Aug 03, 2012 - 7:18 pm
Hello my name is Kristy and Me and my 2 boys ages 12 and 6 live in Missouri. We havebeen through a roller coaster battle of my husbands brain cancer. November 13th 2009 my husband was diagnosed with a brain tumor in his cerebellum. My husband had his tumor removed in St.Louis which pathology showed it was a pilocytic astrocytoma. 6 months later his headaches came back and MRI revealed this tumor was back. He had surgery again this time pathology showed it a grade 2 astrocytoma. The doctors in St.Louis wanted us to see an oncologist so we did. He had full brain radiation. The tumor came back again so they wanted to set up another surgery. At this point we wanted to change doctors, we then decided to see the doctors at Duke University in North Carolina. They were great! We went there every 8 weeks because they just wanted to watch the tumor since it hasnt grown in awhile. In September of 2011 the tumor grew so we did schedule another surgery there with Dr.Friedman. He was great but he didnt get all of the tumor. At this time it was a grade 3. We then went home and my husband was scheduled for gamma knife. His tumor started to shrink some and he then got on chemotherapy too. He was doing good for a few months but then he started getting facial numbness. MRI was scheduled and he had a new growth in the pons of the brainstem. About a month later he lost his ability to drive walk swallow just about everything. We went back to Duke with my husband in a wheel chair to see what they would do. The doctors gave him a big dose of the carboplatin cpt-11 and avastin. We came home and about 4 days later on March.6th which was our youngest boys birthday his dad had to be rushed by ambulance to the hospital here in St.Louis. They said he had a heart attack,then sepsis, then a stroke, RSV and more. We spent 44 days in the hospital and he was on a ventilator the whole time. He died April 19th 2012.
His name was Michael and we was 32 years old. He was the most amazing husband and father in the world. We adored him soo much! I would of traded places with him in a heartbeat if I could because he is wonderful and we have 2 boys which they probably need him more since they all do boy stuff.
My kids and I would love to help anyone we can with brain tumors. We had my moms and sisters help during all of this and I dont know what we would of done without them. I know there are alot of people that dont have anyone and me and my kids would like to be that someone. I have been researching brain tumors for almost 3 years so if anyone has any questions or wants me to research for them I will. I live in missouri so If anyone is around here I will give rides I dont know just whatever anyone needs. My husband would be so proud of us because he loves to help everyone. Thank you everyone! My email address is email@example.com or you can call me at 636-209-8533.