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Aggressive Digital Papillary Adenocarcinoma

Posts: 1
Joined: Feb 2012

I was just diagnosed with Aggressive Digital Papillary Adenocarcinoma. About three years ago,I noticed a bump on my finger. Within the last year, it got bigger and I went to the doctor to have it checked. They were unsure of what it was and had never seen anything like before. The tumor was located in my left middle finger and I had it surgically removed a month ago. The biopsy of the tumor was sent out to be tested. My CT and PET scans came back with no signs of any other tumors. They said this form of cancer is so rare there is not much data on it, but they want to do a recision surgery on the finger for safety purposes and have scheduled it for Feb 27.

Now, on to the next level and I can assure you this is not a sales pitch to drink some "miracle formula" that will allow you to play the piano when you couldn't do it before . It's just based upon common sense.

I haven't seen anyone on the forum mention anything about diet. Only chemo and/or radiation. As soon as I heard "the news", I changed my diet instantly from semi-healthy to all green plants, raw and cooked vegetables, fruits, legumes and grains. I went to a nutritionist to do an analysis on my blood, urine and hair. I received a huge list of vitamins that I was deficient in and began taking them immediately.

After doing tons of research, I was shocked to see how we are literally being poisoned every single day by what we eat and what we use. Corrosives in baby wipes, fire retardant in your soda pop, toxins and carcinogens in your hair dyes, shampoos, make-up, and so on.

While it may be true that any one of these chemicals used in one product at acceptable levels are considered safe by the FDA, the accumulative affect of these toxins in everything we eat and touch, are not.

It is interesting how Michelle Obama is working so hard to get Twinkies out of the hands of our children with the food police sending kids home because they have a turkey sandwich in their lunch box, rather than "school approved" chicken nuggets, yet no word about how toxic their toothpaste is.

Long story short, If you are not changing your diet to a plant based one "Vegan" and ridding yourselves of the white death (flour, sugar and salt) as well as becoming aware of the "organic salmon" that is full of toxins, (i.e. falsely labeled products), then nothing that you do will prevent you from seeing reoccurring incidences of diseases.

Get tough, do your research. Everything I have said here can be proven. Don't believe we are being poisoned? Choose anything off a label that you are using that you can't pronounce and google it to find out what it really is. There is a reason that cancer is the number 4 leading cause of death in America and every one in two people will get cancer in their lifetime.

If your cancer is aggressive, it doesn't mean anything other than the fact that you need to get aggressive and educate yourself as to what's causing it and the best nutrients to take to make the cancer cells as uncomfortable as possible in your body.

Start drinking Alkaline water. Cancer loves an acidic environment. Eat only green, truly organic green vegetables, raw and cooked. Buy a cookbook on how to cook them. There are a lot of great books for cancer patients. Recipes so good, you will never miss your garbage diets of toxic food that you ate in the past. Try Hydrogen Peroxide drops and baths, it kills cancer cells. Use the food grade, not what you get in the grocery store and read up on how to do it.

Get educated not depressed. Knowledge equals strength. Meditate. Leave your body and connect your inner spirit to God for his healing powers. Transport that power to your cells and do not give them permission to inhabit your body. God can't help you if you don't include him. He is there for you, all you need to do is ask.

This is not a time card you have been given, it is a wake-up call.

Posts: 1
Joined: Nov 2012

i have just found out 4 weeks ago i have this cancer
lucky that it was picked up at the first search-as i thought i had a catus pin in my finger
and thought that is why i had the growth--i also had tests on my other hand but all was clear--also had a pet scan--and my lungs were clear-so i was advised to have my finger removed-so had that done last tuesday---so far have not had the new test to see if all removed---
****i am also booked in to see if i need kemo - i have not read if this has been done for a --just in case----as i really do not want to go down this track if i can get out of it--can any one help me out?????

Posts: 21
Joined: May 2011

My husband was diagnoised in early 2011; it was his left index finger that was affected.  He was referred to the Mayo Clinic and he was assigned a Doctor who only deals with the rare forms of cancer.  They did the CT scan and found lung nodules; however the Doctor felt it was probably nothing to be concerned about.  He said that about 30% of the population have them.  The Doctor also was not sure how to treat the cancer and after some research on my own found that this type of cancer does not really respond to chemo so the Doctor felt we would not do chemo and just monitor.  My husband had CT scans every 3 months for the first year; he is at 6 month intervals and while the lung nodules are still there, they have not grown in number or size.  We count him healed, even if everyone else does not until it has been 10 years.  I wish you the best of luck and may God Bless You.

Posts: 1
Joined: Feb 2013

I am going to Emory Clinic to see a doctor about an ADPA on Tuesday.  However, today I found one on a finger on the other hand.  I am terrified of the implication.

Anyone else had more than one?


Posts: 3
Joined: Aug 2017

Hi Lootboy, I've placed a post at the end of this thread explaining my husbands ADPA case. I notice you were in Sydney when you posted in 2012. I'm wanting to find an oncologist (preferably in Sydney) who has dealt with this cancer before. Thanks, Skippy


Posts: 1
Joined: Sep 2013


I was diagnosed with this in December of 2010 at age 47.  I am a healthy, non-smoker with little family history of cancer.  The tumor was located on the side of my right ring finger adjacent to the nail. It had been there for about a year.  There was no pain and it appeared to me to be just a small cyst.  It was about a centimeter in size (the size of a small pea).  I had the tip of the finger amputated to the joint.  I had a CAT and bone scan and both reported no metastasis.  My Oncologist (Rush University-Chicago) told me there was no need for follow up or future scans.  That said, I have recently read an article in the Journal of Clinical Oncology regarding a case study where this primary tumor metastasized after 11 years (after amputation).  Scans showed it metastisized to 3 differnet areas including the lungs of a patient   The author recommended long term follow up with annual scans. 

My best guess is this was caused by some environmental contamination.  I was pretty worried about the amputation.  Turns out I hardly notice it.


Posts: 2
Joined: Apr 2015

in february I had a lump on my thumb knuckle removed. Dr thought it was benign. Pathology reports come back stating it's aggresive digital pappilary adenocarcinoma. I am 22 years old and was not expecting this especially being so rare. Right away I went for chest scans and hand mrI. I was sent to memorial Sloan Kettering where they did a wide excision to make sure surrounding tissue is clear and also a lymph node biopsy from armpit. Both came back clear but I am now afraid for my future. It's my thumb so I'm really afraid of amputation etc. It was never mentioned but I'm afraid it will come back. 

Posts: 1
Joined: Aug 2015

Now its very dangerous to apply make up products which is harmful for hole body. I wear one brand on my wedding day with my beautiful dress and it was in contacted with that plus size dress, from now that mark is placed there. The main problem of make up products they are fully used as a chemical product and it creates the skin problem in it.

Posts: 1
Joined: Jan 2016

Diagnoised on Dec 28th

Plan for treatment- Have toe amputated in 2 weeks

Recovery of a toe amputation? What is it like?

Recover - Post Surgery comments- ?





Posts: 3
Joined: May 2016

my husband (age 50) was diagnosed with ADPA with Metastases to both lungs.  He started chemo right away.  Tumors are stable without growth or spreading.  We were told there are maybe 100 known cases worldwide.  Looking for more information!!!!  He was diagnosed February 2, 2016.

pajamo46's picture
Posts: 2
Joined: Oct 2016

12 years ago I developed a lump on my (R) ring finger, the area was opened up and as the specialist put it was cleaned out, and i was informed all was fine. About 4 yers later the lump returned, visit to specialist saw the top joint of the finger removed, he said it was a Ganglion type cyst?, and all was ok, nothing to worry about. Last year the finger problem returned, visit to GP I was informed Oh yes, that is carcinome, its on your file that the path report shows cancer. I was stunned as that was the very first time I had been informed of it. Had a scan which showed concerns so the next two joints were amputated, and the path results confirmed ADPA, but also that the margins were very good, so it was all removed. The follow up program was for me to have 6 monthly CT scans, and lo and behold the first one showed a golfball sized cyst/Node in the Chest/axilliary nodes. Following a fine needle biopsy it was decided a PET CT scan was in order. That showed a reactive node. Surgery within a week removed all the lymph nodes, of which 1 contained the ADPA cells, but fortunately 17 others are clear. I am still awaiting news as to the next steps, maybe Chemo, maybe both chemo and Radiotheraphy. I am still shocked that there was no follow up from the first surgery, or at least from the second which the path results confirmed ADPA. Too late to be concerned about that now, I am just hoping the cancer will not further spread. The Surgeon said this Cancer is so rare that my case is being managed by a specialist oncology team at a hospital in another city. Its a big worry as I have already slipped thru the gaps in the medical system, and I do hope this wont happen to anyone else.

Posts: 3
Joined: Aug 2017

Hi there,

My husband (age 41) has just been diagnosed with ADPA on middle right finger. Saw oncologist today at SAN Sydney. He has read no research or case studies and doesn't seem interested in speaking with Dr's who have treated this. He has suggested excision, not amputation with no further treatment. He is doing a Lymph node extraction from armpit to check it hasn't spread and PET scans are currently clear. However, all medical journals and case studies I've read points towards amputating finger and possible chemo/and or radiation therapy. The statistics I've seen indicate lower reoccurance rates with this process. I want my husband to have the best chance of avoiding recurrent ADPA, especially due to the high rate of metastatis potential, which we all know is hard to treat with ADPA. We are seeking a second opinion.  I'd really appreciate names of Dr's and hospitals you received treatment from and other possible information of benefit. I hope all readers are winning their battle. 

Posts: 17
Joined: May 2011

I was diagnosed 6 years ago ... tip of left index finger.  I initally had an excision, but ultimately opted for follow-up amputation.  Based somewhat on the available literature at the time, but mostly the desire to take aggressive action.  Further out, it's easy to second guess.  I'm content with my decision, but sometimes do wonder if less aggressive WLE (wide local excision) might have been a viable option.  The amputated finger doesn't impact any daily activity - I've learned to type, etc - but I am somewhat sensitive to it (careful in photos, holding a coffee mug in public, etc).  Read the studies carefully ... some compare no further action to a lumped re-excision/amputation option.  I also believe there was a more recently published study on this topic (exicision vs amputation).  Ultimately, you have to do what you feel is best.


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