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Plucky & Braelee

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 508
Joined: May 2012

Are you still doing Folfox? How are you doing? Has it gotten any better? I was thinking about both of you, both of you are ahead of me on treatment. I did treatment #3 today, feeling very tired and queasy tonight. Let us know how it is going. Have you reduced dosage? Hoping everything is going well.
Sandy

pluckey's picture
pluckey
Posts: 484
Joined: Jul 2009

Hi Sandy- Thanks for checking up on me. I just sleep when I'm not working, so not on the boards that much!

Well, I made it to round six of Folfox- I had allergic reaction on #6 so they stopped the infusion of the Oxaliplatin, gave me steroids and IV Benedryl. Symptomes went away and they restarted teh Oxy.

Treatment #7, last week, they gave me steroids and a pill of Benadryl, and 12 minutes into infusion- allergic reaction again.

I told them I did not want to continue with the Oxy, so I just did the 5FU 48-bag.
I have a call into Onc to see if whe has another plan.

My chemo is adjuvant chemo for a small lung met I had removed in March. I had no intention of doing the chemo, then decided I would do 8 rounds, not the 12 protocol. I am pissed I didn't make it thru 8, but I am ready to be done with chemo. These protocols are all a guessing game anyway, so, I'll give myself a break and hope I have a longer NED status.

How are YOU doing?

Peggy

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 508
Joined: May 2012

I finished #3 yesterday, doing ok today a little tired. I get Decadron 20 mg & zofran 8 mg & amend 150 mg pre-infusion. My first infusion has been the worst 4 days no eating or drinking and feeling like a semi truck ran me over. 2nd infusion - just 2 days of semi-truck symptoms, but could eat & drink. I have the could symptoms, can't drink cold for 5 days after infusion, which I hate because I love cold coke & don't drink coffee. I haven't had problems with neuropathy at all. What kind of allergic reaction did you have? Have you had any neuropathy problems? Are you working full time? I'm not working since diagnosis, I am a med/surg nurse on the floor 12 hours, with my WBC low can't work. Hope you are feeling fine.
Sandy

pluckey's picture
pluckey
Posts: 484
Joined: Jul 2009

I definitely felt like a Mack Truck rolled over me the first few rounds. ANd same as you- no eating for a few days, but then I'd get soooo weak and needed food...My mom would make me mashed potatoes the week of chemo and I'd nibble that, drink warm gingerale or lemonade. Water taste crappy to me. After a week I'd get a bit better and just force myself to eat more, knowing the next week I'd be all icky. Spicy meat- taco bell tacos..Burrito Beach breakfast tacos are what I've been eating/craving for some wierd reason. Oh and apple croissants. Wierd, it's like being pregnant witht he wierd food cravings.
Nothing actually tastes taht great,and yes I miss cold drinks terribly.

Minor neuropathy. Weak hands and they'd curl up and go all wonky the first few days after the treatment. Mouth sores, but not bad at all.

When I was first diagnosed and horribly horribly ill with the cancer, I did Folfuri and erbitux one week, plus the 48-hour 5fu bag, then erbitux alone the next week. I had horrible mouth sores, neuropathy, a rash that was god-awful, and I was skeletal skinny - 90 pounds bag of bones- so my current experience if totally different since I am not riddled with disease.

I am working. I do intermittent short term disability- I get infused on Thursday, stay home and puke and sleep on Friday and sleep/couch potatoe all weekend then go to work Monday. I def have major fatigue and am a bit foggy....but work was slow this summer, so it''s all working out.

Where are you in your journey? Have you had surgeries etc????

Wishing you an uneventful but successful treatment.

Peggy

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