Lifes a Beach ! Stage IV

Dapsterd
Dapsterd Member Posts: 291
Hello Family.....

Saw Doc Tuesday, scans are now verified "face to face" .. all NED, brain and body!

I have had some constant back pain..and of course the internet describes me perfectly!
So of course....my thinking is I have cancer mets now in the bones!!

Doc says CT does not indicate any bone activity, but to help me through, she ordered a bone scan and took some blood, and wants me to see a social worker and join a support group, to help with the pshychologal effects of cancer.
Funny, I agree with her! So we are moving forward with that.

Doc said "go enjoy your summer", you are clear for now!

Best wishes to all!! (keep you posted on the bone scan)

Dave
49 yr old, Stage IV Adeno-Car w/brain mets

Comments

  • dennycee
    dennycee Member Posts: 842
    I am glad that you are
    I am glad that you are considering a group for survivors, I get a lot out of the group I go to. Also, there are 2 programs that I know of for post treatment survivors. Both are sponsored by grants from the Lance Armstrong Foundation. Livestrong is offered through the YMCA and Cancer Transitions which is offered through the Cancer Support Centers or Gilda's Clubs. Transitions is about to be offered on line too with a weekly interactive Saturday program. The programs were developed because Armstrong was disappointed to learn that there were no programs available to him after treatment.

    http://www.livestrong.org/What-We-Do/Our-Actions/Programs-Partnerships/LIVESTRONG-at-the-YMCA

    http://www.cancersupportcommunity.org/MainMenu/News/Recent-News/Seeking-Volunteers-for-Pilot-Program-Cancer-Transitions.pdf

    Both programs are free and open to both men and women.
  • grannylove
    grannylove Member Posts: 183
    Sunshine
    coming your way for sure Dave! So glad your news "face to face" was NED!!!! Love hearing those words. I know it is such a relief! Good idea for follow up support group. We deal with alot of anxieties.....not just at scan time but each ache and pain we feel. Looks like the Sunshine State is on your agenda heh? Life is good and we are blessed to be able to share. Keep us posted Brother and again...congratulations on your wonderful news. Cheryl
  • AlanRinHBG
    AlanRinHBG Member Posts: 121

    Sunshine
    coming your way for sure Dave! So glad your news "face to face" was NED!!!! Love hearing those words. I know it is such a relief! Good idea for follow up support group. We deal with alot of anxieties.....not just at scan time but each ache and pain we feel. Looks like the Sunshine State is on your agenda heh? Life is good and we are blessed to be able to share. Keep us posted Brother and again...congratulations on your wonderful news. Cheryl

    That's awesome
    I'm happy for the good news. NED is what we all want to hear. I also get it about the group. If you have one in the area, give it a go. All we have around here is a bunch of them all over the place for ladies and breast cancer. I did see a group for guys and prostate cancer. Talking it out with other survivors is so great. Nobody gets it like we do. It helps alot. You'll get alot out of it but more importantly you'll be helping others cope as well. There's real satisfaction with that.
  • z
    z Member Posts: 1,411 Member
    Dave
    Wonderful News! I wish you continued wonderful news! Lori
  • Prsartist3
    Prsartist3 Member Posts: 9
    NED?
    Sorry, but what is NED?
  • Ex_Rock_n_Roller
    Ex_Rock_n_Roller Member Posts: 281

    NED?
    Sorry, but what is NED?

    Ned is one of our favorite guys ...
    ... No Evidence of Disease. My onco seems to prefer NEC, which doesn't have the same ring to it, but is probably more precise.

    Dave, at the risk of repeating myself ... Oh, what the heck : YOU ARE THE MAN! Get out there and do some stuff! Mojo regarding the bone scan.

    Let us know if you get into the survivor group thing, and how it works out. In our area, it seems as though most of them are made up of people who have one of the varieties from which a vast majority of people survive a long time, so I haven't been too convinced they'd have a lot of utility for me.

    Unfortunately, I've had the "good" fortune to have a couple friends, family and work, who are also fighting the Big C, so I've kinda gone with a "do it yourself" survivor group up to now (not counting y'all, that is).
  • Ex_Rock_n_Roller
    Ex_Rock_n_Roller Member Posts: 281

    NED?
    Sorry, but what is NED?

    Dreaded double post ...
  • Dapsterd
    Dapsterd Member Posts: 291
    To soon?
    Good morning Family! I may have spoke too soon on the NED.....I had a bobe scan due to some pain in my back, and it showed some "abnormal" areas in the upper spine according to the Doc. Will get MRI this week.

    Everything I know (or dont know!) tells me it is bone mets to the spine....what a drag.

    I will await the scan and Doc's words.

    I am running out of places the LC tends to invade!!!

    Just have to live....One scan at a time !

    Keep u posted...
    Dave
  • z
    z Member Posts: 1,411 Member
    Dapsterd said:

    To soon?
    Good morning Family! I may have spoke too soon on the NED.....I had a bobe scan due to some pain in my back, and it showed some "abnormal" areas in the upper spine according to the Doc. Will get MRI this week.

    Everything I know (or dont know!) tells me it is bone mets to the spine....what a drag.

    I will await the scan and Doc's words.

    I am running out of places the LC tends to invade!!!

    Just have to live....One scan at a time !

    Keep u posted...
    Dave

    Dave
    I want you to be totally wrong, and hopefully it will be wear and tear on your body, as we age, just inflammation. Lori
  • dennycee
    dennycee Member Posts: 842
    Dapsterd said:

    To soon?
    Good morning Family! I may have spoke too soon on the NED.....I had a bobe scan due to some pain in my back, and it showed some "abnormal" areas in the upper spine according to the Doc. Will get MRI this week.

    Everything I know (or dont know!) tells me it is bone mets to the spine....what a drag.

    I will await the scan and Doc's words.

    I am running out of places the LC tends to invade!!!

    Just have to live....One scan at a time !

    Keep u posted...
    Dave

    I hope it is just some kind
    I hope it is just some kind of inflammation. From another of your entries, I think you are here in Michigan. I had checked in on this thread to tell you about 2 support groups in s.e. mich and read your news. If you are looking for groups there are mixed cancer support groups in Ann Arbor at the Cancer Support Community and in Royal Oak at the Gildas Club.

    My best to you,
    Denny
  • lekkerone
    lekkerone Member Posts: 199
    dennycee said:

    I hope it is just some kind
    I hope it is just some kind of inflammation. From another of your entries, I think you are here in Michigan. I had checked in on this thread to tell you about 2 support groups in s.e. mich and read your news. If you are looking for groups there are mixed cancer support groups in Ann Arbor at the Cancer Support Community and in Royal Oak at the Gildas Club.

    My best to you,
    Denny

    Dave
    I also want you to be very very wrong. Stay strong and know that we are here for you. Diane
  • Dapsterd
    Dapsterd Member Posts: 291
    dennycee said:

    I hope it is just some kind
    I hope it is just some kind of inflammation. From another of your entries, I think you are here in Michigan. I had checked in on this thread to tell you about 2 support groups in s.e. mich and read your news. If you are looking for groups there are mixed cancer support groups in Ann Arbor at the Cancer Support Community and in Royal Oak at the Gildas Club.

    My best to you,
    Denny

    Thanx
    Thanx Denny....I am looking into Gildas Club.
    MRI on spine Tomorrow, Doc says bone scan indicates "abnormalities".

    I go to Henry Ford-Josephine Ford Cancer Ctr. I like them and I think it is a good hospital.

    We will see !!!!!

    Thanx again..>Dave
  • Rosi
    Rosi Member Posts: 69
    Dapsterd said:

    Thanx
    Thanx Denny....I am looking into Gildas Club.
    MRI on spine Tomorrow, Doc says bone scan indicates "abnormalities".

    I go to Henry Ford-Josephine Ford Cancer Ctr. I like them and I think it is a good hospital.

    We will see !!!!!

    Thanx again..>Dave

    ONE DAY AT A TIME
    Dapsted, Honey child just go ONE DAY AT A TIME God is always with you.
  • dennycee
    dennycee Member Posts: 842
    Dapsterd said:

    Thanx
    Thanx Denny....I am looking into Gildas Club.
    MRI on spine Tomorrow, Doc says bone scan indicates "abnormalities".

    I go to Henry Ford-Josephine Ford Cancer Ctr. I like them and I think it is a good hospital.

    We will see !!!!!

    Thanx again..>Dave

    When my mom was dx with lc
    When my mom was dx with lc there was a monthly lc group and a weekly mixed support. Hope all works out well.