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Three years since diagnosis

Daffodil324's picture
Posts: 59
Joined: Mar 2010

Three years ago today I was in the hospital for colon resection surgery. A colonoscopy had found a tumor which was obstructing my colon so much that the scope couldn't get past it! It was cancer, and cancer cells were also found in three lymph nodes, so I had the full six months/twelve treatments of Folfox. I was a stage IIIb.

Things are good now. My colonoscopy this summer found one small non-cancerous polyp (about the size of an apple seed, my gastroenterologist told me) which was removed. My CEA continues to be normal, and scans have all been clear. I had my port taken out recently--I was holding onto it just in case I needed it, but it looks like I won't need it anytime soon. (If I do, I'll just get a new one.) I'm working full-time and feeling good.

I know it could come back at any time--that's why my gastroenterologist insists on an annual colonoscopy and I'm still seeing my oncologist every six months. But for now, everything is good and back to normal, and I'm trying to enjoy it as much as I can for as long at that lasts!

I haven't posted a lot here but I've read a lot, especially when I was in treatment. I remember being very scared and uncertain, and I was always encouraged to read updates from people who were doing well--to see that it was possible to get past this. I wanted to add my update to pass along that encouragement to others.

Karen in FL

Annabelle41415's picture
Posts: 6709
Joined: Feb 2009

So glad to hear the good news and that you for posting that you are doing so well.


Momof2plusteentwins's picture
Posts: 508
Joined: May 2012

So good to see positive stories. I realize people move on that have finished treatments and not facing dr appts weekly. I hope to get to that point eventually. Congratulations on another clean scan and getting rid of the pain in the butt bump port.

Aud's picture
Posts: 480
Joined: Oct 2009

Karen, I am happy for you.

Maxiecat's picture
Posts: 544
Joined: Jul 2012

Karen...great news on your 3 years of no reoccurance!


SharonVegas's picture
Posts: 189
Joined: Feb 2012

Thank you for sharing. You are so correct in saying how uplifting stories like yours are to people undergoing treatment. Wishing you many more clean scans.
Best wishes,

marbleotis's picture
Posts: 715
Joined: Mar 2012

I really needed to read your post today. I am also a 3b and on chemo #11 of 12. I had 3 nodes also but no mets anywhere. I am so encouraged by your 3 year all clear. This is my worry and I am trying to put it in perspective so I do not let this dominate my brain. I get scans 6 weeks after last chemo then colonoscopy in Jan (1 year mark). Then scans every 6 months the first 2 years and colonoscopy each year. I cannot live my life worrying that this will come back but it always seems to be on the surface. Any advice from the board would be appreciated.

Posts: 1282
Joined: Apr 2012

Good new is always welcome here. This December,I too will be three years out from dx and also NED. We are
the lucky ones.

Sundanceh's picture
Posts: 4408
Joined: Jun 2009

Glad to hear things are going so well - are your school kiddos still enoying the holiday music each year? I always enjoyed reading how they responded when you played that for them:)

-Santa Craig

Posts: 753
Joined: Apr 2011

Thanks for a great update.
( i sent you a PM....if you could respond back).

Psalm37bl's picture
Posts: 25
Joined: Jul 2012

So happy for you!

Daffodil324's picture
Posts: 59
Joined: Mar 2010

I'm happy that my update made you all happy! danker, yes, we are the lucky ones and I know it--I know you do too. Craig, I have your Christmas CD and I play it each year when we have our classroom Christmas party. My kids always enjoy it and it reminds me of you and all you give to others! marbleotis, your situation sounds so similar to mine. Congratulations on (almost)finishing your chemo. As for worrying--I still can't help worrying a little when the appointment times roll around every six months. I guess that's just natural after all we've been through, and I try not to let it bother me too much. I hope everything goes well for everyone here.

YoVita's picture
Posts: 590
Joined: Mar 2010

You're right. It's very encouraging to the rest of us. I'm so happy for you. Thank you for taking the time to do this. Best of continued health to you.

So Worried
Posts: 111
Joined: Aug 2012

Good for you, Karen. I am thrilled at your news!! I am hoping and praying that it NEVER, EVER comes back and you live a long and happy life. Keep us updated as I know, like you said, everyone loves good news!!!!

Sonia32's picture
Posts: 1078
Joined: Mar 2009

thank you for sharing that your still ok. always encouraging news for us all

iluvmms's picture
Posts: 134
Joined: Aug 2009

Hi Karen. I am in FLorida also. Not too many floridians on here. Do you go to Moffitt?

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