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Carl still in ICU

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

We are still in ICU. Bili numbers continue to climb is at a 19 now. They are preparing to go in and scope the bile duct tomorrow probably since they don't have a team in today. He has been running around 102 temp indicating possible infection. He has fluid in his lower right lobe of his lung so are treating for pneumonia even though they really don't know if he has it but feel it is better to play it safe. Still having moments of confusion, not tracking with his eyes, when they hold up 1 finger he thinks it is 3, very yellow eyes and skin. His blood still needs to come down to 1.5 before they can pull the epidural. He thinks it is out and insists we don't know what we are talking about and wants the mri done and over with. can't do the mri until the epi is out and so just a chain effect. Regardless by Tuesday they have to pull the epidural out and we deal with any consequences. So today they are really pushing the Vit K, more plasma and something else.

Renee

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

Just was informed they decided it will happen this afternoon they are calling a team in as they aren't liking some things.

Renee

lauragb
Posts: 370
Joined: Aug 2011

Renee,
My thoughts and prayers are with you and Carl. I will keep checking back to keep the prayer and light energy going to the desired outcomes. I am so sorry this is so tough with what seems to be a domino effect of complications. Just know you are being supported from afar.

Laura

janie1
Posts: 753
Joined: Apr 2011

Renee. I am so sorry about these set-backs. Thought about you all night and today. I've been praying and will continue so that things start turning around.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

with the same sympthoms due to a bacteria " e.fecalis" wide spectrum antibiotics and we sorted it out.
I pray for the same solution Renee.

relaxoutdoors08
Posts: 520
Joined: May 2011

Renee,
Prayers for Carl. Today at Mass I lit a candle for all our friends on this board and at Colon Club. We will keep you both in our thoughts and prayers.
NB

Brenda Bricco
Posts: 579
Joined: Aug 2011

Hi Renee,
I am so sorry to hear about these complications... My thoughts and prayers are with you.
God bless you.
Brenda

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Sounds like a scary time...do you have someone with you? If not, perhaps it's time to call in some support troops. The watching and waiting is tough stuff.
here's to Carl pulling through this!!!!

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

his goddaughter lives 30mins away and has been coming to check once a day and bringing things if I need it. Since the original plan was to stay for surgery and leave after he was settled in a day or two later he thought having the dogs with us while he was in surgery would be a good thing to keep my occupied... well they have turned into a source of forcing me out of the hospital to go check on them every few hours thus meaning fresh air, stretching my legs etc so its a pain but also good to have. If I need his Goddaughter here all I have to do is call her.

Renee

Lovekitties's picture
Lovekitties
Posts: 3343
Joined: Jan 2010

Thoughts and prayers coming your way for your hubby's health to turn around quickly.

I know it must be extremely difficult for you right now. Hugs to you and the children as you wait for better news.

Marie who loves kitties

Cathleen Mary
Posts: 827
Joined: May 2011

Renee,

Keeping a vigil is so hard. What would we do without our caregivers? Prayers for strength for you and a return to health for Carl. Be gentle with yourself.
Hang In!
Cathleen Mary

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Just wanted you to know that I'm thinking about you and sending a few prayers your way. I know your focus is on your hubby right now, but please try to get yourself some rest too. Take care, Cyn

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

Got excited his INR levels came to 1.3 so they swiftly took out the epidural when they saw it was in range. not going good here otherwise right now they had to back out of the scoping his bp became very unstable and the more they went in to try and do the procedure his bp finally dropped to 60 and his oxygen levels desaturated and they had to pull out. So guess nothing else will happen today. He has become very uncontrollable as it was it took 45mins for me to get him under control they were threatening to put a straight jacket on him as he kept trying to punch everyone insisting they were trying to kill him. Everyone was forced out of the room in order for him to relax then a nurse snuck back in to give him something for pain which made him sleepy. I covered him up and he started talking again and said I am dead I don't need this blanket you keep it ..does me no good. He has had 4 other mini short lived episodes but has been sleeping now for about 1 1/2 hours. Kept insisting I needed to take him outside so he could see he was still alive. I told him he wasn't stable so we couldn't do that. he tells me to get a wheelchair that will help but he needs out of here because they lied to me and are really trying to kill him.

I pray he doesn't remember anything from this week after this is all over. Sadly it will be with me a very long time. For now he rests.

Renee

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"He has become very uncontrollable as it was it took 45mins for
me to get him under control they were threatening to put a
straight jacket on him as he kept trying to punch everyone
insisting they were trying to kill him. Everyone was forced out
of the room in order for him to relax then a nurse snuck back in
to give him something for pain which made him sleepy. I covered
him up and he started talking again and said I am dead I don't
need this blanket you keep it ..does me no good. "

I had the same reaction to whatever damned pain killer they
were giving me. I wasn't like that anytime after my first operation
in 2006, but this last one in 2011 was impossible.

I had hallucinated things that seemed real to me, and attempted
to crush a nurse's hand. I thought everyone, wife included, was
conspiring to kill me. I had wrist and ankle shackles applied,
an NG tube and a respirator assembly down my throat.....

The nurses said that they saw that insane reaction very often "lately",
but didn't speculate what drug was doing it.... So don't worry
about his reactions, moods, etc., they are not his normal and
have nothing to do with the "real him". He needs comfort and
reassurance that it's the drugs that are making him feel the way
he's feeling... It's tough, but try to get that across to him.

And if you can, tell the physicians responsible for his meds,
to please find one that won't cause anxiety and paranoia.

There's no reason that reaction should be happening to so many
patients; the nurses see it, the patients experience it, and the
entire care giving population has to endure it.... It's time to fix it.

My best wishes for him, and you!

John

smokeyjoe
Posts: 1428
Joined: Feb 2011

Wow, seems so scarey for you to be watching this, hope things settle down soon and he's on the road to recovery. Thinking of both of you.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

One of my surgeries involved Dialuid (not sure if that's the correct spelling), which is about 10x stronger than morphine. It was not good. At all. I went into another world that seemed very very real, and very very scary.
Please talk to the Dr. about this...it is not uncommon, but very scary for everyone involved. There are other pain meds.
Good luck~

lauragb
Posts: 370
Joined: Aug 2011

That's good advice to check on the meds and to know these behaviors really aren't him. Whether it's the pain meds or other meds, something else is making him this way.
I guess having the dogs can be a good thing since they get you moving and getting some fresh air, a breather from the intensity. I just wanted you to know I'm keeping you and Carl in the light and in my prayers.

Bless you for your vigilance.
Laura

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

Thank you to everyone for the advice and prayers, making sure I think to eat etc. They put in a pic line earlier this afternoon and did an ultrasound and when doing that they found a huge fluid pocket in place of where the liver use to be. So getting the IR team in (hard to do on a holiday) so they can drain it and they are hoping it has been the cause of much if not all the problems we have been having from fevers to the passing out, jaundice etc. Will keep posted. I want to start jumping up and down with excitement that maybe he will finally be on the road to recovery but I am hesitant to do so just yet.

Renee

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Best!

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

okay just got done with dr. they just brought him back in and trying to wake him. Sounds like there will be another procedure tomorrow trying to do what they did yesterday. Today they just wanted to get the bile that was accumulating out and they were only able to leave one drainage tube not the 2nd that is why another procedure tomorrow to redirect things in the right direction

Renee

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

I'm not sure exactly what they are doing but hoping things go well and these procedures are successful. And as everybody said, take care of yourself, Renee. Hoping tomorrow brings good news.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Wow.... This has been tough on you both. Sending prayers your way for speedy recovery. Take care

Jennie

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

Hoping tomorrow morning will bring a much brighter day for you and Carl and the doctors can get to the bottom of all this. You are in my thoughts.

Luv,

Wolfen

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

Okay his regular dr. explained better. What has happened is the side wall of the bile duct was weak, got nicked or who knows exactly but the bile takes the path of least resistance and regardless he has a leak that needs repaired. So todays procedure is to go back in and put a stint in there and hopefully correct the situation. Last night they just wanted to get him drained from all the build up. His bili went up to 23 and is down to 21 this morning so we are in the right direction I think.

Sadly when they tried to scope the first time he probably really did think they were trying to kill him....he felt everything they did under the opiates they used. So when they go in today it will be under general anesthesia. I feel we are in the right direction. He is still really short but seems more clear headed so I am feeling better.

Renee

janie1
Posts: 753
Joined: Apr 2011

That is much better news. Wow, doing that scope without general anesthesia.......ugh. Thank goodness everyone is back on the job

relaxoutdoors08
Posts: 520
Joined: May 2011

Renee,
Prayers for a Good Recovery and a Better Day. Sending positive thoughts and prayers.
NB

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

still hanging on to any positive thought of hope. They got the labs back and the gunk they pulled out was not bile as they thought. meaning the leak is not the cause of his high bili numbers. They are going to proceed to try and put the stint in today they don't want to do it via a surgery but will reopen him if needed. They are using General An. this this time for sure. His INR is 1.5 so we will proceed soon probably this afternoon. They have said they hope it is a leak, but I needed to be prepared that this is more on the lines of liver failure. I am holding on to anything but that. I don't know how things go at that point or options, if there is any etc and I simply can't think that way. Depending on how this surgery goes I am having the kids brought down from MT

Renee

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Holding on to you both in my thoughts and prayers.

Hugs(())

Cyn

Cathleen Mary
Posts: 827
Joined: May 2011

Oh, this is such a difficult time for you. Please know that your names are mentioned to God often.
We wait, in hope, with you.
Cathleen Mary

smokeyjoe
Posts: 1428
Joined: Feb 2011

My thoughts and prayers are with you. Don't forget to take care of yourself too.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

we are all thinking of you and Carl.
Sending good Vibes.

lauragb
Posts: 370
Joined: Aug 2011

What a tough situation you are in. I continue to send thoughts and prayers your way.

Keeping you, Carl and your family in the light.

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

Praying for Carl and for you, too, Renee. I am so sorry you are both having to deal with all of this and I hope that things turn around soon. Many prayers going up.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Been praying. Hope all is getting better soon.
I thought I saw a terrorist when I was on pain killers, turned out it was a metal trashcan but it took some doing to convince me of that, so I would pretty much blame his confusion on the pain killers, we now laugh at some of the things "I saw" on pain killers, they were pretty amazing.
Know you both are in my prayers and thoughts.
Winter Marie

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

One of my co-workers was recently on pain killers and he told me that he kept seeing squirrels running around his living room and didn't know why his father was just playing with them. :-D

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

In middle of Denver I saw 3 of them yesterday on my walk around the outside of the hospital. I firmly believe animals have messages for us. Sadly Squirrel comes with various from one end to another. From Warning to perseverance. I have 3 kids so wonder if seeing 3 different squirrels in short frame time is warning for them to be here maybe? I don't know how to read this one. Or to message to not give up and keep moving forward.

Renee

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Wow Renee this has me praying so hard for your husband and you and your family. There are so many up and downs with this cancer. He is a fighter and pray this is just a test of his endurance and will soon be better. Love to all.
Jeff

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

his bili numbers from this mornings labs are 22 so on the rise still, phosphorus is 6 which is higher than they want, glucose shot up to 400, temps are still 101-103, Got stents in yesterday afternoon-2 of them they found 2 leaks, he had a bm last night first one since morning of surgery. He was delusional again coming out he didn't even respond to me so restraints became necessary. that was incredibly hard to watch. He said he wants to go home so bringing home to him and kids should be here later today. Waiting for surgeon to make his rounds give his thoughts. Before when I asked about whether the kids should be brought was told lets not make any decisions yet, this morning let him know my plans to have them brought down and he said he would have a counselor come see me to help arrange hotel, when they see him for the first time etc. Not really sure how to take that, but in many ways I could use them here for me too. That is what I have for now. Waiting on retake of labs and see what they say. Dr. said he has his suspicions of what is going on but wants to wait and see what the new results say.

Renee

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

his bili numbers from this mornings labs are 22 so on the rise still, phosphorus is 6 which is higher than they want, glucose shot up to 400, temps are still 101-103, Got stents in yesterday afternoon-2 of them they found 2 leaks, he had a bm last night first one since morning of surgery. He was delusional again coming out he didn't even respond to me so restraints became necessary. that was incredibly hard to watch. He said he wants to go home so bringing home to him and kids should be here later today. Waiting for surgeon to make his rounds give his thoughts. Before when I asked about whether the kids should be brought was told lets not make any decisions yet, this morning let him know my plans to have them brought down and he said he would have a counselor come see me to help arrange hotel, when they see him for the first time etc. Not really sure how to take that, but in many ways I could use them here for me too. That is what I have for now. Waiting on retake of labs and see what they say. Dr. said he has his suspicions of what is going on but wants to wait and see what the new results say.

Renee

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

his bili numbers from this mornings labs are 22 so on the rise still, phosphorus is 6 which is higher than they want, glucose shot up to 400, temps are still 101-103, Got stents in yesterday afternoon-2 of them they found 2 leaks, he had a bm last night first one since morning of surgery. He was delusional again coming out he didn't even respond to me so restraints became necessary. that was incredibly hard to watch. He said he wants to go home so bringing home to him and kids should be here later today. Waiting for surgeon to make his rounds give his thoughts. Before when I asked about whether the kids should be brought was told lets not make any decisions yet, this morning let him know my plans to have them brought down and he said he would have a counselor come see me to help arrange hotel, when they see him for the first time etc. Not really sure how to take that, but in many ways I could use them here for me too. That is what I have for now. Waiting on retake of labs and see what they say. Dr. said he has his suspicions of what is going on but wants to wait and see what the new results say.

Renee

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

We're still here praying and waiting on those lab tests results to be in the right direction!!
Thinking of you both.
Winter Marie

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

his bili numbers from this mornings labs are 22 so on the rise still, phosphorus is 6 which is higher than they want, glucose shot up to 400, temps are still 101-103, Got stents in yesterday afternoon-2 of them they found 2 leaks, he had a bm last night first one since morning of surgery. He was delusional again coming out he didn't even respond to me so restraints became necessary. that was incredibly hard to watch. He said he wants to go home so bringing home to him and kids should be here later today. Waiting for surgeon to make his rounds give his thoughts. Before when I asked about whether the kids should be brought was told lets not make any decisions yet, this morning let him know my plans to have them brought down and he said he would have a counselor come see me to help arrange hotel, when they see him for the first time etc. Not really sure how to take that, but in many ways I could use them here for me too. That is what I have for now. Waiting on retake of labs and see what they say. Dr. said he has his suspicions of what is going on but wants to wait and see what the new results say.

Renee

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

I stopped the send off as I saw a misspelled word and resent and guess it decided to post several times. Sorry about that

Renee

Minnesotagirl
Posts: 141
Joined: Sep 2011

Good Morning,

I just wanted to say I am sending encouragement to you and your family. I am so sorry that you are facing this medical setback. I pray that the Drs. will advise on what is happening to your husband shortly. We must always remember to pray for wisdom for the Drs. that treat ourselves or loved ones. We put all our faith in them and we must remember that their faith comes from our father above. Blessings to you, your husband and children today ~ may God encompass you and give you strenth~
Minnesotagirl

smokeyjoe
Posts: 1428
Joined: Feb 2011

Thanks for the update, keep us posted, thinking of you and your family. Hope things start to improve for you soon.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Glad you have your kids coming....times like this require all the support one can get.
Big hugs~

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Still praying for you both.
God bless.

relaxoutdoors08
Posts: 520
Joined: May 2011

We are praying the Doctors do find the cause and have a plan for your husband. Please feel we are here for you.
NB

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hope is getting some improvement .
My prayers still with you.
God belss.

Carl_Renee's picture
Carl_Renee
Posts: 84
Joined: Jun 2010

Today his bili went up to 24, he wasn't hungry but the dr said if he would drink protein shakes today he wouldn't put in a feeding tube. He said he would so here is to hoping he did. I have stayed at the hotel with the kids the afternoon for some sleep. I am still feeling loopy. Was 1.3 day before surgery, day of 3.6 and just keeps rising.

They are moving him out of icu as there really isn't anything further they can do for him but watch and hope the liver is viable and kicks in. He will definitely be there another week. His liver has plenty of blood flow so that isn't the issue, so far the stents in to stop the leaks are stopping the bilis from climbing. The dr. this morning just looked at me and asked if I looked this morning numbers I said yes and he just said I don't need to say anymore. That almost is harder than just saying something. I am still hopeful the remaining liver is good enough to work. Maybe all the meds to control pain has kept it from doing its job so far. They took him off IV psa button and put him on oral. He is still having problems with is right arm. They aren't saying he had a stroke but a definite seizure. I still can't help but wonder about a mild stroke. Seizure is more consistent however with liver trauma. The liver has good blood flow I am holding on to that. they did find a blood clot so giving heprin via iv rather than belly.

Renee

janie1
Posts: 753
Joined: Apr 2011

Praying things turn around. Good blood flow, taking in protein, and having the pca discontinued, stents working,.....should help.
Please take care. Glad kids are there. Give everyone a hug. We're all pulling for Carl.

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