Oct 24, 2012 - 10:30 pm
Hi, my name is Jan. My husband has been diagnosed with mRCC . He had a left radical nephrectomy on 9/24 and He has mets to his lungs - evidently it is all over his lungs with one nodule in the lining of the lung. He's been doing great since and even went back to work full time last week - only two weeks after surgery. He's very upbeat, positive and strong.
So, we've been offered 2 treatments. IL-2 and Sutent with a trial of Sutent and another similar drug alternating to determine side effects. AFter researching, he has decided to try IL-2. He's in very good physical condition and assuming the stress test and pulmonary function tests are normal, will start the end of November.
This is the rub...my husband and I both lost a spouse to cancer. We have both said we don't ever want to tolerate treatments that would give us a poor quality of life in exchange for a couple of extra months. Our doctor says that IL-2 is tough, but the side effects go away after a week and there is a possibility of a long term response. He also said that IL-2 isn't approved to be given after any other treatment. So, it's a one shot deal. If he doesn't do it first, he won't ever have the option to do it.
We are leaning toward IL-2, but are still concerned that it isn't the right direction because of the side effects.
Please let me know how you tolerated it, what tools you used to help you get through it and any other recommendations you might have.
As an aside, our doctor told us that the hospital administering the medication has to be a certified center - so, my husband will be going to a hospital that is certified. I've seen some posts from people who have gotten IL-2 as a second or third line drug with very poor results - and lots of side effects, and I wonder if the med was given in a certified center.
PS: i would love to hear from caregivers as well:-)