cea 66 today up from 7 in 4 weeks, i might have more than the common cold going on !!!!!

coloCan said:

There's a phase III trial in Australia by a firm named Alchemia
of something called HA-Irinotecan/HyACT which you might want to ask about, which i had read about at a site called market.......watch (ignore the .......-typed in full and 4 letters get **** here) Hopefully your CEA is rising because of what you've been doing lately......

coloCan said:

There's a phase III trial in Australia by a firm named Alchemia
of something called HA-Irinotecan/HyACT which you might want to ask about, which i had read about at a site called market.......watch (ignore the .......-typed in full and 4 letters get **** here) Hopefully your CEA is rising because of what you've been doing lately......

Sundanceh said:

Wanted to Talk to You Tonight.....
Pete
I’ve wanted to talk to you about this for a year now – though for various reasons, I tabled it until I could see an appropriate window to talk about it. Your post seems like the right time today to do so.

So, I’ve watched your quest and your approach with supplemental and alternative therapies. It has been interesting to see. One of the aspects of your journey that I’ve been evaluating was whether your strategy resulted in a recurrence, or whether you stayed clear for an indefinite period of time.

If confirmation does come back as a recurrence, I will be dismayed at the prospect at such news for you, but from a medical standpoint, would not be completely surprised to hear that bad news from you.

I’ve had cancer 3x, Pete…and 3x have I come back to ‘watch and wait’ state – utilizing a few different strategies, but fighting mostly a conventional battle.

This last year of my fighting, I watched as you tried everything there was to try. At times, I felt you held on ‘too tight’ and were like a Don Quixote – out chasing after windmills….

And still I watched…

I came to the realization after much reflection, that Pete was in the middle of his process...he had to sort through and flail away and do due diligence with the things he felt he needed to do. It takes time and does not happen overnight.

It's sort of reminescent of plucking a fish from the waters and watching it squirm around, fighting to get free.

Your story sort of reminds me of that analogy. I mean that in a good way.

To a large degree, your approach made me consider fighting my last round of cancer another way – a complete 180 approach to the way you were fighting your fight.

Now, it was not a Me vs Pete thing…it was more scientific to see if I tried another way to fight, would it yield the same results as that of someone, who was fighting with a supplemental and alternative strategy. Like you, I figured I would use myself as the experiement – with my life as the stakes of my decision.

I suppose it was for me to try another way that differed from the previous time I had cancer – I fought that recurrence with diet and exercise….I mixed in a few safe supplements that did not raise any eyebrows, took some vitamins and anti-oxidants and did good old-fashioned work, and ate as well as I could. Not strict, but just conscious.

I ended up with last year’s recurrence…so this time, watching you go gung-ho, I decided to give my body and the cancer cells “nothing good” to work from or draw strength from.

The theories around the board suggest that diet is the culprit, but anti-oxidants work for the cancer cell as well as the good ones…..so my theory suggested that if I not feed it the good things, then I will be depriving the cancer cells as well.

I had been walking good after lung surgery, but Folfiri knocked the tar out of me and I was too sick and weak to exercise. I did not always eat the right things…when on chemo, you usually eat what you can tolerate or swallow and keep down….so there was dairy and some powdered donuts – these helped quell some of the nausea for me…..but there was sugar introduced, though not to excess.

Long story short, with either approach I took, I reached a ‘watch and wait’ state – the credit goes to western medicine and its barbaric approaches to cancer fighting….poisoning yourself slowly in attempts to outlast the cancer.

It’s safe to say that the key to longevity to any approach is surgery – no case on the board has been successful without it…and while it’s no guarantee that it works, it gives us our best chance with an outcome we’re shooting for.

I’ve done the whole thing 3x now – surgery / radiation / chemo…..and have recurred every single time….they come quicker and quicker now as I’ve just crossed over the 7.5 year marker.

“What’s the point?”

The point is – there is no point, Pete.

There is no right way or wrong way – only a way – and a way that may change tomorrow from what it currently is today.

I wrote a whole book exploring the issues, Pete…if I could sum up the entire cancer experience in just one sentence or phrase, it would go something like this…

“There is no SINGLE answer to Cancer.”

And that’s exactly what I showed myself with my latest experiment – I reached the same state that you did – and the same state that I did before with myself with some base supplements and vitamins that I was trying then…

In the end, no matter what we try, I've reached the conclusion that there are many ways to attack the problem - and there are many paths in which to reach this Nirvana. The issue to me at this stage of my journey is not so much on "If We can Get There", because we can.

Rather, the real question we should be asking ourselves is "How Can I Stay There?", once we attain that precious threshold. And the even bigger question, "Is Anything That I Do - Really Going to Make a Difference in the Long Run?"

While I may have had my concerns with some aspects of your approach, I realize more than ever now, that is important to let each person do the things that they need to do – to ensure that they feel that they did everything that they felt they should be doing.

The victory lies somewhere in there…

Your story is important in that it shows us another example of the things that might or might not work…what’s really important is that you have pursued your endeavor. We all learn by watching others and their experiences…..good and bad.

That’s where the real gift of this board lies – in the folks who are willing to put it out there for all the world to see – and you’ve certainly done that.

As I sit here and think about you, I’m reminded that this is Pete’s Journey – this is the way that he sees it – at this place – and at this time. From that perspective, anything that you are doing can only be right – for you.

Thanks for sharing…you know, Pete…as I head towards my 8th year, I see things from a slightly different perspective than someone like yourself – we are at different stages of our journeys, yet we walk along the same path to some degree.

Where we have been different in protocol – we are united with the “Common Chords of Humanity” that reside in each one of us.

If your cancer is back, I know you will do okay…and agree some WM is going to have to be part of the protocol – you’ve got a lot of livin’ to do, after all.

BTW: I talked with a smart nurse the other day and she shared something with me that you might find interesting….she said people who are overweight (not morbidly obese) – just pleasantly plump, like myself – actually fare better with chemo than someone who is skinny.

The reason is that there are more reserves in the body to draw from, in the event that a person develops a problem with nutritional intake…

But, you are right in the fact that you are fit and tone – and if you have to do battle again, this will carry you up the hill aways…I’ll get there too, I’ll just be a little slower, LOL!

Take care, Pete…I’m sorry if the news is bad…but as a man with several recurrernces under his belt and still not in the grave as a Stage IV…….well, if I can do it, so can you.

Chin up – off you go, Mate!

-Craig