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Matt29's picture
Posts: 62
Joined: Apr 2012

hey everybody i had my ct scan done on Thursday and they said that there is some residual scar tissue left and they are thinking that's all it is but will not know till i get pet scan done which will be Oct 24 i guess this is normally the case when your getting radiation i just wasn't sure if i need to be worried or not i'm trying not too and just think positive any help would be greatly appreciated.Thank You

Billie67's picture
Posts: 843
Joined: Jul 2012

Gosh I wish I could help you with this one. I get my first PET/CT post treatment in a couple of weeks. I do know this, my doctor scoped me yesterday and said that I'm still swollen but we need to schedule the scan anyway. We will give it a couple of weeks just to see if more swelling will go down but he said either way, the scans will show some activity because of the swelling. He says it's very common to see that in the first scans after treatment and that they have ways to determine good and bad "activity" he didn't mention anything to me about scar tissue but I'm sure when we go over it together he will tell me about every detail, he's very thorough that way. I guess what I'm saying is, try not to worry about anything right now because as I've heard from the dr and many people on here, false positives happen so much of the time on first scans post treatment. Sorry I couldn't help more.
Take care,

Posts: 660
Joined: Mar 2012

make it this far to not be NED so we will assume all is well especially since I have heard so many talk about hot spots or what ever decription they gave which created false or questionable reads. Kind of confuses me, I get my CT October 3rd, so if they get all these hot spots after 8 weeks why not wait 12 or 16 before the 1st scan, I sure there is a reason. So think positive thoughts, I know its easier said than done. I know I am already anxious about my first scan.

Hondo's picture
Posts: 6643
Joined: Apr 2009

I did a ct right after chemo treatment stopped, the ct came back fine but the PET showed a lot of hot spots. But the hot spots were just false positive reading that is why I always say the PET needs to be 4 to 6 months after your last treatment. So for now don’t worry about it just keep positive and make plans for the future.


CivilMatt's picture
Posts: 4302
Joined: May 2012

Hi Matt,

I went back and looked at my comments to you and your around 10 weeks post treatments, which from what I’ve heard maybe on the early side of 3 months, so hot spots can be detected. I think there is always going to be scar tissue left behind, isn’t there? That’s one reason they use the PET/CT scans to see what they can’t see by eye or scope (to see through the scars). You more than likely will have a clean and clear PET scan, but you will definitely have scanxiety.

Clean scans for Matt and forever!



hwt's picture
Posts: 2330
Joined: Jun 2012

I had a CT with contrast 10 weeks post tx. The ONC wanted it 12 weeks out but the surgeon moved it up to 10. I don't have my 1st PET scan til Oct. which is 5 months out from the end of tx. The one thing that I have heard consistently is that they delay scans because there is allot of gray area caused by the tx itself.
Prayers that all is good for you, I'm sure it is.

Tonsil Dad's picture
Tonsil Dad
Posts: 489
Joined: Dec 2011

I had my first PET at 12 weeks after treatment and I'm having a
CT scan with contrast in October.
Matt you shouldn't worry all will be well......have faith my friend.

God bless
Tonsil dad,


Tim6003's picture
Posts: 1511
Joined: Nov 2011

My first PET / CT scan was 3 months after tx....I got to see the scan on the screen from that scan vs. the screen on the scan from my staging PET/CT (the one they do to determine the tx) ...it was cool to see the difference, yet I showed a "hot spot" or "uptick in heat" in the area of my vocal cords. Like you the docs said it was most likely scar tissue / residual rad...but the written report did say "residual diseaase" could also be a possibility.

The next scan was a CT w/ contrast done 6 months out and at that time the doc said NED for sure.

I think it would maek you feel better to see the difference between your initial scan (the one before tx) and the most recent one ...even though mine showed a hot spot ...it was nothing comapred to when the cacner was first detected.

There's no way to make you not worry ....but if your tumor shrunk and your hot spots are not as hot as they were, then most likely you responded well to treatments and your on your weay to NED...and you got more detailed tx then I did and I am NED. I only got radiation and Erbitux...you got the kitchen sink thrown at you ...so you will do great!!



phrannie51's picture
Posts: 4672
Joined: Mar 2012

Matt...I haven't come this far yet. I get scoped every month by the ENT, but the only mention of a "scan" is the PET scan they want to do the end of November (3 months after my last treatment, which was Aug.28)....Nobody has said boo about a CT.

Now I'm wondering....am I missing out on anything? Did most of you guys get a CT before the first 90 day PET??


CivilMatt's picture
Posts: 4302
Joined: May 2012


I had a PET at 3 months. From what I read, a CT is good for determining size and shape of abnormal growth and PET can detect abnormalities in cellular activity early. I don’t know exactly which to use or why. We need Pat to explain this to us better.



Crazymom's picture
Posts: 339
Joined: Nov 2011

I went through the exact same thing. They did the CT Skan after my radiation. Lymph nodes were a little too large. Did PEt skan 6 weeks later and everything was fine. They think my lymph nodes have some scar tissue. Good luck. Ann

Skiffin16's picture
Posts: 8286
Joined: Sep 2009

Matt, it's very common on first scans to show signs of residual.

Looking forward to a clean scan upcoming.


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