Did you ever feel this sensation while on FOLFOX ?

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pepebcn
pepebcn CSN Member Posts: 6,331 Member
in Colorectal Cancer #1
I got an extreme weakness on my legs together with a sensation of cold despite I wear two coats on my legs.Any of you has experimented this kind of sensation due to folfox? I was on folfox 3 years ago but never had this feeling ,( well it was summer then).
Thank you in advance my friends.
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  • PhillieG
    PhillieG CSN Member Posts: 4,866 Member
    #2
    It was a while ago
    but I do seem to remember having wobbly legs at times. I'd feel like rubber. I hear that you folks are having the type of winter that we usually get. That can make a difference too...
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #3
    PhillieG said:

    It was a while ago
    but I do seem to remember having wobbly legs at times. I'd feel like rubber. I hear that you folks are having the type of winter that we usually get. That can make a difference too...

    Yesss we are having some cold here Phil! LOL.
    I agree that things are worst due to the winter ,hope spring arrives soon, last time I was on it it was from June to September ,What a difference!.
    Hugs Dr.
  • tommycat
    tommycat CSN Member Posts: 790 Member
    #4
    My legs felt like they felt
    My legs felt like they felt when I had the flu...achy & awkward. One thing that helped me feel warmer was wearing socks when I slept.
    Hang in the Pepe~
  • relaxoutdoors08
    relaxoutdoors08 CSN Member Posts: 521 Member
    #5
    Numbness in feet and weakness and pain in leg
    Pepe,
    Yes, following treatment 5 I could not feel my feet and had weakness in both legs and pain behind the right knee. By day 5 it passed. But I still have some of these same feelings but not as severe now that I am soon 1 year post Folfox.
    Thinking of you and wishing you the best.
    NB
  • jules286
    jules286 Member Posts: 5
    #6
    sensation
    HI,

    am new but I was in folfox last year and I did have a cold despite. Its normal as per my understanding.

    Blessings

    Julie
  • janie1
    janie1 CSN Member Posts: 753 Member
    #7
    jules286 said:

    sensation
    HI,

    am new but I was in folfox last year and I did have a cold despite. Its normal as per my understanding.

    Blessings

    Julie

    oh yes
    Had weakness in legs too. It will be better in the Spring!!
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #8
    janie1 said:

    oh yes
    Had weakness in legs too. It will be better in the Spring!!

    Thank you all my friends!
    You have been very helpful !
  • maglets
    maglets CSN Member Posts: 2,576 Member
    #9
    pepebcn said:

    Thank you all my friends!
    You have been very helpful !

    yes
    darling pepe.....I used to hold onto the stair railing and creep downstairs one step at a time....one foot on stair then bring next foot down beside it.....very shakey.....very weak legs

    but of course darling boy it was 40 below.....haha just another Canuck joke.....

    yes the cold makes it worse for sure.....

    have a nice warm hug.....

    pepe I am going to Florida this week!!!!! for one week

    good-bye winter.....


    mags
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #10
    maglets said:

    yes
    darling pepe.....I used to hold onto the stair railing and creep downstairs one step at a time....one foot on stair then bring next foot down beside it.....very shakey.....very weak legs

    but of course darling boy it was 40 below.....haha just another Canuck joke.....

    yes the cold makes it worse for sure.....

    have a nice warm hug.....

    pepe I am going to Florida this week!!!!! for one week

    good-bye winter.....


    mags

    Comment ça va Maglets?
    I'm jelous as we are having a Canuck Winter in the whole Med! Crazy! Don't know if you know about Majorca or Ibiza islands but there are buckets of snow even there! hehehehe! .
    Not so fun here , not been snowing here more than some flakes weekly but we have been the whole month in a range of -4 to 2 in the mid morning which is not fun to me . In the center of Spain temperatures of - 10 to - 18 have been common the whole February , but they are more used to it.
    So I rather to be a Canuck in Florida! eh?.
    Take care and keep in contact with us ma cherie.
  • seek@light
    seek@light Member Posts: 26
    #11
    my mom does
    My mom just finished her sixth cycle of FOLFOX and she has to wear gloves and very thick socks due to sensation to cold, even though she is living in a city similar to FL in the US.

    Her onc told her that is normal as well.
  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    #12
    hands and feet
    I had constantly cold hands and feet. But not generally (ie need two coats). But I live in warm climate

    Tara
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #13
    taraHK said:

    hands and feet
    I had constantly cold hands and feet. But not generally (ie need two coats). But I live in warm climate

    Tara

    I know about cold, but what worries me is the
    weakness on my legs and some times my arms, has it anything to do with cold?.
    BtW Tara how are you any news?.
    Hug to all of you.
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #14
    sounds like yopur getting the real drug, not a placebo
    dear pepe,

    never had the weakness, my guess the weakness in the legs could be a general feeling of weakness, just that your legs muscles are the biggest muscles in the body, so you may notice the weakness more in your legs.

    it might be time to do a few things to take the edge off folfox's nasty side effects, pm me if your interested. almost everything i have tried has been published here anyway. i would start with gut rebuild and a good probiotic and a a little gentle juicing maybe.
    i never had the weakness, just number feet and hands and fingers. which has almost all gone.

    hugs,
    pete
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #15
    pete43lost_at_sea said:

    sounds like yopur getting the real drug, not a placebo
    dear pepe,

    never had the weakness, my guess the weakness in the legs could be a general feeling of weakness, just that your legs muscles are the biggest muscles in the body, so you may notice the weakness more in your legs.

    it might be time to do a few things to take the edge off folfox's nasty side effects, pm me if your interested. almost everything i have tried has been published here anyway. i would start with gut rebuild and a good probiotic and a a little gentle juicing maybe.
    i never had the weakness, just number feet and hands and fingers. which has almost all gone.

    hugs,
    pete

    Pete I'm not in a trial I'm on FOLFOX!
    Hehehehehe.
    Hugs!
  • Karenhope
    Karenhope Member Posts: 3
    #16
    PhillieG said:

    It was a while ago
    but I do seem to remember having wobbly legs at times. I'd feel like rubber. I hear that you folks are having the type of winter that we usually get. That can make a difference too...

    Brand new here first post.
    Brand new here first post. Scared of chemo but anxious for surgery to heal so we can get the chemo started. Colon cancer went to intestines and body lining.
  • Karenhope
    Karenhope Member Posts: 3
    #17
    PhillieG said:

    It was a while ago
    but I do seem to remember having wobbly legs at times. I'd feel like rubber. I hear that you folks are having the type of winter that we usually get. That can make a difference too...

    Brand new here first post.
    Brand new here first post. Scared of chemo but anxious for surgery to heal so we can get the chemo started. Colon cancer went to intestines and body lining.
  • Karenhope
    Karenhope Member Posts: 3
    #18
    PhillieG said:

    It was a while ago
    but I do seem to remember having wobbly legs at times. I'd feel like rubber. I hear that you folks are having the type of winter that we usually get. That can make a difference too...

    Brand new here first post.
    Brand new here first post. Scared of chemo but anxious for surgery to heal so we can get the chemo started. Colon cancer went to intestines and body lining.
  • christinecarl
    christinecarl CSN Member Posts: 544 Member
    #19
    side affects
    After I had been off chemo for a month I remember walking down the hill to my uncles place and wondering if my legs would support me. I felt like at any moment I might have my legs go out from under me, I thought I might collapse, it never happened thankfully. I eventually got my strength back, but it took a while.

    But I was wondering if after chemo any of you ever felt a sensation on your feet as if you had stepped in water and your sock was wet, but when you reached down to touch your sock it was bone dry. Its so weird sometimes with the neuropathey and I stopped chemo in 2009.
  • Kathryn_in_MN
    Kathryn_in_MN CSN Member Posts: 1,252 Member
    #20
    Yes
    I had those troubles on FoLFOX (I was on it from October to April - so I had it through the winter). My feet and legs were always cold, and they got quite weak. I remember having trouble getting up and down the stairs. Sometimes they'd seem ok, and then just stop working. I think much of it was neuropathy from the oxaliplatin that caused this. When added to the fatigue, it made getting around very hard some days.

    How are you holding up on the FOLFOX other than this issue with your legs?
  • sdp
    sdp Member Posts: 181
    #21
    Kathryn_in_MN said:

    Yes
    I had those troubles on FoLFOX (I was on it from October to April - so I had it through the winter). My feet and legs were always cold, and they got quite weak. I remember having trouble getting up and down the stairs. Sometimes they'd seem ok, and then just stop working. I think much of it was neuropathy from the oxaliplatin that caused this. When added to the fatigue, it made getting around very hard some days.

    How are you holding up on the FOLFOX other than this issue with your legs?

    nephropathy
    Hi

    While on ox Platin did your doc not give u any supplements like b12, calcium FoRte etc.

    I am taking r alpha lipid acid and also l glutamine to counter the effects of cold sensitivity and neuropathy.

    I read up on this on the discussion boards of one of the cancer help sites.

    I hope it helps. I have just been on the third cycle of folfox and I started to get cold sensitivity and tingling from the first cycle
    Itself.

    Sdp

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