CSN Login
Members Online: 6

You are here

Some fantastic news to share!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Some fantastic news to share!

I am overjoyed by the result of yesterday's brain, chest, abdo, pelvis ct with contrast.
"No evidence of metastatic disease"

YES BRAIN, you know they don't scan brain everyday, and for good reason, anyway mine was done, as they continue try to and find the cause of the rising CIA sorry thats a typo CEA. the chin strap, the eye and thyroid patches were proof that ct radiation is damaging if you needed further evidence. well at least i can still type.

As a health tip, i was told to do my scans after intravenous vitamin C, so i had my 60grams and then went for the scan. no contraindications according to the radiographers and the vit C mops up the free radicals caused by the ct. its easy to get the best out of your health system if you become obsessive and a pian in the butt to all you met. i have no regrets about all the questions and demands i make of anyone offering to care for me. its just my way, and i may change it as science and clinical practice evolves.

the scan was reviewed by one of the top radiographers in sydney ken sessel, he owns and operates sydney xray. i offered him a bottle of scotch if the ct was clear and i said i would skull it if it was not. i think he liked the humour.

So in the last 4 months I have had 3 ct's, 2 pets, and one liver abdo ultrasound. so I have a rising cea and as of this test am NED.
I am grateful and relieved, and will keep the supplements and therapies going.
Thanks for all the prayers and kind wishes! They mean alot to me, I think they have helped keep me positive, and that in itself is good medicine. IMHO.

My onc was so happy she cancelled my appointment this arvo and said see you in 5 weeks.
So its open season on alternatives, UKRAINE, etc etc etc so many to try, but i will be guide by the functional gp who are pushing some seriously alternatrive cancer therapies, yeah like diet, clean water, rest, exercise, supplements and ENEMAS. OK some of the supplements are a bit far out, and even i would like some more detailed methods of operation. it you want something tested, just send it to me. only joking of course!!!!

Also all my functional blood and urine were very good. I am now adding one drop of iodine, and a sublingual b12.

Dr Ian retested indicans test which was clear yesterday. still some bubbles meaning a little more liver detox
, so another thermaphase detox for the next few weeks. Also starting back on chelation.

Tomorrow I am seeing naturopath 7 and 2 about my genetics test results which were reviewed and discussed at the genetics conference last weekend. I was not allowed to attend, but my DNA was. How ironic about my genetics and its implications. Darren is also helping my git ie my gut with ph and capacitance cell testing. I have been back on progurt, pink sea salt, lemon juice and traditional diet. Darren is impressive, I have high hopes which I hope my ongoing health reflects.

A great day, when it was al said and done, the consult with Dr Ian was illuminating, off to copy 300 pages of. a Chinese herbe medicine practioneer manual.

My goal is to be an informed patient with regard to the therapies I am using to pursue health. I have looking for a good english version of a TCM book, I have found a great one, and i cost less than $20 to bind and photocopy. I am getting real fast at copying.

While i was in the city I did an hours work, ouch! I still rented out a room to a lovely french couple and chatted with some of our tennants. they have not seen me for months. They said its was nice to see me, i said i am glad we are all still around. they laughed.

I went to the movies tonight to celebrate with an old school friend to see the the hungerford games. the plot of the movie reminded me a little of cancer patients fighting for survival.

I am still in cloud nine and am planning to stay there, but its late and I must sleep.

hugs,
pete

ps I asked about the Msevits it was 14.9 up by 5 because of the bone bone around the brain. but the scan had to be done, glad i have found the only low dose ct scanner in sydney, its only the new software that helps them build the new images. great technology, i hope it does not compromise clarity, time will tell. next time you get scanned ask for your radiation score and see how it compares. see the link below if your interested in the science behind reducing you risk of getting a secondary cancer for too many old technology ct scans. if we all insisted on low dose, how long do you think it would take them to upgrade ct scanners. not long i bet. i use the power of my discretion to reward medical innovation. i have gotten lower dose scans and the best radiologists in the country. that the benefit of finding leading edge cancer specialists, they work togther. soon i will be getting into stem cells for colorectal, but i mention that if and when i need them.

http://www.auntminnieeurope.com/index.aspx?sec=sup&sub=cto&pag=dis&ItemID=605894

the normal chest abdo pelvis triple phase with contrast is about 8msevits from memory, i documented this on my blog a from months ago.

pps and they confirmed i have a brain. so the scan was good news on a couple of counts.

janderson1964
Posts: 2215
Joined: Oct 2011

That is awesome. I am happy for you and relieved as well. I will keep you in my pryers.

Minnesotagirl
Posts: 141
Joined: Sep 2011

Pete,

That is great news. Isn't it wonderful to celebrate life! Continued healing and blessings to you from Minnesota~

"Minnie"

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

I like the last line in your post.
But what I REALLY like is hearing this great news!!!!
Keep up the good---great!---work Pete. It's working for you.
Take care and sweet dreams on Cloud 9~

toyfox's picture
toyfox
Posts: 158
Joined: Apr 2011

We are both so happy for you. Nice to hear good news.
To many sad posts to read. Will continue to pray for
you and others on this board.
Hugs Linda

barbebarb's picture
barbebarb
Posts: 464
Joined: Oct 2011

I don't post much, but am a stage iv colon cancer w/meta go lungs and liver. M recooperating from left lung lobectomy and wedge, due for 2nd surgery once left side heals. I admire your research and out of the box thinking and challenging!
Great news and prayers to u and family towards continued health!
This board is full of wonderful, supportive people and you all help and inspire me!

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

That must be the "mass" they found in between your ears, LOL!

It's good to know they found it - we were all getting a little worried:)

Ok, enough pokin' at you today...great news and congratulations on the scans.

-Craig

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

And the statement of Sundanceh made me laugh...

So relieved to read some good news :-)

A big hug from Germany
Petra

lauragb
Posts: 370
Joined: Aug 2011

Hooray and yahoo, Pete! I also found out a local rectal cancer survivor friend got clean scans yesterday too! Yippee. Love when there is NEDness going around!

Yep, Pete, you must drive some docs crazy. LOL Keep at it. I didn't know I could ask for a radiation score. I like that idea.

Light all around.
Laura

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

This is such good news. I'm glad all your research and very determined attitude is paying off. Please be sure to rest that brain every once in a while so it won't be burned out on that next scan.

Luv Ya,

Wolfen

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

I always enjoy lerking and reading your posts... but today was the best!!!

congrats.

I'm kinda new here, but glad to be here to read your awesome news.

Keep sharing with us!!!

my best.

joe

relaxoutdoors08
Posts: 520
Joined: May 2011

Pete,
Great to hear the good news. Happy for you and your family. Keep the faith and wishing you best in the months to come. My scan is in two weeks and I hope I too can share good news.
I just finished listening to the Shape your Plate for Colon Cancer Talk online and I plan to continue the aspirin, and make more changes in my diet. Keep sharing and stay positive.
NB

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Pete, this is awesome news. Do what you need to do. you have a passion to live and we should all be doing all we can to do the same. We all don't have the means to go to the extreme, but exercise is free and eating healthier is a choice. Let's do it.

northernlites
Posts: 96
Joined: Jun 2011

Pete,
I am smiling so much right now... I am so happy for you. You inspire me so much. I saw my first naturpath dr today... very impressed.... lots of things she discussed is alot of the information you had given already. Let us know what the genetics test show. I am interested to know if you have a missing pms2 gene mutation, which is what i have (lynch syndrome).

Tessa

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Dear Tessa,

i am smiling also. what a happy bunch we are considering we have cancer.
we will be the happiest cancer forum on the planet. its a glorious sunrise here, and its 7.40am and i have to get the wife and kids up for school and start my juicing and supplments. takes about 2 hours each morning.

i really hope your naturopath dr is the best in your area, what i do with every health professional ( includes doctors, surgeons, tcm, naturopaths, functional gp etc etc ) is understand where they a coming from , their bias. is the care they offer me, getting results. If they give me hope that counts for alot. I don't won't to loose a day to cancer related depression, as i still cannot get a guarantee on how many more days i have got.

am i getting healthier ? yes or no

my naturopaths were a good starting point, but with the first sign of recurrence i went straight to the functional gp's. now i do 24 hour urine samples and measure zinc, etc etc.

what i have shared here is just what i have been taught by naturopaths and functional etc
over time i also have started buying my supplements over the internet from places like iherb or puritans or life extension. getting some alternative support does not have to break the bank.

I have been so challenged by the huge differences between conventional and alternative that i then have done my research about each of the recommendations.

so far i have not found any negative evidence for the advice of my naturopaths and functional gp's. the only issue and its real is I am on so my products its a challenge in itself.

I am trying to find a balance, until my rising cea goes back to normal I feel obliged to do all i am doing, as some of it maybe helping.

if i do have a tumour growing somewhere, and face it , its likely, the little sucker is growing real slow, so slow they cannot find it yet.

so i am on the ned, wagon. every quarter getting scanned looking for that gutless little tumour that won't even show itself. I think it knows whats going to happen to it, if it shows up.

i will be straight to the liver or lung or brain surgeon with a box of chocolates for the receptionist and a bottle of scotch for the surgeon. and i will ask him to cut the little sucker out ASAP and to take a big margin as well.

I will summarise the results of the genetic test so, i will email again fitgenes and ask them for the pdf version and i will be put it on my google docs for you to have a sticky break at. the report tells half the story, the 2 hours of naturopath consults discussing my health and the genes are recordings i place i value on. i am contemplating putting them up as well.

so then if others start getting genetic profiles done we might be able to share what we learn a little more effectively. at the moment i feel like i am the only one doing the molecular and the genetic tests here. and we are the biggest colorectal forum on the planet. surprising, but i guess thats the way it is.

in future the first test every cancer patient will get will be a genetics profile. mark my words. why wait the 10 years for evidence based medicine to get that into clinical practice. it costs me $395 for the test and them so far 2 x $200 for the consults so far.
some i get back from health insurance.

but my naturopath 7 darren went to the genetics conference, he is the best. no one else in sydney went. no doctors. do you get that. no doctors, no doctors, no doctors. that speaks volumes. our doctors are ignorant of genetics, our genes, their mutations and what epigentic changes we can influence in our lifestyle modifactions.

i am saying for me, is i want to help conventional medicine get just one more good result for me. convnetional is too slow, over regulated, having government policies and procedures that slows the pace of medical innovation. we have our backs to the wall, we have the internet and we have each other.

ask your naturopath about genes, your gene pms2 gene, i would be interested in the advice. see if he advises heavy tumeric supplementation as a way of killing polys on contact. you don't even have to get tumeric into the blood supply, its acting straight in the gi tracket.

hugs,
pete

northernlites
Posts: 96
Joined: Jun 2011

Hi Pete,
I did ask my Naturopath about the pms2 genes.... She said she has done research and found that a few of her patients have this mutatiion but has never had cancer. She explained to me that these are patients that have been with her for long periods of time and she has had them on specific herbal remedies for other reasons. She beieves that these long term patients have benefited from her herbal and vitamin remedies therefore never getting cancer. She is a huge fan of tumeric and milk thistle. I was already taking this after my colon surgery. She also put me on 5 liquid drops of rosemary under my tongue 3 times a day. This is suppose to cleanse the kidneys and liver of any toxins. Naturopath thinks I have clogged my kidneys with too much unnessary vitamins... she wants me to consider an IV of specific vitamins and minerals that my body is missing. Zinc is one of them....

Oh.... and she said I was a miracle! I really don't have alot of organs left in my body. My body has had a hard life! she wants me to assist her in writing a book..."Living without Organs".. Sounds crazy i know!

Tessa

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

So happy the scans came back so good that is great to hear. Praying all stays well. Jeff

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Well, that's lovely to hear! I'm so glad for you!

*hugs*
Gail

Erinb
Posts: 295
Joined: Apr 2010

That is great news. So happy for you!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks

hugs,
pete

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

From your Head to your Toes, it sounds like it's all good news...
Keep it up Pete!
-p

coloCan
Posts: 1956
Joined: Oct 2009

If you consider how much time our docs spend at their "practice" on a daily basis, all the stories they hear,stuff they see, stress,sorrow,etc and then if they have a family to tend to when they get home, where do they get the leisure to keep abreast of the never-ending flow of research being published?

As for knowledge being power--thats only true if that knowledge is acted upon.....just don't get paralyzed into inaction due to too much knowledge.

Wish i had your energy!!!!!

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

Dave “e-Patient Dave” deBronkart is a VERY good source of information and an advocate for patients being part of the conversation as far as our care is concerned.

coloCan
Posts: 1956
Joined: Oct 2009

My onc, who's a younger Chinese lady, acknowledged she's not up on alternatives,etc; my urologist, an older Indian man, is ,so i run stuff by both of them. I also have all my docs give me input on my scans from their specialty perspective.....

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

YEA!!!

Knuffels, Kathi

Cathleen Mary
Posts: 827
Joined: May 2011

That is really wonderful news, Pete. Celebrate. I am so happy for you and for your family.

Blessings galore!
Cathleen Mary

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

NED is wonderful!

My CEA is slightly elevated, and it doubled in one month. So we were going to wait 2 weeks and re-check. In the meantime I had some scary swelling problems from abdomen to feet. So they re-checked all my labs and sent me for another CT (I just had one the end of January that was clear). My CEA dropped from 10 to 7 on its own - something it has never done. I did have a nasty cold/flu bug that I fought for a full month, and was at the end of it when my CEA showed up at 10 (was 5 the previous month). So we think maybe it was that bug that made my CEA spike. My CT was clear too! So I have bought another month of no treatments! I haven't had any cancer treatments for over 3 months now, and will be over 4 months of no treatment by the time I see my onc again. My CEA is elevated - it used to drop under 3 when I was NED. But all the chemo and radiation for 2 1/2 years did a lot of damage to my body. It may be that my CEA won't go down again. Or it may be that there is just enough cancer hiding out somewhere to raise it, and one of these days there will be a tumor large enough to find on a scan again. For now, I'm enjoying NED right along with you. The oncologist wants me to see my primary to follow up on the swelling issues. It may be my heart of something else. It is much better, but I still have issues with my feet and lower legs. I've been waiting an extra week for it to clear up, but no go... So I'm going to call the primary tomorrow and make an appointment for next week.

Maybe something odd is causing your CEA to remain higher now too - something other than cancer. May you remain NED a long, long time!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

ned for both of us sounds good.
I hope so.

the power of this crazy little inflamation marker, i feel great and thats my focus.
I hope your ned lasts forever, that each day you heal and gain health. thats all i am trying to do, albiet a little fast tracked.

use your ned time wisely, i am going hell for leather on the alternatives. thanks for sharing your story so far. its a great story.

it gave me a lift.

hugs,
pete

ps if you get the chance find the worlds best naturopath for you, ask them WHY regarding all your outstanding health questions. I have been amazed how easy it is to take a little lemon juice, or hymalayan sea salt or some probiotics. these treatments have worked wonders for my general health. sometimes the cheap and natual way out performs slow and toxic conventional therapies. i am sorry i am just so alternative these days. i like to believe in the healing power of our bodies and that we can really work with mother nature as long as we stop poisoning ourselves, which to be honest in our urban environments is a challenge, but not impossible.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Well, that's just plain amazing!

*hugs*
Gail

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

its easter, i am still thanking mr big. and thats not me.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

its easter, i am still thanking mr big. and thats not me.

hugs,
pete

Subscribe to Comments for "Some fantastic news to share!"