Met to pelvis and adrenal gland

Vickilg
Vickilg Member Posts: 281 Member
in Colorectal Cancer #1
Does any one have experience with thus? Onc wants to see if chemo will rid of them instead of going straight to surgery.

Comments

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    #2
    Vicki
    Thinking of you today, did you have chemo? I did, not feeling real good, but not from chemo, I have runny nose and sore throat from my kids. They just started school and get sick. I usually get sick 2 days after chemo so I probably will feel worse. I don't have any experience with adrenal or peritoneal mets, but hopefully chemo can wipe that crap out. Hope you're feeling good.
    Sandy
  • steved
    steved Member Posts: 834 Member
    #3
    Met to pelvis
    This is what I am dealing with- it is for me sitting in muscle near the right lateral wall of the pelvis where the blood vessels and nerves leave to supply the leg. Mine seems controlled by chemo but not treatable with it (ie not curable) hence me looking at surgery. Srugical options for pelvic mets depend on the position of the tumour and all are quite radical- pelvic exenteration (clearing all pelvic organs) is the usual operation- so may not be a worthwhile option if there are other mets.

    No knowledge or experience with adrenal mets- are you getting symptoms from it or is it just showing up on a scan?

    That is the treatment plan for you and how are you doing generally?

    steve
  • Vickilg
    Vickilg Member Posts: 281 Member
    #4
    steved said:

    Met to pelvis
    This is what I am dealing with- it is for me sitting in muscle near the right lateral wall of the pelvis where the blood vessels and nerves leave to supply the leg. Mine seems controlled by chemo but not treatable with it (ie not curable) hence me looking at surgery. Srugical options for pelvic mets depend on the position of the tumour and all are quite radical- pelvic exenteration (clearing all pelvic organs) is the usual operation- so may not be a worthwhile option if there are other mets.

    No knowledge or experience with adrenal mets- are you getting symptoms from it or is it just showing up on a scan?

    That is the treatment plan for you and how are you doing generally?

    steve

    Onc said they are hot spots
    Onc said they are hot spots and to stay on current chemo plan to see what happens in 3 months and then take the step from there. He said hr has seen people go into remission and focus on chemo instead of surgery right now. I'm on Folori and Avastin. Just had second treatment.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #5
    Vickilg said:

    Onc said they are hot spots
    Onc said they are hot spots and to stay on current chemo plan to see what happens in 3 months and then take the step from there. He said hr has seen people go into remission and focus on chemo instead of surgery right now. I'm on Folori and Avastin. Just had second treatment.

    How long would you have to
    How long would you have to be off chemo. to have surgery?? Just thinking what would happen with the lung nodules while you were off chemo. for a time while waiting for surgery. I'm guessing you'd be back on the folfiri once surgery is done. Hopefully the current chemo you are on rids you of these.
  • Vickilg
    Vickilg Member Posts: 281 Member
    #6
    smokeyjoe said:

    How long would you have to
    How long would you have to be off chemo. to have surgery?? Just thinking what would happen with the lung nodules while you were off chemo. for a time while waiting for surgery. I'm guessing you'd be back on the folfiri once surgery is done. Hopefully the current chemo you are on rids you of these.

    SmokeyJoe
    I think the lung thing is the issue. ONC doesnt' want me off chemo and is hoping that it would clear out these two new hot spots on the pelvis and adrenal gland. My CEA drop 1 point from one chemo so God-willing he is going to show me some grace and make this work. How are you doing?
  • Vickilg
    Vickilg Member Posts: 281 Member
    #7
    Momof2plusteentwins said:

    Vicki
    Thinking of you today, did you have chemo? I did, not feeling real good, but not from chemo, I have runny nose and sore throat from my kids. They just started school and get sick. I usually get sick 2 days after chemo so I probably will feel worse. I don't have any experience with adrenal or peritoneal mets, but hopefully chemo can wipe that crap out. Hope you're feeling good.
    Sandy

    Sandy
    Sorry you are not feeling well. Could it be a side from the chemo? I had the chemo. Platelets still low but I was able to get it. Get some rest!

    Vicki
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #8
    Vickilg said:

    SmokeyJoe
    I think the lung thing is the issue. ONC doesnt' want me off chemo and is hoping that it would clear out these two new hot spots on the pelvis and adrenal gland. My CEA drop 1 point from one chemo so God-willing he is going to show me some grace and make this work. How are you doing?

    I'm on Xeloda, basically
    I'm on Xeloda, basically going fine, just some feelings of yuckieness, don't know how to describe it accurately, just some yuckieness from time to time. Been doing a lot and really busy so some fatigue but we've been on the go continuously lately. So, it's probably a combo of things. Have onc. appt. on Friday, the usual blood draw stuff....
  • steved
    steved Member Posts: 834 Member
    #9
    smokeyjoe said:

    I'm on Xeloda, basically
    I'm on Xeloda, basically going fine, just some feelings of yuckieness, don't know how to describe it accurately, just some yuckieness from time to time. Been doing a lot and really busy so some fatigue but we've been on the go continuously lately. So, it's probably a combo of things. Have onc. appt. on Friday, the usual blood draw stuff....

    Off chemo for surgery
    That is a key issue- you need to be off at least 6 weeks preop and if you were to have major pelvic surgery it is a couple of months post op (sometimes 3-4 if complications occur). Hence if they can hold it with chemo it seems the right way. The pelvic surgery is only usually considered worth it if it offers a chance of cure-so usually done in people without mets elsewhere.

    Hope you are coping all right with this- it always feels like one step forward and two back in this journey.I hope you are keeping okay and ensuring you are finding things to enjoy each day.

    steve
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #10
    steved said:

    Off chemo for surgery
    That is a key issue- you need to be off at least 6 weeks preop and if you were to have major pelvic surgery it is a couple of months post op (sometimes 3-4 if complications occur). Hence if they can hold it with chemo it seems the right way. The pelvic surgery is only usually considered worth it if it offers a chance of cure-so usually done in people without mets elsewhere.

    Hope you are coping all right with this- it always feels like one step forward and two back in this journey.I hope you are keeping okay and ensuring you are finding things to enjoy each day.

    steve

    Don't have experience on that but wish you the best Vicky !
    Praying for you.
  • tommycat
    tommycat Member Posts: 790 Member
    #11
    pepebcn said:

    Don't have experience on that but wish you the best Vicky !
    Praying for you.

    Ditto Pepe
    I don't have experience with that either but hoping only for the best for you.
    ~Tommycat

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