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dermatofibroidsarcoma of the vulva

Posts: 1
Joined: Oct 2012

Recently found out I have dermatofibroidsarcoma of the vulva. Anyone experienced this?

Posts: 133
Joined: Jun 2012

Hi, Im sorry to hear about your cancer. Is it DFSP that you have? If so I haven't come across any stories of it being on the vulva.
If you go back through the post that are below here you might find someone with similar. If it is DFSP I would expect the treatment would be the same as anywhere else on the body. Mine was under my breast and was removed completely wth Mohs surgery.
Good luck, I'll check in again soon to see if you read this.

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