Can infusions be done long term accessing veins directly???
The trial doc agreed (finally) that the port issue needs to be addressed. Ya think? No details yet, but no more Avastin until after they R&R (remove and replace). Or just remove.
Robert was officially off the trial at the end of eight weeks. I don't know what his treatment will be as I've gotten the impression that the trial drug won't be as effective without the Avastin.
We see his original onc tomorrow to bring him up to speed on the latest scan and get his views on this port issue and the risks of reduced treatments and maybe some other options.