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tuffenuff's picture
Posts: 277
Joined: May 2012

THIS JUST IN!!! Met with chemo doc today. Had an in depth discussion and did the math regarding how many mg of chemo I've received. End result... I'm done with the chemo!!! He said I've already received more than the dosage which has proven to be effective and since my radiation is complete, there's really no compelling evidence that shows I should get the last 2 infusions.

Standard protocol is Cisplatin 100mg x 3 sessions. A large percentage of patients can't tolerate it and never get the 2nd or 3rd infusion. The patients who complete at least 2 infusions have basically the same results as the patients who complete all 3. I've received 235 mg of Cisplatin which is used to increase the effectiveness of radiation. Since I'm no longer receiving radiation anyway, I feel ok with my decision. My first PET will be the week after Labor Day.

hwt's picture
Posts: 2330
Joined: Jun 2012

I missed my last infusion because ONC said they had given me all they felt they safely could and my 1st CAT/contrast was NED. Know yours will be too!

osmotar's picture
Posts: 1005
Joined: Jul 2011

on being finished.


Skiffin16's picture
Posts: 8286
Joined: Sep 2009

Time to relax, and heal....


phrannie51's picture
Posts: 4673
Joined: Mar 2012

I would LOVE to come out of my appointment with the Oncologist on the 28th, and have him say you've had more chemo than most folks so we aren't going to give you this last chemo...

So now you're on the road to truly healing, not the path where you heal a little then get knocked flat again. I am so happy for you!!


D Lewis's picture
D Lewis
Posts: 1576
Joined: Jan 2010

Good news. Now let the recovery begin!


tuffenuff's picture
Posts: 277
Joined: May 2012

I was nervous to post at first because I was afraid everyone would say OH NO YOU SHOULD TAKE THE LAST TREATMENTS!!!

Grandmax4's picture
Posts: 709
Joined: Dec 2011

now, let the healing begin

Posts: 660
Joined: Mar 2012

have always been the protocol, you are doing what your doctor advised, that is different than not listening to your Doc, although at times I wanted to walk that walk. So put your feet up and look out the Bus window with us. Im just glad it stopped dropping me off at the same location day after day, and my Mask made a great Hood Orniment.

CivilMatt's picture
Posts: 4320
Joined: May 2012

Hi Cindy,

Way to go, you are finished! I guess when it comes to chemo you are just a 235 mg. kind of gal. Relax, heal and enjoy your friends and family, you deserve it.



fisrpotpe's picture
Posts: 1349
Joined: Aug 2010

did you see the checker flag today? congrats, now take that positive feeling into the slow recovery period.

relaxing times ahead

Posts: 1914
Joined: May 2012

I am so happy for you ! You made an informed decission...don't ever feel bad about that ! And if your doc. agreed, more the better ! Now try to sit back and just heal ! Keep posting girl, you are always so upbeat and positive ! Katie

Matt29's picture
Posts: 62
Joined: Apr 2012

i almost had the same experience but i had the 3 anyway its also done by your weight ie weight goes down they adjust your chemo.Your scan will be clean

tuffenuff's picture
Posts: 277
Joined: May 2012

I didn't think about the weight thing. I'm 22 pounds lighter. I can't say I'm unhappy about it lol.

Kent Cass
Posts: 1898
Joined: Nov 2009

Knew you'd get to where you are, and way beyond. Forward, girl, and start making plans for your 2025 summer vacation. Yes!


Billie67's picture
Posts: 843
Joined: Jul 2012

You did it! Doesn't it feel amazing? Now it's time to just sit back, relax and let your body heal from all that its been thru.
Feel good :-)

tnsilcncer's picture
Posts: 64
Joined: Apr 2011

I could only tolerate two, that stuff is Naaaaasty. And I'm just over a year out and NED! Congrats and good luck!



Tim6003's picture
Posts: 1511
Joined: Nov 2011

Way to go....relax and enjoy..


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