Hematomachrosis

I husband has had hematomachrosis for several years. Last week was diagnosed with CLL. Doctor says the CLL wouldn't kill him except for the hematomachrosis which would kill him in a year or two without taking out the blood. He has to have blood taken out every couple months but with the CLL they can't do it. They plan to give him 3 days worth of chemo and hope that helps. Is there anyone else with this problem and how has it been for you?