Hi guys! Just to say hi and how things are going

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braziliangirl82
braziliangirl82 Member Posts: 42
in Head and Neck Cancer #1
Hey guys, remember me? I came here few months ago, freaking of course. After being diagnosed with tongue cancer with 29 years old... non hpv, non smoker, non drinker, never tasted marijuana... almost a "saint"!

Well, just to let you know that my life is almost normal right now. Came back to work, talking a lot. Some words stills go strange because my main language is portuguese. Believe or not, on english i´m doing 99% equal i as before. In portuguese 75%! Funny.

I had one MRI (all clear) and I´m having the second one on July 18, in a week. Send good vibrations on july 18 moring to my tongue please.

I just want to say that if you are going through surgery right now (i only had 2 surgeries) just want to let you know that there´s life after oral cancer.

see you
best regards!

Comments

  • Grandmax4
    Grandmax4 Member Posts: 723
    #2
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    wonderful
    news and best wishes for a long, cancer free life
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #3
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    good for you
    why do you think your Portuguese is slower than your English to normalize? Is it certain sounds, or is it tnat you just speak so darned fast?
  • hwt
    hwt Member Posts: 2,328 Member
    #4
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    longtermsurvivor said:

    good for you
    why do you think your Portuguese is slower than your English to normalize? Is it certain sounds, or is it tnat you just speak so darned fast?

    Prayers coming your way.
    Prayers coming your way. Thanks for sharing your positive outcome.
  • ooo
    ooo Member Posts: 105
    #5
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    Hi there! Of course we still
    Hi there! Of course we still remember! :)

    In case you missed it, I had to do radiation after surgery. I'm now a month out of treatment and back to work full-time. Life is good. For me too English is almost back to its original glory whereas my Italian is not. I speak English most of the time, so I'm not practicing my Italian that much, but I think some sounds in Italian are just intrinsically harder (e.g. rolling Rs). Anyways, being able to talk is one thing that makes me happy every single day.

    Hope everything goes well with your follow-up scan!

    Dre.
  • katenorwood
    katenorwood Member Posts: 1,912
    #6
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    Hurray !
    Hello !
    Thanks for updating us ! I am so glad you are doing so well ! H/N cancers do make us sound a little different. (depending on surgery site..and damage done) Heck I find mine frustrating some days and than give a great big laugh other days. Continued success there and please keep us updated, good news is always welcomed here ! Katie
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #7
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    (((VVVVVViiibbbeeessss))))).......
    (((VVVVVViiibbbeeessss))))).......coomminng youuuur waaayyyyy eeearrlyyyy.....

    Iiii waaannnteeeddd tooo gggettt aaa hhheaaadd sttttarttttt.....

    Best,
    Jooohnn.....
  • Sam999
    Sam999 Member Posts: 319 Member
    #8
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    Skiffin16 said:

    (((VVVVVViiibbbeeessss))))).......
    (((VVVVVViiibbbeeessss))))).......coomminng youuuur waaayyyyy eeearrlyyyy.....

    Iiii waaannnteeeddd tooo gggettt aaa hhheaaadd sttttarttttt.....

    Best,
    Jooohnn.....

    Thanks so much for the
    Thanks so much for the postive remark. I am going thru the toughest two weeks after radiations is done and it was so depressing. Your positive remarks made my day. Did you go thru surgery and radiation both?

    My prayers and good wishes for you MRI.

    Sam
  • braziliangirl82
    braziliangirl82 Member Posts: 42
    #9
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    longtermsurvivor said:

    good for you
    why do you think your Portuguese is slower than your English to normalize? Is it certain sounds, or is it tnat you just speak so darned fast?

    Don´t know
    I don´t know if it´s the speed, but only some words.

    For example, i can speak "Drowning" normaly, but when i say "Vidro" (it mean glass on portuguese) it seem weird.

    Ok, but at least I can speak. And I´m speaking a lot. :)
  • braziliangirl82
    braziliangirl82 Member Posts: 42
    #10
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    Sam999 said:

    Thanks so much for the
    Thanks so much for the postive remark. I am going thru the toughest two weeks after radiations is done and it was so depressing. Your positive remarks made my day. Did you go thru surgery and radiation both?

    My prayers and good wishes for you MRI.

    Sam

    great to hear!
    I did not had radiation, just 2 surgeries (partial glossectomy) + partial neck dissection. Hope you get better ASAP!
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #11
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    braziliangirl82 said:

    great to hear!
    I did not had radiation, just 2 surgeries (partial glossectomy) + partial neck dissection. Hope you get better ASAP!

    Hi Brazil...
    Glad for your positive outcome ....prayers for the 18th :)

    Best,

    Tim
  • Goalie
    Goalie Member Posts: 184
    #12
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    braziliangirl82 said:

    great to hear!
    I did not had radiation, just 2 surgeries (partial glossectomy) + partial neck dissection. Hope you get better ASAP!

    passing by
    Oii! Tudo bem?

    I just thought I'd let you know that I happen to be passing by next week, not that you will be in Brasilia or Belem for that matter; I recall that you were down south. I pass though Guarulhos on the way out as well but never leave the aiport, alas. It is work, of course, as I practically never travel for pleasure.

    I was tonsil and lymph node tumors and 9 wks of rads and chemo plus the partial dissection cleanup. I had it all from thrush to blood clots but now, a year and a half out, except for annoyances like dry mouth requiring "foobrication", am pretty much totally recovered. So much so that last night in the first of my two hockey games (different leagues) somebody deflected a slap shot up into my throat. It's a good thing that the equipment absorbed most of it but it was a bit unnerving, nevertheless. It sure would have been "funny" to have died from a throat injury in hockey when cancer couldn't kill me.

    A gente fala, hein? Doug
  • phrannie51
    phrannie51 Member Posts: 4,716
    #13
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    I would have sworn I answered this a
    few days ago...

    Thanks for the upbeat follow up on your treatment. Some of us are just comeing to the end of rads, or have been done for a few weeks, and we're starting to wonder when does the "feel good" part of recovery start? It's great when you guys come back and tell us things are going good.

    p
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #14
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    phrannie51 said:

    I would have sworn I answered this a
    few days ago...

    Thanks for the upbeat follow up on your treatment. Some of us are just comeing to the end of rads, or have been done for a few weeks, and we're starting to wonder when does the "feel good" part of recovery start? It's great when you guys come back and tell us things are going good.

    p

    Feel Good Part....
    Ummm so you mean physically, or mentally....

    For me the mental feel good part came pretty soon after Tx. The physical part took a few months.

    It might start as a day out of a week or every few days of not feeling the best and then a good day.

    A week or so later, I might have a couple good days...eventually more good days than bad.

    I was fortunate enough that I never really had any real bad days compared to many here. I never got sick, my skin peeled like a bad sun burn but that was about it.

    My throat did get sore, but the tonsils coming out actually was worse, just for a shorter period of time.

    But there are many days even a few years out that you just feel kind of crappy.... But I am alive, I can eat, form spit...etc...


    I got my toes in the water, **** in the sand
    Not a worry in the world, a cold beer in my hand
    Life is good today, life is good today...

    ZAC BROWN BAND - TOES

    JG
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    #15
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    Skiffin16 said:

    Feel Good Part....
    Ummm so you mean physically, or mentally....

    For me the mental feel good part came pretty soon after Tx. The physical part took a few months.

    It might start as a day out of a week or every few days of not feeling the best and then a good day.

    A week or so later, I might have a couple good days...eventually more good days than bad.

    I was fortunate enough that I never really had any real bad days compared to many here. I never got sick, my skin peeled like a bad sun burn but that was about it.

    My throat did get sore, but the tonsils coming out actually was worse, just for a shorter period of time.

    But there are many days even a few years out that you just feel kind of crappy.... But I am alive, I can eat, form spit...etc...


    I got my toes in the water, **** in the sand
    Not a worry in the world, a cold beer in my hand
    Life is good today, life is good today...

    ZAC BROWN BAND - TOES

    JG

    Adios
    and vaya con dios,

    One of my favorate songs of his along with
    'Knee Deep' featuring Jimmy Buffett.

    God bless
    Tonsil dad,

    Dan.

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