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Diffuse Large B cell lymphoma of the orbit of my eye.

Posts: 68
Joined: Mar 2012

Was diagnosed two weeks ago with a biopsy. The visit to the onocologist said it is too rare he knows nothing about this and wants me to shuffle on to MD Anderson in Houston from where I live in Fl. I am so scared as all I read is disfigurment, tests, tests, and vile awake tests I am in for. I have a bladder infection now Ha. I think it is more four sets of antibiots and none have worke. What do they know? I am in misery mentally and physically. I did make an appt. at Shands in Gainesville Fl. for two weeks away first available appt. He will probably say nothing new. Can't seem to even get tests done. Where do you begin to try to save your life? I have a PET scan tomorrow. Dread it. This crap will be all over I bet. I am angry, scared and feel cheated. I am 68years young and had a lot of living to do. Now a lot of tests to do and bad pronosis and disfigurment. I wish it had been any place but my eye. Somebody help. Have any of you had this. I see no one anywhere and I have decided because the all died. Terrified in Fl. and hating the waiting game. HUgs.

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