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Lynch Syndrome Meetup - Portland area, June 23rd

Posts: 18
Joined: Jul 2011

Saturday, June 23rd, 2:00-3:30 PM

People affected by the hereditary cancer syndrome known as Lynch Syndrome are invited to this informal networking event. Caregivers, family members and friends are welcome!

Light refreshments will be served. Registration is appreciated, but not required. To register or for questions or to get involved, email lynchpdx@gmail.com.

This Portland area event is organized by local volunteers affected by Lynch Syndrome. LS leads to greatly increased risk of colon, endometrial, and other cancers. As more of us are found through genetic testing, we are finding each other.


Oregon Health & Science University*
Center for Health and Healing (South Waterfront)
3rd Floor, Room 1a&b
3303 S.W. Bond Ave.
Portland, Ore. 97239

Once at the building, take the elevators up to the 3rd floor and following the signs to the Conference Center. From there, look for Rooms 1a&b

Directions, and parking and public transit information:

*OHSU has generously made space available for this event but is not a sponsor.

For more information or future events, visit: http://lynchpdx.wordpress.com/

Shell bug's picture
Shell bug
Posts: 76
Joined: Nov 2011

Thanks for gettting the word out mollymuch!

I would love to make it, but I will still be in treatment (radiation). If you have another gathering, please post. Perhaps my husband and I could take the train down and make a weekend of it. I hear Portland is a blast. When I go away, however, I usually try to go someplace geographically very different for reasons I'm sure you know...

I read on another post that you are two years out and had agressive treatment and you are only 44. That gives me great comfort as I am also getting aggressive treatment.

Thanks again for drawing attention to our condition,

Posts: 18
Joined: Jul 2011

Thanks, Rachelle -- we're hoping to make this a quarterly thing. Since it's so early on, I didn't want to set the dates out too far in advance, but when I have the next dates I'll post them on this site as well as lynchpdx.wordpress.com. It's not been quite two years for me - that will be in December - but so far, so good! Good luck and be strong for the rest of your treatment, and I hope I get to meet you sometime.


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