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iluvmms's picture
iluvmms
Posts: 134
Joined: Aug 2009

Hello all. I have not posted lately, but read almost daily.
For those of you who do not know me or remember me, I was diagnosed with Stage 4 CC with mets to liver in July of 2009 at the age of 38 with an immediate colon resection that month. I then did 4 months of Folfox with Avastin. I was sent to Miami and was told I could not have a Liver Resection because of the location of the largest liver met. It was by the portal vein. I was sent to MD Anderson for a second opinion (Texas and I live in SW Florida). The agreed no liver Resection, just chemo. On my insistance I went to Moffitt Cancer center in Tampa, and they agreed, no liver resection yet, but wanted to try the THERASPHRES. I had that done in November 2009, and to my surprise within 3 months on my next visit, scans showed all good for surgery. I had liver resection in April of 2010. They took about 55%. I just went back for my checkup. I go every three months. I have been NED everysince resection in April 2010. Almost two years since liver surgery and 3 years since diagnosis. My CEA is 1.1 . Which is wonderful news.

I firmly believe if not for the THERASPHERES, I would have never been a candidate for liver resection. There are two types of these radioactive beads. There are Theraspheres and SirSpheres. I think there is a huge difference in the two. I know several who had the SirSperes, with not good results.

There is hope and I am still dealing with alot of side effects, but as long as thats all, it all good. I have Chemo induced RA now, with a lot of neuropathy.

Minnesotagirl
Posts: 141
Joined: Sep 2011

WOW, WOW, WOW...
What a great comeback story this is...so happy for you.
I love that you were your own advocate and didn't except "No" for an answer. I do not have cancer in my liver but certainly love to hear that there is hope/cure for Stage 4's out there. Good for you and God's blessings to you in the future.

Minnesota hugs to you~

"Minnie"

janie1
Posts: 753
Joined: Apr 2011

Thank you so much for sharing that. Glad you were persistent. Surprised MD Anderson said only chemo.
Do you mind sharing what you know to be the difference between Thera and Sir Spheres.?
Also, did you resume chemo (and for how long) after theraspheres?
Do the radiation beads stay in the liver? How many cases does Moffitt do with the t-spheres?
Any, and all info is very much appreciated. While everyone is different, there are many here with mets to the liver.
Thank you again....and again!!

smokeyjoe
Posts: 1428
Joined: Feb 2011

Always wonderful to hear great news ... what a great outcome for you :)

sdp's picture
sdp
Posts: 181
Joined: Jan 2012

Hi,

I have a similar predicament. Dx31 dec 2011 - sigmoid colon cancer with
Mets to all segments of liver , largest being 13 cm and another 11 cm and varuious others
Ranging from 2 cm to 5 cm.

After two months of erbitux and folfox4 - had partial response,
Liver mets shrunk 50 % , but still not resectable. Restarted earlier chemo
Regime - in fact first one today in the next batch of chemo.

Someone, did mention sir spheres but I am in India and I am doubting
That anyone here has a good experience at giving it. I don't want it to leak
And get into other complications.

If u an share in more detail the treatment and response tothe chemo after your
Two - two months of chemo I would appreciate. How many times did u do the
Thera spheres treatment ? is it better to handle then chemo ?

Also,which surgeon did the resections of the primary tumour.

Is there any plan for a liver resection etc ?

Kindly share the details as it may be helpful to me.

Thanks

Shitul

sdp's picture
sdp
Posts: 181
Joined: Jan 2012

Sorry janderson !

sdp's picture
sdp
Posts: 181
Joined: Jan 2012

Sorry janderson !

sdp's picture
sdp
Posts: 181
Joined: Jan 2012

Sorry janderson !

Also I meant who did the Liver resection?

Name of surgeon and facility if u can share.

Regards and I hope u r cured !

sdp's picture
sdp
Posts: 181
Joined: Jan 2012

Sorry janderson !

Also I meant who did the Liver resection?

Name of surgeon and facility if u can share.

Regards and I hope u r cured !

janderson1964
Posts: 2215
Joined: Oct 2011

Great story. Thanks for sharing.

peterz54's picture
peterz54
Posts: 343
Joined: Feb 2012

was the liver tumor location, portal vein, the only reason given for not doing resection?

I ask becuase my wife has large liver mets and has been doing chemo since December and has yet t be evaluated for resection. that will come in May or June.

iluvmms's picture
iluvmms
Posts: 134
Joined: Aug 2009

It was due to the Portal Vein location and the number of large tumors, widespread.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Thanks for sharing...and congratulations!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

thanks for sharing it.
a little hope goes along long way.

hugs,
pete

iluvmms's picture
iluvmms
Posts: 134
Joined: Aug 2009

Dr Yeatman and Dr Meredith at Moffitt Cancer Center in Tampa Florida are the Doc's that did my resection. Dr Shridhar is the one that did my Therashperes. I am not sure the exact difference between the two, but according to the Dr, there is a BIG difference. The SirSpheres I believe you do 2 doses for each lobe.
The spheres are gone once the resection was done.

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

Hope is all we have, everyday.
This story gives us all Hope.
thanks, Marjan

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