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manwithnoname
manwithnoname CSN Member Posts: 402
in Colorectal Cancer #1
http://www.patientslikeme.com It's a bit like a forum but people compare and rate their treatments. Seems good for people self medicating or experimenting too.
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Comments

  • thxmiker
    thxmiker CSN Member Posts: 1,278 Member
    #2
    THanks! It looks
    THanks! It looks interesting. I will join and evaluate it also.

    Best Always, mike
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  • John23
    John23 CSN Member Posts: 2,121 Member
    #3
    Oh well:


    "How does PatientsLikeMe make money? We take the information
    patients like you share about your experience with the disease
    and sell it to our partners (i.e., companies that are developing
    or selling products to patients). These products may include
    drugs, devices, equipment, insurance, and medical services.

    Except for the restricted personal information you entered when
    registering for the site, you should expect that every piece of
    information you submit (even if it is not currently displayed)
    may be shared with our partners and any member of PatientsLikeMe,
    including other patients. We do not rent, sell or share
    personally identifiable information for marketing purposes or
    without explicit consent. Because we believe in transparency, we
    tell our members exactly what we do and do not do with their
    data.

    By selling this data and engaging our partners in conversations
    about patient needs, we're helping them better understand the
    real world medical value of their products so they can improve
    them. We are also helping companies accelerate the development of
    new solutions for patients.

    PatientsLikeMe is a for-profit company (with a
    not-just-for-profit attitude). Every partnership we develop must
    bring us closer to aligning patient and industry interests. Our
    end goal is improved patient care and quality of life. "

    From: http://www.patientslikeme.com/help/faq/Corporate#m_money

    There's no such thing as a "free ride", or even a "free lunch",
    and it's best to be -very- aware of that!

    Better health to all!

    John
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