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Chewing the cud-from an older study

donna_lee's picture
Posts: 1018
Joined: Feb 2009

At the time of Dx in 2006, I assembled a volume of information about the new topic in my life-Kidney Cancer and surviving. Recently, I was purging some of it, and refiling monographs and items to retain. I came across an article co-authored by my urologic/oncologist/surgical specialist when he was at UCLA, "CA-A Cancer Journal for Clinicians", Vol. 46, No.5 September/October 1996.

In it, there was a quote from a Swedish study, published as "Proceedings of the Eleventh Scandinavian Transplantation Meeting." Malmo, January 30-31,1981, etc.
And this will blow your mind: my comments in ( ).
"Asymptomatic renal cell carcinoma may be incidentally diagnosed on routine physical exam or by adbominal imaging studies obtained for unrelated problems." (tell us something we haven't already figured out.) "Tumors identified by CT are often low stage and associated with an excellent prognosis. Careful postmortem studies have documented that a significant number of renal cell tumors are not diagnosed during life." (it's coming) " A study of 16,249 autopsies in Sweden revealed that 350 patients had renal cell carcinoma, 235 of which had been previously undetedted." (pick up your jaw-your mouth is hanging open.)

The journal article went on:
"In a review of the Greater Los Angeles Tumor Registry, the number of incidental renal masses detected has increased significantly as the use of imaging techniques has expanded. Another servies noted that only four percent of asymptomatictumors were diagnosed in 1976. By 1991, 61 percent were detected. This number continues to increase."

And those of us on this board are living proof that the advances in testing machinery, interpretation of the tests, and surgical procedures have paid off. Not to mention the progress in drug testing and bringing those items to market. The current stats say one in four women will have breast cancer in their lifetimes. And most men will have prostate cancer at the time of death (even it was never symptomatic). Kind of makes you look around a crowded room and wonder who's sitting there with undiagnosed cancer.

So....to everyone out there, have a great weekend. Hope your weather is tolerable, especially if you are in a hot zone. Go hug someone you like or love and live to slay more dragons.

ps-we're celebrating #6 with Bridget-the Irish, Scots, English, Dutch, German, Polish, and ?? We're stubborn and independent, you know.

icemantoo's picture
Posts: 3354
Joined: Jan 2010

A lot of the information in these studies could well have been supplied from those having RCC in the generation before us.

garym's picture
Posts: 1651
Joined: Nov 2009

And hopefully what is learned from our generation leads to a cure for future generations!

dhs1963's picture
Posts: 513
Joined: May 2012

For example, I, my data, and his dad all have had kidney cancer. My dad and I are participating in a study to help figure out the genetic link. Unfortunately, my grandfather dies of the desease 15 years ago so he can not help.

Sometimes we have to be agressive in finding the studies; my urologist only suggested NIH. My reseach found the study. I am sure there are more out there. I do know that the group at NIH are looking for survivors with family history of RCC.

foxhd's picture
Posts: 3183
Joined: Oct 2011

Yes, that is why we participate in clinical trials. Everyone here knows that I am an advocate. Tomorrow, I get another infusion of MDX-1106 and latest cat scan results. I am alive due to my clinical trial.

alice124's picture
Posts: 899
Joined: Mar 2012

Sending positive thoughts your way. . .

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