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Finished treatment for brain mets

taraHK
Posts: 1961
Joined: Aug 2003

Hi All,

Just want to let you know I have finished my treatment for brain mets -- hoorah. Hope no-one else in this group is ever in the same situation but just FYI: I had whole brain radiation (mine was spread over 15 sessions), then a break of about 2.5 weeks, then stereotactic radiation (similar to cyberknife, xknife, etc) to the four lesions. That was a one-off procedure. Not a pleasant one (the head has to be very stable). I had some unpleasant side effects from the first, whole-brain radiation (bit clumsy, short term memory --even worse than normal! - and I was "dyslexic' when typing -- that was upsetting. Oh, and I lost my hair -- in clumps. But all those issues have resolved now (they said 2-4 weeks and that was about right). Well, all except the hair!

I resumed chemo around the same time (!) -- after a delicious 4 month chemo break. I am on FOLFOXFIRI again -- but this time with Avastin. Just finished cycle 2. So far so good.

My sister came to visit me for 2 weeks which was so wonderful.

Best,
Tara

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I don't know where I was that I didn't know you were going through so much.
I'm so glad that your radiation treatment are finished. Thank goodness for your sister and you to be with each other for two weeks, how wonderful.
I'm glad it's so far so good on the chemo, keep it up!!! (the doing good!!!)
Winter Marie

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Tara...congratulations! You have accomplished so much! I remember your post when you first told us about the diagnosis and you were so upbeat and positive about your treatment and future. I gotta say....I am soo proud of you! And so glad you got to spend time with your sister!

Big hug, Gail

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Big hugs

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear tara,
you have been through the ringer, thanks for sharing your treatment.
i hope your treatments help.
for what its worth i remember a few of the alternatives claim to cross the blood brain barrier, now that might be interesting as chemo does n't from what i understand.

i cannot remember which alternatives they are might be avemar, or artemisinin. i am on so many they just all blurr together and the file and documentation is daunting. but if you ever start looking at the alternative universe pm if you like.

its just lovelly to hear from you. stay well.

hugs,
Pete

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I applaude your strength to consistantly fight with tooth and nail.....every break and respite you receive is so deserved...You are a true warrior....I wish the very best outcome for you.....love to ya...Clift

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

that with no doubt you are going to win!.
Praying for you.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Wow Tara---I did not know or had forgotten you had brain mets. What a diagnosis!!! Keep doing w/e it is you're doing because you are doing a GREAT JOB!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

WoW.... I am so glad to hear from you. I have been wondering about your status. Sounds like you are kicking butt....AGAIN!!! You are such an inspiration...real talk girl!! Getting it in the brain scares the crap out of me and you just showed me its a battle that can be won. You rock!! I can't tell you how good I feel about your results. Thanks so much for sharing. Take care.

Jennie

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Hey, Tara.

Congratulations on making it through all that! I'm glad you got to spend some time with your sister.

*hugs*
Gail

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

whoa that's a lot. Lots of love and hugs!

Leslie

Annabelle41415's picture
Annabelle41415
Posts: 6549
Joined: Feb 2009

Glad that your radiation is done with and hoping that you will get through the chemo will little to no side affects. You have been through so much and wish the best outcome for you. Thanks for the update.

Kim

buckeye2
Posts: 428
Joined: Jul 2011

Wishing you some peaceful treatment free days ahead. Lisa

sasjourney
Posts: 395
Joined: Jul 2010

Great to hear from you and so glad that the treatment is working well. I think about you all the time and admire all that you have been through with this disease. Keep focusing on that next chemo break...it will be here before you know it!

Hugs,
Sara

Moesimo's picture
Moesimo
Posts: 1080
Joined: Aug 2003

Tara,

I am sending hugs!!!! I have been waiting for this post.

You rock girlfriend and you are an inspiration to all.

Please keep us posted on how you are doing.

Love, Maureen

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