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SOME HELP FROM YOU MATES!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I'm still offered to be on the dendritic cell vaccine Trail, but decided for folfox for the moment since it make wonders 3 years ago with me.So for the moment I'm quite well ,stable and hope we will se some regression in the next controls ,but this is my question , any of you have ever been in a successful trail ( so mean NED, or at least log time Stable?.)
Will appreciate your comments ,will help me in my next step if needed!.
Thanks in advance my friends!

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

I entered a Phase 3 clinical trial and recommend doing so to anyone who is dealing with a life-threatening disease. You get the standard of care PLUS cutting edge medicine that is poised to become part of the standard of care. I didn't want to look back and think I didn't to everything possible I could have done for myself.
Dx 2009 Stage 3 rectal cancer, currently NED.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

stem cells?

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Oh gosh, I have the link but need to find it then will zip it over to you. Hey, since you're ahead of us by 12 hours, who won the SuperBowl???? Just kidding :)

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Match!

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

http://clinicaltrials.gov/ct2/show/NCT00058474?term=oxaliplatin+rectal+cancer&recr=Open&state1=NA%3AUS%3ACA&rank=1

This was for rectal cancer...you had colon cancer right? But I hope it helps!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Sorry Pepe, nothing to offer except well wishes!

plh4gail

gwhite's picture
gwhite
Posts: 18
Joined: Jan 2012

I just finished posting to Gerry O so I refer you to it to avoid repetition. This story does not with "alternative medcine" but a treatment modality that is designed to ENHANCE rather than replace the best treatment from modern medicine.
She'll be right, mate!! ( If you aren't Australian, the above may seem a little silly and for that I apologize. I was in business in Australia for a few years and enjoyed it very much)

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

just interested in successful trails stories !.
Lol.,hugs dear friend!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Mates! .

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I was one of the few lucky ones that the treatment for each cancer worked the first time. Actually, because of having the rectal cancer, it disallowed me from any trials on the breast cancer...skewed the results..

Knuffels my firey Spaniard!

K

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Trials have limited windows of opportunity, Folfox will be there forever.

Take the trial, if it seems to not work out go back to Folfox.

Blake

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

my main concern is what happens if in this four months trail does not work and cancer spreads to somewhere more serious?.
Your coments will be appreciated , but the thing is that as per I see none here had a successful experience with trials beside tori!.
Hugs! my friend!

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Virtual trial of one, based on most technical promise for the individual. Fewer permission hassles, at least some places. For us, immunochemo with mild toxicity, everything else non toxic. Chemonaive when started, it seems to stop the spread, killed a lot initially, dissolved some later, and slows down growth rates of remaining "old inventory" until we can find the right surgeon. Learning basics, considering possibilities, deciding, finding or importing stuff, getting support has been the effort.

janie1
Posts: 753
Joined: Apr 2011

I assume this is the same vaccine trial that was just started at Roswell Park in NY.
You can goggle Roswell Park cancer vaccine.
The Phase 1 just started. There has been a lot of talk about it. To me, this sounds like the most interesting bit of information so far.
I wish I could do both, chemo and the trial. Yes, it would be scary not to do the current chemo.
I sure wish something becomes of this vaccine..... soon. The trial in NY accepted 20 people
....they received over 1000 inquiries.
Hope all goes well for you.

smokeyjoe
Posts: 1428
Joined: Feb 2011

If you are on a clinical trial don't they monitor you very closely?? Maybe they would see very fast if it's not working for you. Maybe check with onc. if you decide the trial is not for you and you leave the trial how soon you could go back onto your other chemo. I think the one at Roswell Park seems sounds like they try and get your own immune system to recognize and destroy the cancer, wonder if the trial you've been offered is the same. Sounds interesting. I would ask if your not actually getting the dendric cells if you'd be getting some kind of chemo..

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

if monitor no way to see results before 4th months at least, just they control certain immune reactions thats all, of course you can abandon it but would be silly since you know no results will be shown before 4 months! also you can abandon if they see progression or spread in tumors but then would be late probably ,so you must be an ice man! hahaha! BtW the got lots of enquires from the US. hospitals and I think still accept people .

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

since not other chemo accepted until after month 4th, so a bit scary! Our trail is in Phase ll but don't want to give info about results yet since it seems dendritic cells don't show good results until few months later you have already been vaccinated ! I'm not good for that! hahahaha..
Hugs!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

if i were given that option today i would take the vaccine,
take the opportunity before you, it represents a better future, some hope.

my long term survival depends on my immune system doing what it did well just before cancer started, that is destroying rogue cells at a precancerous stage.

getting the dendritic cells to identify the cancer cells effectively is key. the other approach i am using at present to achieve this is called digestive enzyme therapy using pancreatic enzymes and bromelain in the absence of protein to remove the protective coating our tumour cells use to hide.

view the time off chemo/folfox as a chemo break to build strength for the next stage of the battle. the is alot you can do with alternatives when off chemo. ie iv vit c, artemisinin.

i would do a molecular analysis of my ctc's and find what therapies they recommend and i would do them on the quiet while on the trial. after all the are just supplements.

i would heal my digestive system and detox my liver, not sure how this works if you have mets to the liver, but in principle the detox program i am on or elements of its protocol should be effective.

i would do sfn therapy to activate 200 odd genes that turn on our cells internal repair mechanisms.

i would do the fitgenes genetic test to find out all i would about my personal genetic expression with regard detox pathways and nutrition and immune system.

i would then meditate and pray.

also while on chemo break i would fix leaky gut and do a stool test and a heavy metal test just for fun.

so that should take about 4 months while you are on the vaccine.

of course juicing and tcm will not hurt either.

good health to you my friend, message me anytime for details on any of this stuff. most of its on my blog.

hugs,
pete

ps they are doing something similar to this vaccine in melbourne, hear as well for melanoma, and i was trying to fake a skin cancer to get on to it. only joking. but seriously it seems alot of places are pushing the dendric cell therapies. a friend of mine had his own vaccine made in germany over 2 years ago, he was stage 3 and he is clear today and i am well know knows. but so i know one guy who had the vaccine made and is going real well. his name is bob, he is a compounding chemist he gives me most of my supplements at cost. he is a legend and well.

pps all of the areas i am trying may be useless, but its more interesting than TV.

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

dare not to now :p just sending my love and hugs per usual. :-)

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