What are the 'normal' or standard procedures during every 3 months or 6 months check up after the su

Beingbless
Beingbless Member Posts: 46
edited March 2012 in Kidney Cancer #1
Hello all, my 1st coming 3 months check up has scheduled in this coming Jun, it will be chest x ray and ultra sounds on the abdomen/bladder then follow up with Ctscan 6 month post surgery.

I've been reading some posts here, looks like some of you have 6months or 1 year check up. Try to get some understanding what kind of normal/standard procedures during the check up?

Is chest x ray so important? What are the risks to have it more than once chest x ray per year? I remember vividly, my GP strongly against to have chest x ray perform on me prior to my surgery, in fact, he insisted not to do it and called it off. He said if I have anything in my lung, then, I died, it's pretty harsh for me, I almost cry out loud in front of him, especially that was the time when I tried to prepare myself going through what I need to get It done for my surgery in Feb.

Just a quick background of me, if you have no idea who am I. I have my right kidney removed due to RCC stage 1 clear cell, grade 2 5cm. All cancer cells were contained in that kidney,, no treatment or medication after that, this is my 5th week post surgery.

Sorry for I am pretty new in this forum, not sure this topic has been discussed. Any information or help is highly appreciated.

Thanks.
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Comments

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Follow up
    Beingbless,

    There is no one size fits all for post op tests. Both 3 and 6 month intervals for the first year or 2 are normal and than yearly thereafter.I would be surprised giving your diagnosis if you have anything to worry about. The purpose of the chest xray is to rule out any spreading of the RCC. The lungs are where it first shows up if it spreads. The Urologist or Surgeon rather than the GP should make that call.Best wishes for a full and complete recovery. Mine is already in its 10th year with NED (no evidence of disease).

    Icemantoo
  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Follow up
    Beingbless,

    There is no one size fits all for post op tests. Both 3 and 6 month intervals for the first year or 2 are normal and than yearly thereafter.I would be surprised giving your diagnosis if you have anything to worry about. The purpose of the chest xray is to rule out any spreading of the RCC. The lungs are where it first shows up if it spreads. The Urologist or Surgeon rather than the GP should make that call.Best wishes for a full and complete recovery. Mine is already in its 10th year with NED (no evidence of disease).

    Icemantoo
  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Follow up
    Beingbless,

    There is no one size fits all for post op tests. Both 3 and 6 month intervals for the first year or 2 are normal and than yearly thereafter.I would be surprised giving your diagnosis if you have anything to worry about. The purpose of the chest xray is to rule out any spreading of the RCC. The lungs are where it first shows up if it spreads. The Urologist or Surgeon rather than the GP should make that call.Best wishes for a full and complete recovery. Mine is already in its 10th year with NED (no evidence of disease).

    Icemantoo
  • MikeK703
    MikeK703 Member Posts: 235
    X-ray follow-ups
    Hi,
    Everybody's follow-up is different, depending on their pathology report, i.e., stage and grade. As a stage 1/grade 2, I had my first follow-up 3 months after surgery then every six months for a year. My urologist then said I should now see him once a year until he feels it is no longer necessary. I get bloodwork and a chest x-ray on each visit. As Iceman said, the lungs is one of the first places that kidney cancer can spread to. I don't know why your doctor was so concerned about chest x-rays. There is not a lot of risk with x-rays. CT scans with contrast, possibly, but not X-rays. If there was a big health hazard I would be dead already after having had a LOT of x-rays and CT scans(without contrast) over the years. I also can't understand why he would tell you that if you had something show up in your lungs you would die. I would find myself another doctor if I were you.
    Regards,
    Mike
  • Limelife50
    Limelife50 Member Posts: 476
    Hi Beingbless
    I had my surgery 10/11/2011 ,my path report is almost identical to yours 5cm grade 2 mine was in the upper pole.I have already had a chest xray and I am going in April for my first ct scan post surgery.I think what your doctor meant is that if your cancer had already spread before your surgery to your lungs that you were in a lot of trouble.I know doctors can be a little blunt at times but I think it is better sometimes to be a aware of the worst possibilities.I think the odds are in your favor in a big way but it is RCC so we can never let our guard down,so with that said try to relax I think you should be around for a long time to come and give your doctor another chance maybe you being so worried you misunderstood his intentions.Good luck and have a nice day!!!
  • Beingbless
    Beingbless Member Posts: 46

    Hi Beingbless
    I had my surgery 10/11/2011 ,my path report is almost identical to yours 5cm grade 2 mine was in the upper pole.I have already had a chest xray and I am going in April for my first ct scan post surgery.I think what your doctor meant is that if your cancer had already spread before your surgery to your lungs that you were in a lot of trouble.I know doctors can be a little blunt at times but I think it is better sometimes to be a aware of the worst possibilities.I think the odds are in your favor in a big way but it is RCC so we can never let our guard down,so with that said try to relax I think you should be around for a long time to come and give your doctor another chance maybe you being so worried you misunderstood his intentions.Good luck and have a nice day!!!

    Good advice
    As usual, you guys have provided and 'educated'me in such a way. Thank you.

    Those are very valid points, I will take into consideration to change my GP, but I will give him one more chance. :-) If coming months he refused my chest x ray which ordered by my surgeon, I will walk out the room right away,
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    Good advice
    As usual, you guys have provided and 'educated'me in such a way. Thank you.

    Those are very valid points, I will take into consideration to change my GP, but I will give him one more chance. :-) If coming months he refused my chest x ray which ordered by my surgeon, I will walk out the room right away,

    Follow up
    What you are intending sounds perfect to me. I'm sure lime life is spot on - your doc probably explained himself badly and so you misunderstood him. However, if he"s not bothered to make sure you understand, then you probably should go to someone else.
  • foxhd
    foxhd Member Posts: 3,181

    Follow up
    What you are intending sounds perfect to me. I'm sure lime life is spot on - your doc probably explained himself badly and so you misunderstood him. However, if he"s not bothered to make sure you understand, then you probably should go to someone else.

    scans.
    Just to go to the other extreme, I get scans every 3 weeks! Here is a piece of advice. It was not your primary who may have saved your life, it was your surgeon. And if your surgeon wants an x-ray, then who does your primary think he(her) is? Sounds like the two Docs have a personality conflict.
  • Fishknees
    Fishknees Member Posts: 73
    foxhd said:

    scans.
    Just to go to the other extreme, I get scans every 3 weeks! Here is a piece of advice. It was not your primary who may have saved your life, it was your surgeon. And if your surgeon wants an x-ray, then who does your primary think he(her) is? Sounds like the two Docs have a personality conflict.

    I think it is up to you
    I don;t know much about this either. But if I want follow ups sooner I am sure they will be glad to take my money. If I think it is too long and I am worried. I am going to tell them I want them more often. I didn't even have a primary and from all my reading they like to wait. I am going with the surgeons advice and if I want more I will say so. You can do what you want. Don't let those doctors intimidate you. They don't have the cancer.
    Sorry for all the spelling erros but it is late and I can't type or spell.
  • Limelife50
    Limelife50 Member Posts: 476
    Fishknees said:

    I think it is up to you
    I don;t know much about this either. But if I want follow ups sooner I am sure they will be glad to take my money. If I think it is too long and I am worried. I am going to tell them I want them more often. I didn't even have a primary and from all my reading they like to wait. I am going with the surgeons advice and if I want more I will say so. You can do what you want. Don't let those doctors intimidate you. They don't have the cancer.
    Sorry for all the spelling erros but it is late and I can't type or spell.

    Hi fishknees
    Hey I checked your last posting found zero spelling errors ,by the way when I first started I was a little apprehensive due to lack of grammar skills but decided what was more important was being able to talk to people I could relate to,hence I don't care anymore ,so please post away and don't worry about the spelling
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    Hi fishknees
    Hey I checked your last posting found zero spelling errors ,by the way when I first started I was a little apprehensive due to lack of grammar skills but decided what was more important was being able to talk to people I could relate to,hence I don't care anymore ,so please post away and don't worry about the spelling

    Grammar etc
    And you don"t need to worry either, limelife - there's not much wrong with your writing and you"re a good communicator.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    Hi fishknees
    Hey I checked your last posting found zero spelling errors ,by the way when I first started I was a little apprehensive due to lack of grammar skills but decided what was more important was being able to talk to people I could relate to,hence I don't care anymore ,so please post away and don't worry about the spelling

    Grammar etc
    And you don"t need to worry either, limelife - there's not much wrong with your writing and you"re a good communicator.
  • foxhd
    foxhd Member Posts: 3,181

    Grammar etc
    And you don"t need to worry either, limelife - there's not much wrong with your writing and you"re a good communicator.

    grammer
    Your grammer is great. Although you will see that many of us have a stuttering problem.
  • rae_rae
    rae_rae Member Posts: 300
    foxhd said:

    grammer
    Your grammer is great. Although you will see that many of us have a stuttering problem.

    Follow up
    My surgeon only wanted me to have an xray every six months-no CT scans whatsover. I wasn't comfortable with this and went to my GP and talked to her about what I thought was appropriate-she agreed and scheduled my first CT scan last year. Bottom line is you have to do what you makes you feel comfortable. I did a lot of reading online as to what was recommended and what made me feel comfortable and went from there.

    Rae
  • Beingbless
    Beingbless Member Posts: 46
    rae_rae said:

    Follow up
    My surgeon only wanted me to have an xray every six months-no CT scans whatsover. I wasn't comfortable with this and went to my GP and talked to her about what I thought was appropriate-she agreed and scheduled my first CT scan last year. Bottom line is you have to do what you makes you feel comfortable. I did a lot of reading online as to what was recommended and what made me feel comfortable and went from there.

    Rae

    Coming June I will do what is right for me...
    Read the posts, thank you all. I can not be more agree to do what is right for me, I still very regret I did not have any chest x ray prior to my op in feb, because my GP thought i had one last year, so, it was not necessary at all, therefore, he insisted to do it and called it off.

    I will be going back for chest x ray sometime end of May. I will make sure I do it, in fact, after the op, my chest is still not very comfortable from time to time, and a bit shorten of breath. I was not sure whether it is due to low potassium or something else...might have to go back sooner than this....

    I have put on potassium pills right after the op, because it dropped till 2.6 ( normal person should have at least 3.5).

    Talking about grammar or spelling, I probably the worst....haha... I am originally from Malaysia, and I am a Malaysian Chinese. Due to i speak five different languages, English was the last one I learn here in the States during my college years,,,, so, go and figure it out the level of English I have among this group here.

    Again, I appropriate any help I can get from this forum. I wish I discovered this forum prior to my op.

    Thank you.
  • Limelife50
    Limelife50 Member Posts: 476

    Coming June I will do what is right for me...
    Read the posts, thank you all. I can not be more agree to do what is right for me, I still very regret I did not have any chest x ray prior to my op in feb, because my GP thought i had one last year, so, it was not necessary at all, therefore, he insisted to do it and called it off.

    I will be going back for chest x ray sometime end of May. I will make sure I do it, in fact, after the op, my chest is still not very comfortable from time to time, and a bit shorten of breath. I was not sure whether it is due to low potassium or something else...might have to go back sooner than this....

    I have put on potassium pills right after the op, because it dropped till 2.6 ( normal person should have at least 3.5).

    Talking about grammar or spelling, I probably the worst....haha... I am originally from Malaysia, and I am a Malaysian Chinese. Due to i speak five different languages, English was the last one I learn here in the States during my college years,,,, so, go and figure it out the level of English I have among this group here.

    Again, I appropriate any help I can get from this forum. I wish I discovered this forum prior to my op.

    Thank you.

    Shortness of breath
    Just a comment about your shortness of it could 3 other things here first off you had a kidney removed that is a huge shock to the body also don't forget you had surgery and were given anastegia ( I know I just spelled that last word wrong)also don't take this wrong but you are also stressed out which does not help ones breathing normally ,I had issues with my breathing almost 2 months post surgery it is one reason why doctors will sometimes not operate on older patients since the surgery will kill them before the cancer will.Trust me on this one because I have been thru this ,every time I got a headache or a pain somewhere after my surgery I would think the cancer had come back to finish the job so I have learned to relax more over time,so relax and good luck
  • angec
    angec Member Posts: 924

    Shortness of breath
    Just a comment about your shortness of it could 3 other things here first off you had a kidney removed that is a huge shock to the body also don't forget you had surgery and were given anastegia ( I know I just spelled that last word wrong)also don't take this wrong but you are also stressed out which does not help ones breathing normally ,I had issues with my breathing almost 2 months post surgery it is one reason why doctors will sometimes not operate on older patients since the surgery will kill them before the cancer will.Trust me on this one because I have been thru this ,every time I got a headache or a pain somewhere after my surgery I would think the cancer had come back to finish the job so I have learned to relax more over time,so relax and good luck

    Mom also has shortness of breath
    My mom 79 also has shortness of breath, even more after her surgery. She had chest xrays last week and all was ok (or they didnt' tell us any different). If the cancer reached her lungs would it show on an xray? I am not sure. She does have water retention which her surgeon didn't put her on any lasix or anything. She takes homeopathy and her legs do go down but then next day they swell again. I am hope it is not anything in the lungs but just the water. We will see her primary next week. In the meantime it is manageable but she is afraid to sleep. It is so scary.. all of it!
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    angec said:

    Mom also has shortness of breath
    My mom 79 also has shortness of breath, even more after her surgery. She had chest xrays last week and all was ok (or they didnt' tell us any different). If the cancer reached her lungs would it show on an xray? I am not sure. She does have water retention which her surgeon didn't put her on any lasix or anything. She takes homeopathy and her legs do go down but then next day they swell again. I am hope it is not anything in the lungs but just the water. We will see her primary next week. In the meantime it is manageable but she is afraid to sleep. It is so scary.. all of it!

    Mom's condition
    Angela, my Mother-in-law has some of the same problems, but is on Lasix (and a dozen other drugs). She is very much older than your Mom but bearing up well - it's all a matter of attitude. Your Mom is receiving suitable medical care but she might benefit greatly from a bit of help from a clinical psychologist to deal with her overwhelming anxiety which is doing her no end of harm. Just a thought. Sorry you're both suffering so much.
  • Beingbless
    Beingbless Member Posts: 46

    Mom's condition
    Angela, my Mother-in-law has some of the same problems, but is on Lasix (and a dozen other drugs). She is very much older than your Mom but bearing up well - it's all a matter of attitude. Your Mom is receiving suitable medical care but she might benefit greatly from a bit of help from a clinical psychologist to deal with her overwhelming anxiety which is doing her no end of harm. Just a thought. Sorry you're both suffering so much.

    Shortness of breath
    Thank you for the Information and feedback, they are very helpful. I'm In my earlier 40's. Didn't overweight and active prior to surgery. This is not the first time I experienced shortness of breath. I had it twice last year, went to doctor, ran EKG and one time chest X-ray in the early Feb 2011. He found nothing, put me on steroid medication. When it happened the second time, my GP put me on asthma in-haler. but it went away after couple days. I didn't use the in haler at all.

    Lately, it was the day after my kidney surgery in feb, the doctor in the hospital found out my potassium level was dropped till 2.6. He then put me on potassium pills for couple weeks. Even though I went back for post visit, the blood test showed it's Up to 3.6 ( normally range : above 3.5) but no medication I need to take, except take more potassium food in my daily diet. And, I had it couple days ago. But, I'm not sure due to stress...I've back to work this week, the work is almost kill me. I still have 700 emails to read through, and with all the analysis projects on top of my list, the list just like a railroad long...not sure my stress will kill me first before my cancer?! But I feel I'm not able to perform well after the surgery. My brain is not working most of the time.

    Overall, i still not sure what is the main cause for the shortness of breath, the chest x-ray was a year old prior to my surgery. It csn be from low potassium? Or something else,,,So, I was a bit worry...

    My 3 month post op check up is coming up in May. Hope I can find out more.
  • angec
    angec Member Posts: 924

    Mom's condition
    Angela, my Mother-in-law has some of the same problems, but is on Lasix (and a dozen other drugs). She is very much older than your Mom but bearing up well - it's all a matter of attitude. Your Mom is receiving suitable medical care but she might benefit greatly from a bit of help from a clinical psychologist to deal with her overwhelming anxiety which is doing her no end of harm. Just a thought. Sorry you're both suffering so much.

    It's funny, they had her on
    It's funny, they had her on lasix after the surgery but the doctor tells her he doesn't want to give it to her now because she only has one kidney. During the surgery her sugar went sky high and she had troule breathing on her own so they intubated her for three days. Now she constantly says she can't breath ut looking at her she looks like she breaths fine. So I think you are right about the anxiety. She is so afraid to shut her eyes she won't even sleep. I am going to ask the doctor about that, maybe she can see someone who can calm her down. Otherwise I am trying now some chamomile tea tomorrow and see what else can help like some meditation. The poor thing, i feel so bad for all the anxiety you all must have. But i did get good news from the doctor who administers the homeopathy. He says his patients live much longer lives without side affects and less pain and most are not symptomatic. So that made me feel good. Thanks TW.. i am sorry for you as well, but not giving up hope. I know you will be fine just with your positive attitude alone.. :)