ct tomorrow

adobe
adobe Member Posts: 72
in Kidney Cancer #1
Tomorrow - First CT since trying votrient, then nexavar. Off both drugs now due to side effects. Will find out tomorrow what to do next??? It has been an up and down medication
cycle - hoping that it levels out.

Comments

  • cww71964
    cww71964 Member Posts: 97
    #2
    ct scan
    My prayer for you is that the scan comes back clear and there is no need for you to take anything else.

    Health and happiness,
    Wayne
  • DogRescuer
    DogRescuer Member Posts: 52 Member
    #3
    wish
    Wishing you clean scans for tomorrow. Until then keep your mind off everything, watch lots of movies and be extra nice to yourself.
  • adobe
    adobe Member Posts: 72
    #4
    cww71964 said:

    ct scan
    My prayer for you is that the scan comes back clear and there is no need for you to take anything else.

    Health and happiness,
    Wayne

    thankyou
    I am keeping busy, but still counting the hours! So nice to have this site for encouragement!
  • adobe
    adobe Member Posts: 72
    #5
    DogRescuer said:

    wish
    Wishing you clean scans for tomorrow. Until then keep your mind off everything, watch lots of movies and be extra nice to yourself.

    Watch A Movie!
    I like that suggestion! Seen anything good lately? Thankyou
    for the wishes!
  • Texas_wedge
    Texas_wedge CSN Member Posts: 2,798
    #6
    adobe said:

    Watch A Movie!
    I like that suggestion! Seen anything good lately? Thankyou
    for the wishes!

    Drug therapy
    One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.
  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #7
    Texas_wedge said:

    Drug therapy
    One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.

    Dig in there Adobe. We can beat this thing. Hang tough.
  • adobe
    adobe Member Posts: 72
    #8
    Texas_wedge said:

    Drug therapy
    One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.

    Comforting Sharing of Information
    Thanks a bunch Texas, it is 8pm here and we are leaving at 3am for a 9am appt. in San Francisco. I will be thinking about your encouraging word as we make the drive. Thanks-Adobe
  • adobe
    adobe Member Posts: 72
    #9
    foxhd said:

    Dig in there Adobe. We can beat this thing. Hang tough.

    Hanging Tough
    Thanks,foxhd, I am digging! But, will be up early, come out, and face the day!
  • jam66
    jam66 Member Posts: 55
    #10
    adobe said:

    Comforting Sharing of Information
    Thanks a bunch Texas, it is 8pm here and we are leaving at 3am for a 9am appt. in San Francisco. I will be thinking about your encouraging word as we make the drive. Thanks-Adobe

    Good thoughts sent your way....
    Good luck tomorrow, Adobe. Are you going to UCSF? My son goes there...not for kc, but for other kidney issues. I really like everyone there.
    Anyways, sleep well. Thinking good thoughts for you......
  • Texas_wedge
    Texas_wedge CSN Member Posts: 2,798
    #11
    jam66 said:

    Good thoughts sent your way....
    Good luck tomorrow, Adobe. Are you going to UCSF? My son goes there...not for kc, but for other kidney issues. I really like everyone there.
    Anyways, sleep well. Thinking good thoughts for you......

    CT scan results
    Can't wait to hear some more good news.

    Think also of the inspiring exploits of our poster boy on MDX-1106 - that's enough to put anyone in good heart.
  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #12
    Texas_wedge said:

    CT scan results
    Can't wait to hear some more good news.

    Think also of the inspiring exploits of our poster boy on MDX-1106 - that's enough to put anyone in good heart.

    Yeah, as TW says, "Our MDX boy can put everyone in heat."

    What?.. oh, nevermind.

    Seriously, Good Luck, Adobe!!
  • adobe
    adobe Member Posts: 72
    #13
    jam66 said:

    Good thoughts sent your way....
    Good luck tomorrow, Adobe. Are you going to UCSF? My son goes there...not for kc, but for other kidney issues. I really like everyone there.
    Anyways, sleep well. Thinking good thoughts for you......

    jam66

    Thank you for sending good luck, and my luck was good yesterday. I did not go to UCFS=a super great place to go!! I happen to go to CPMC. Stay in touch , this is a great site!
  • adobe
    adobe Member Posts: 72
    #14
    jam66 said:

    Good thoughts sent your way....
    Good luck tomorrow, Adobe. Are you going to UCSF? My son goes there...not for kc, but for other kidney issues. I really like everyone there.
    Anyways, sleep well. Thinking good thoughts for you......

    jam66

    Thank you for sending good luck, and my luck was good yesterday. I did not go to UCFS=a super great place to go!! I happen to go to CPMC. Stay in touch , this is a great site!
  • adobe
    adobe Member Posts: 72
    #15
    foxhd said:

    Yeah, as TW says, "Our MDX boy can put everyone in heat."

    What?.. oh, nevermind.

    Seriously, Good Luck, Adobe!!

    MDX BOY
    You are working MDX Boy, sending your strength to all of us! Your vibes worked for me, I had good ct results yesterday, no new mets, existing mets the same. Sending same strength back to you!

    ADOBE
  • adobe
    adobe Member Posts: 72
    #16
    Texas_wedge said:

    Drug therapy
    One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.

    Thankyou
    Read your info many times about the drug effects. Very encouraging, since when I am not taking something I get quite concerned about what is stopping the disease.

    Now, about YOU! We are all here with you, and we all need you to keep us on on track- so while you are taking care of yourself, do not forget about all your friends out here, we need you!
  • adobe
    adobe Member Posts: 72
    #17
    Texas_wedge said:

    Drug therapy
    One comfort, adobe, is that it's not too clear what the latencies are between administration of these drugs and their beneficial effects. You might have gained a lot of benefit already and may continue to do so even after having come off the meds. Effects can be cumulative and can be delayed. Also, if the drugs have been working they've given your immune system a potential helping hand. Coming off them then cuts the side-effects that have been undermining your immune response meantime and allows it to resume the fight against a weakened enemy. So, both the Votrient and the Nexavar may have been of use. I sincerely hope so anyway. You could watch 50 : 50 which I hear is good but maybe a good bit of old Laurel and Hardy might be more salutary.

    drug Therapy
    Always appreciate your information - very comforting about the the benificial effects of these drugs, and the that the effects can be cumulative and delayed. Laurel and Hardy, thanks for reminding me, I like them and my husband Loves them!!
  • Texas_wedge
    Texas_wedge CSN Member Posts: 2,798
    #18
    adobe said:

    Thankyou
    Read your info many times about the drug effects. Very encouraging, since when I am not taking something I get quite concerned about what is stopping the disease.

    Now, about YOU! We are all here with you, and we all need you to keep us on on track- so while you are taking care of yourself, do not forget about all your friends out here, we need you!

    Thanks
    Thanks adobe, that's a charming message and I shall remember it.

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