any other men not able to ejaculate after radiation?

I guess I was not prepared for this. I have finished al my treatments including 2 rounds of chemo and a radiation series. But being left unable to perform is shocking and hard to deal with. I am also living with a bag and neuropathy, and now facing depression. But I guess Im supposed to rally in the joy of just being alive right?

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    GB:)
    Hey man, let me talk to you this morning....I see you heading for the ledge and don't want you to jump off of it today. I'll tell you why, because I can wholeheartedly relate to what has just happened to you.

    And you're right, they don't put this info "in the brochures" do they? In fact, they just don't tell you about it all - they wait for you to bring the problem to them, by that time, it's all over but the crying.

    Your question..."But I guess Im supposed to rally in the joy of just being alive right?

    I know you're hurtin' this morning and I hear it in your words...but let's take a look at this from a couple of different angles and from my own personal perspective as someone who has walked directly in your shoes. And for those that know me here, I don't bull$hit you about anything - not ever - and certainly not starting this morning.

    You need help and I'm going to try and help you.

    First, you're not ready to rally this morning, but we're going to start coming to terms of this by starting by saying YES, the choice of being alive overweighs the urge of having an orgasm, any day of the week - or twice on Sundays.

    If you strung out all of your 'cumulative moments' in your lifetime, it would only equate to a handful of minutes...those minutes pale in comparison to the hours, days, weeeks, months, and yes, even years that you will have as a result of the treatment you received.

    It's a horrible trade, but ask yourself this question right now and for always - "If you had it do differently all over again, would you make the same decision?"

    Today, you might say no - but I can assure you that over time that the "Tomorrows that you gained Today", will change your perspective and you will agree that it was the right thing to do. It will take some time, but you will come around to this way of rationalization.

    It's not what either me and you wanted to do - but we felt we had to do to extend our lives. It sux...but there may be good news.

    And let's switch gears and talk about this next.

    First, as a man, our equipment and the ability to have it functioning is one of the biggest things that we equate our manhood to and what it represents for us. It's not so much at even being able to use it - but just knowing that it still works correctly and we CAN use it.

    It is horrible when we try to get it going and find that it won't come to attention - it's more than physically debilitating, it messes directly with our heads and self-esteem and eats away at the inside of us. The mind is still alive with 'erotica' but we can't translate it downstairs to get the big fella's attention.

    The reason is physical of course...the radiation burns everything on the inside of our unit. My doctor explained it to me back then....he said the radiation goes in the hips and our backside and has only one EXIT POINT for a man or woman, but the paths are a little different, but the women get hurt as much as the men.

    So, the radiation comes out through your unit and burns all of the tissue up in there, like one of those forest wildfires burning out of control. The penis simply is destroyed and is incapable of an erection...that's the simple logistics of it.

    More troubling is that you may find that you have trouble urinating now or in the future - it might not be the same as it was, there could be some pain and burning....we've radiated, think bad sunburn to your the genital area and inside.

    Now...

    There is hope on the horizon, GB, but you're going to have to be a patient man, very patient. This sensitive area has been damaged, but over time, will begin to heal itself, slowly and steadily.

    Don't expect too much right away, the healing can take time....it took me about 2-years...that's a long time for sure, but the good news is you might get some response back.

    You will know as time passes away - if the penis does get hard, it might hurt a little or feel funny - and if you were able to ejaculate, that might hurt or feel funny too.

    CIALIS is a good drug that you could try after you've given this some time to heal...you can have a bite to eat on this drug, you can have alcohol in moderation, and it will not interfere with the drug's ability to get the blood flowing in that critical area....regular Cialis works up to 48-hours and you can even get a "2-fer" during that period if all goes well.

    I tried all of the ED drugs, but this was better lifestyle suited. Although, you could try the others too, to see which worked best for you. Now, needless to say, you won't be the stallion that you were in your earlier years.

    But, the big thing would be that it could still 'happen' for you - and that's still a nice physical release and will be good for your psyche as well....the real victory comes there.

    You may not last as long either - the days of being a marathon man are over, now you can be a minute man, LOL! Your gal will still be okay with this as we know there are other avenues that we can pursue to help them along.

    I guess what I'm trying to say, GB, is that they did not tell me either, they did not warn me of anything - they did not tell me that radiation would sterilize me or any of that. They just did what they did - and like anything, I have to live with it the rest of my days.

    But, sex isn't the only thing in life - you learn to share your love another way - you will shift values and put your emphasis on something else...but from time to time you can still hang your hook and get a nibble - and that's worth it, when we're talking about one's life.

    You don't say how old you are.....I was about 43 then, so it was devastating as you said....I really do get it, man - I really, really do! I hated it for me and I hate it for you....but give it time and you just might ring the bell one more time.

    I'll leave you this line, that's going to make you smile today:

    It was Toby Keith who sang the phrase...
    "I may not be as good as I ONCE was - but I'm as good ONCE as I ever was."

    Keep this phrase in mind when you're feeling down...it will get better.

    Welcome to the board and it was great talking with you this morning:)

    -Craig
  • tommycat
    tommycat Member Posts: 790 Member
    Hello
    I've heard this before from some of the men. For most it does get better, but not right away.
    Hope that in time things get as close to normal for you as possible~
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    i had a few issues down below with cimetidine
    hi glazebear,

    firstly welcome to the board. and no point beating around the bush.

    I know where you are coming from, our bodies are pretty fragile in some areas.

    our treatments cause all sorts of issues, and most unexpected. someone can tell you about neuropathy, but until you almost kill yourself driving you don't really understand it.

    discuss what you are experiencing with your care team, at least put them on notice that you want some help. that might just be a counsellor or some therapy to address your problems.

    the bag you should get used to, most of us do, sooner or later. the neuropathy well thats a shock as well, but it gets better for most when chemos finioshed. mine is 90% gone, and its only some numbness in my feet and its been a year since i finished my folfox chemo.

    at some point in time a rally in the joy of life might be in order, but I would not rush it. take time to discuss and get help for your issues. we are a good starting point.

    I have been on the board for about 18 months and yours is the first question like this, so its not common.

    Take heart that our bodies have remarkable healing abilities, we just have to help them a little and being a colorectal cancer patient after major surgery is where we most of us have been at least once if not more.

    hugs,
    Pete
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Glazebear
    Not being a guy I can't say I have experienced the shock and depression you face at not being able to perform what was once a very basic process. But listen to Craig (Sundanceh), he is wise in his life experiences.

    As for the bag, I have one so can relate to the changes in lifestyle you feel it brings with it. You don't mention how long you have had it, but hopefully as time passes you will find it less offensive and realize that you can lead a very normal physical existance with it.

    I hope that you will find a counselor who understands the anxiety associated with not only being given a cancer diagnosis but also those which come along with the treatments and just continuing to live.

    I won't say you should 'rally' but hope you will. Life has changed drastically for us all, and we each must find that which makes having more days, weeks, years worth more than what we have lost.

    Hugs and please keep posting. We will try to help.

    Marie who loves kitties
  • tommycat
    tommycat Member Posts: 790 Member
    One more thing
    You may want to check in with the Anal Board...those who have/had that cancer have many of the same challenges as those with rectal cancer.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Never did Radiation
    So I can't say. There have been times when things weren't working well then other times when it seemed to be working overtime!
    Look, you've been through a lot. It takes time to get through things. Give yourself a break and work on getting the other parts working right. I'm sure the other thing will follow suit and make up for lost time!
    :-)
    -phil
  • RickMurtagh
    RickMurtagh Member Posts: 587 Member
    Pecker
    It has never worked right since. NEVER. Not once. Not even pretend.

    Rally in the joy of JUST being alive? No, it sucks, but if the situation does change, huzzah! If it does not, well there are worse things.

    Sorry to hear of the complication. My "team" did let me know of the possibility of complications, anything ranging from temporary discomfort to whoops it fell off. As for me I am comfortably between those two, even if more toward the extreme.

    Comparatively, the bag and neuropathy are old friends I just pend my time with.
  • Kenny H.
    Kenny H. Member Posts: 502 Member

    Pecker
    It has never worked right since. NEVER. Not once. Not even pretend.

    Rally in the joy of JUST being alive? No, it sucks, but if the situation does change, huzzah! If it does not, well there are worse things.

    Sorry to hear of the complication. My "team" did let me know of the possibility of complications, anything ranging from temporary discomfort to whoops it fell off. As for me I am comfortably between those two, even if more toward the extreme.

    Comparatively, the bag and neuropathy are old friends I just pend my time with.

    x2 on this one...
    Ya I was told before radiation that I most likely would be unable to father children. (boy what a understatement!}
    Mainly thought they meant chemically, has been 1.5yrs since I had radiation/bag ect. Still have have some the performance issues/nuerophathy ect. And now that I'm back on chemo things arent getting any better either. But hey, I'AM STILL ALIVE!

    Have'nt considered trying Cealis ect but can say marijuana has helped a bunch in that dept as well as some of the other side effects.