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The End of my Tenure--10 years today

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Hello you wonderful Semi-colons!

Little did I know ten years ago, December 12, 2001, when I posted my very first post on this board that I would still be here posting away, answering questions, building friendships, mourning the loss of friends, and most recently meeting friends face to face, new and old, at my first Colonpalooza. It has been, for the most part, a very wonderful stint full of laughs, camaraderie, information, support, love and friendship.

Ten years ago I was every bit scared as anyone coming to a cancer board for the first time. I looked for information and guidance. Ron50 replied to my post with kindness. He will always hold a special place in my heart for that. I know there is a collective nod at this statement because I'll bet most of you can remember the person who reached out to you the first time you posted. And since that time, there have been too many replies to count. And until most recently, most of those replies have been full of love and encouragement, if not full of laughter.

Torpedos in Speedos, pool parties with SpongeBob and Barb, carrot juice cocktail parties, Cheetos, silliness and shenanigans, that bound us together beyond the cancer, took precedence at times; but the seriousness of our communal crisis was never far from our minds. We reveled in comic relief and banter. We needed to, because at the time so many of us were new to the cancer gig and didn't know how numbered were our days. It didn't matter if we were Stage I, II, III, or IV--we were all nervous of our outcomes. We listened to Stacy remind us that odds were for Vegas and expiration dates were for dairy products.

And then came Scouty. Our Stage IV pioneer who made a u-turn and embarked on a journey that has forever bonded our two spirits. No surprise we look like sisters from another mother.

And then came the Paloozas that LisaRose diligently documented. How many times did I try to get to one to meet up with the buds that I had made on here.

Dear Nanuk driving 600 miles out of his way to Northern Minnesota in order to spend some time with me and meet my family-- priceless even more so since he did not live to attend another one. I cherish those memories dearly. He was forever grumbling about the boards being down or giving him problems.

How can one even begin to count all the dear souls who have stepped into a different realm, who gave us so much, who shared their struggles and their triumphs....Sweet Baby Girl going for her Masters, Kerry who hosted a Palooza, FitLisa, Cheyenne......the list goes on sadly for way too long.

I don't know how many of you who are still here now contributed to the Semi-Colon Humanitarian Award that hangs on my wall. How humbling that was to receive such a gift from those who had been helped along the way. I cherish that plaque as well.

This is not to self-aggrandize , but to illustrate how wickedly the atmosphere on the boards has changed. I share what is written:

Semi-Colon Humanitarian Award

presented to Emily ---------

Your Grateful Appreciation of
Your Extraordinary Involvement
Unselfish Devotion & Loving Commitment
To the Awareness of Alternative Therapies
In Our Lives

May 2005

Together Forever The Semi-Colons

Barb was the ring-leader on that one and all were in cahoots.

An ill wind has blown in and threatens to destroy much that has been lovingly created by our community. Unfortunately the bullying of a few has brought derision where there had been none. It is permeating our once safe atmosphere.

Yes, there have always been hot-topic buttons and a bit of fussing now and then, but the obvious stalking, baiting and pouncing was never a part of it. This is a new dimension that has reached a level that I, for one, am not comfortable with nor want to be a part of in any way, shape, or form.

It's not healthy for me to engage and sink to that base level and be part of the negative. But more importantly, it's not fair to the newcomers who are scared and confused and reaching out to us, grasping for information, but mostly for HOPE.

The gist of my message has been to provide HOPE wrapped in a different package. Most of the Semi-Colons have tolerated that message with an open mind, and some have even grabbed onto that same hope and formed it into their own unique shape.

So it is with sadness that I realize that I seem to be, as I said in the Gerson thread, a lightning rod for the negative energy from three certain individuals that pervades certain alternative threads and topics.

It grieves me, time and again, to feel the need to defend my truth as my words are being twisted, I am being baited, and stalked. The threads inevitably get derailed.

Never before has it become so personal with lies, perversions and direct attacks toward me. A person can only take so much. I don't need the continuous barrage of attacks when I am just trying to respectfully disseminate information that is asked for in regards to alternative treatments -- treatments that I actually have personal experience with and interest in.

It's no secret that health is my passion. That will not end. But my posting on the boards is becoming a source of contention and division, and the bullies will not stop--I've tried.

It's not fair to our Semi-Colon community. They deserve better behavior. They deserve the freedom to ask any question without fear and deserve the respect that their thread will not be hijacked with personal attacks and hateful discourse.

Today I lost a dear friend and mentor to ovarian cancer. She just had her surgery last month. She was part of our bike club--and she was in her 80's! Her zest for life and love for all was so apparent. Yet, today she is gone from this earth. And to think and say that I would laugh at her dying is reprehensible.

I am hoping by removing the target (me), the bullies will become bored and move on leaving the boards to blossom again in love and support for all. Much like it was before, for the better part of the past 10 years.

It is fitting that I bow out on the anniversary of the day I joined up. It's been a great gig, like I said.

To those who have extended the hand of friendship, I appreciate the love and support. I carry a bit of you all with me, and keep you in my prayers. Thank you so much.

Keep Juicing!!

peace, emily the juice chick (((((((((Semi-Colons)))))))))

John23's picture
John23
Posts: 2140
Joined: Jan 2007

So you're going to leave me here with a bull's eye on my back, all alone?

Youse gotsta' do what youse gotsta' do, sweetie! We talked "off-board",
and you know that we all will miss you dearly here.

The information you provided was helpful to so many, and so difficult to
find elsewhere. I hope you check your PM box from time to time for
those that can use your first-hand experience.

(I'll see you off-line!)

Very best of health!

John

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

John, don't you even THINK about leaving!!!!!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Love you sis...Its definitely not you I worry about. Its those that are not getting your information and missing out on what you have to say.

plh4gail

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

You were always a beacon for me in a very murky world, dear Emily....

I, too, remember feeling so lost...and there you were...along with spongebob, and scouty, and many others....and Mark, who I met for the first and last time in Nashville (a lesson learned about the fragility of life, and the need to treat others with respect and care)...

Congrats on the 10 years!!!! WHAT a milestone!!!!

I send my hugs to you, dear friend, and wish you well!

Hugs from a VERY grateful semi-colon....Kathi

mom_2_3
Posts: 965
Joined: Nov 2008

Emily,

I don't post too often. I tend to take on more than I can manage in my 24-hour days and as a result, I am not as useful a member of this group as I would like. I think about what my level of participation might be 10 years out (God willing). I don't think that I would be posting then as much as you have. You have continued to be a support and fountain of information for this group, despite the fact that you are so far out and despite the fact that you are probably even busier than me. I thank you for that. Your posts have always been well thought out and are not cursory in nature. I have derived personal benefit as I have picked up many of your suggestions in my own life. I am three years into this and I still juice and do certain supplements. You and a few others have been a wonderful source of information and I thank you for that. I know for a fact that I would have never have started my juicing regimen if it hadn't been for you.

Very simply, I believe that cancer results in a faulty immune system. To think that infusing one's body with organic juiced fruits and vegetables isn't better to enhance one's one immune system than eating a Snickers and a Big Mac is just ridiculous. I recommend Food Nation as good reading material for anyone. You helped me get to this point. It is not lost on me that some resort to attacks on you and I haven't quite figured out why. But in addition to time fators, that venom is a factor in not participating as much. The environment here has certainly changed in the past three years I have been here.

Best wishes to you in all your endeavors, big and small.
Amy

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

I am disappointed/saddened that you are leaving the Board. I hope you reconsider--maybe with a little time and space?
I LOVE reading the posts/threads on alternative treatments. Cancer is vicious and changeable, so everything that we learn is important. I also like the intelligent rebuttals and questions, as long as they are not mean spirited and I do not indulge the cranks.
Hope to see more, not less of you Emily. As one mother to another, your posts are important to me.

relaxoutdoors08
Posts: 520
Joined: May 2011

First Congratulations on the 10 years. You are such an inspiration. I found this board after I did Folfox but I used breathing, imagery and relaxation during chemo instead of anti nausea meds during the 5FU phase of Folfox. When I finished Folfox the Integrative Medicine Nurse at Mayo Rochester encouraged me to step it up a notch to prevent recurrence with Tai Chi. I was already doing the Chemo Diet which was the Med. Diet I had been eating for years.

You provided the inspiration for me and so many others for increasing our nutrition with juicing. I sent you a CSN email because I had a few personal questions.

Hope you feel like joining us again as Integrative Medicine becomes part of the total Cancer Treatment Program. Everyone makes choices along the way in our journey through life you were there to provide the information not provided for many on this board.
NB

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

I only recently joined this forum, and I'm sorry to see this level of conflict among people who should be natural allies. Regardless of what route we choose in terms of treatments, we are all fellow warriors in the battle against cancer. I personally do not do a lot of the alternative options, but I do some, mixed with more traditional choices. I like hearing about all the different possibilities, and then picking and choosing which bits work for me. What others choose to do, or not do, has no bearing on my choices. Another person's decisions neither negate nor affirm my own. Why in the world would folks waste precious energy arguing about this? I'm just sorry to have any voices silenced in a community like this...I think the more information that gets put out there, whether alternative or traditional in nature, the better it is for all of us (but maybe that's just the geeky librarian in me). Ann

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

I am sorry you are choosing to leave. I hope that you take with you only the good memories of here and none of the bad. I remember my very 1st post here in June 2009 and I will always cherish the memories of those who reached out to me and helped calm my fears. They are angels, some still on Earth and others not. We are like a family, that sometimes fights and says things we really wish we had not, it is not always easy to see the intent behind a post. But I wish you peace and good health always!!

Good luck in your journey!!

-Chris

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Oh, my dear Emily.

I have tried to tell you how inspiring and lovely I find you.I fear I have lost out to negativity. I am very sad about that. I want to ask you to stay or take a break and come back at a later time. I will miss your lovely face so much!

It's selfish of me to ask you to stay, if you're feeling bullied or stalked. But if you are leaving because you think it will stop the negative comments, you might as well stay. There's always going to be a negative comment here and there.

I value what you have brought to the board, and I hope that you will still be here. If not,I would love to connect with you via facebook (Gail Hedge Keefe) or email (ilyish@hotmail.com.

Love you!

*hugs*
Gail

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

You've helped SO many on this site and I'm very grateful for all you've done. I believe it IS important to get different experiences from people especially since no one KNOWS what causes cancer. We all have our theories, suspicions, and personal beliefs but that is all they are. It's especially impressive (to me) that even though you've been clear for a long time that you've stayed to offer your help via your experiences as to how you dealt with cancer. Many people seem to get better, then they get lost. For whatever reason, they seem to not want to be reminded that they had cancer or maybe they feel they have nothing to offer. We all deal with cancer in our own way and that's fine. It does seem to be a shame when they likely DO have something to offer others.

I certainly understand your reasons for leaving. One would think that since we all have cancer (or most of us had cancer) that there would be a comradarie amongst us where we'd want to work together to help others. Sadly, it turns out that's not always the case, especially if you go against the grain. I have to chuckle how some people can easily accept a higher power without any proof at all, yet if you mention that juicing helped cure your cancer they want a panel to review the case and even then it's often treated with extreme skepticism. Why the concept that there could be more than one way to treat cancer is hard for some to grasp is, well, hard to grasp.

This site has changed in the 6 years that I've been here. Progress has been made with how we treat cancer yet the site has seemed to digress with how we treat each other.

Thank you Em for all you've done.
I will stay in touch with you for sure...
{{{hugs}}}
-phil

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

and anything in between :p Emily sorry you are bowing out, hope it won't be for to long. Will see you on facebook in the meantime.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I sure hope I can type amongst the tears my dear friend!

I so completely understand where you are coming from. I never dreamed cyberbullying would actually happen on a cancer support board. WHO KNEW!!!

But sweetie, I so thank you for helping me learn there were things I could actually control and help within my body. I had no idea way back then.

There is no doubt in my mind that without you on this site, I would most likely be dead today. The opinionated bullies will never understand that since they are so blinded by their opinions and hatreds.

I thank you from the depths of my soul honey and to quote my of my favorite movies "it has been an honor doing battle with you".

I find it very appropriate that my last post on this board will be to you!

My love and sincere thanks always,

Lisa P.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hey gal:)

We missed you at the karaoke bar in Chicago...but knew you had to split...perhaps I'll get another opportunity to butcher a note for you at the next gig:)

It was great meeting you - knew who you were right away. You give the best hugs! Unfortunately, due to our proximity from the main event, I did not have enough of an opportunity to get to talk to you enough and time flew by fast.

I wasn't sure what to expect when I met you - was not sure how you would receive me. But, I found you to be very warm and inviting. You treated me nicely and I appreciate the time we did get to spend....Lisa too...we had a nice chat on the boat tour and at the Blue Frog.

I came away with a better understanding of both of you and I'm glad I got to meet both of you. The years you have invested on the board often go unappreciated. I can honestly say that it takes some kind of commitment to be here on the board daily, weekly or whatever and contribute in a meaningful way. It can definitely take alot out of you.

So, I just wanted to say thank you for taking the time to do that. Congratulations to 10-years on the board and to 10-years with a clear status. Monumental achievements if one just steps back and takes a strong look at all that entails. It's easy for folks to lose sight of those kind of things.

Those of us that serve here on a regular basis when we have or don't have cancer is essential to the growth of this community. I remember seeing some new folks asking questions and the other new folks not having the experience to answer those questions, so you could just see the void in the conversation.

You were here when the board started and the changes you must have seen over the years...I know what I've seen during my tenure here. The board is bigger than any one person can be - by its very nature it has to be. If we're doing it right, then we must serve our time and write our chapters in the book and then one day, pass the torch along to the next generation of cancer fighters. It's hard for me to see myself still being alive in 10-years, much less still posting. But who knows?

I've often wondered how many folks that I grew up with would still be around? I've lost a bunch of friends here as well.

I've always appreciated hearing all sides to cancer and people's approach to it. There is always much to learn, even if we don't act on it right away. It makes an imprint and gives one an idea that they may not have had before.

I've just got this feeling that we will see you again....this place is like a train wreck and as hard as we try, we can't help turning our heads and coming back to check it out.

-Craig

here4lfe
Posts: 306
Joined: Jan 2010

10 years! You deserve all the best in life, and without meeting you, yous positive energy is inspiring.

Best to you and your family

emrose's picture
emrose
Posts: 137
Joined: Dec 2008

I would love, one day, to shake your hand. You do know you saved my husbands life right? And probably mine too. There are no words to express how I really feel about... everything...the journey we've been on... And the role you played. You changed my life Emily, and I will be forever grateful. Honestly, I will never ever forget.

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Emily,
You have been special to me since I joined the board almost 3 years ago. Your encouraging spirit has lifted me up numerous times. I will stay in touch with you so I won't say good bye. I am sad that new people will miss your tender spirit, your encouraging words and your very important story. Dick knows all about your story as we have talked about you and Scouty often.
Go in peace my friend. Breath the fresh air, enjoy your lovely family, rest in God's light.

With love and aloha,
Kathleen

taraHK
Posts: 1961
Joined: Aug 2003

Hey Emily,

I've just posted a message to 'Scouty' Lisa and want to say essentially the same to you

I'm coming up to the 9th anniversary of my diagnosis. You have been a wonderful friend to me during my journey. I don't want to loose touch. I'm not very good at PM but would love to exchange email addresses with you.

I support your decision. I often think about how frightened I was when I came to this board as a newcomer and how much love and support I got at that time. I worry so much that newcomers today might be put off by the b*sh*t going around these days and really miss out.

Live strong!

Tara

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

just don't go, i love you, we all do, even those that maybe reject your approach unkindly.
obviously they don't know they love you, they may never.

you have dared to be different, when it was less trendy to be different.
your story helped me so much, it still does.

we are all dealing with the challenge of crc, and the emotions and friendships around it as well. some don't deal with crc challenges with grace and style and patience. i have occaisionally been less then sensitive in my desire to share info.

i understand, where you are coming from, all i can say is thanks from the bottom of my heart.

you are an inspiration, go if you must with love. come back if you can or want to.

noone can replace your unique contribution, health and juicing and peace.

i have been so focussed on radical alternatives, if i posted here it would get me banned.
thats why i am doing my own blog now and not posting controversial things here, except with the occaisional link.

from where i am at, fighting my likely recurrence you are positively simply mainstream commonsense cancer treatment. variety is the spice of life.

just peace back at you now and always.

hugs,
pete

yoga
Posts: 87
Joined: Feb 2011

Emily,

This is so very sad to read. Because of you - and the other Emily - I have learned about juicing. You have been one of my inspirations here and with all of the reading I have been doing I believe that you were truly ahead of your time ten years ago. I wish you health and a lifetime of love with your children . . . . . and grandchildren to come.

I do hope that you leave your past posts behind so that those of us still here - and others yet to come here - will have the benefit of your knowledge.

yoga jo

zirotra
Posts: 30
Joined: Dec 2011

I havent known you for long. but all i can say is you didnt join this forum for bulleys. you joined this forum to create hope and guide newbies like me. you are full of courage and fought cancer.. how can bulleys bring you down? you leaving the board is in disadvantage of people like me and you are not doing any good by leaving.. who cares about bulleys? we have all seen em in schools and real life. Why stop contributing here because of them?

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Emily,

I typed out a reply here a day ago & don't know what happened to it...
Anyhow, I just want to say that I understand your feelings of leaving- you don't need the board for yourself anymore and you've felt attacked when you've stayed and tried to help others. And you HAVE helped many others- so many appreciate what you've had to say. It's very unfortunate that the predicatable comments of a few that always feel the need to point out the "follies" of anything alternative to traditional western treatments can dominate so many posts and scare people away. I'm not even sharing more about what I'm doing right now (in addition to juicing, becoming vegan, and supplements) because I know it will get slammed. That's sad because no, I no longer feel "safe" in sharing everything here. I'm going to wait until I know if I have good results from it before I share any more about it.

Let's stay in touch- check your pm's from time to time.

Take care,
Lisa

ddpekks's picture
ddpekks
Posts: 162
Joined: Sep 2011

to handle various and different opinions? After reading here for a few months, and today reading the diet thread and both your "quitting" posts, I think that you long time survivors think that perhaps us newbies are not intellegent enough to plow through all the different options (and the BS) out there and make our own decision as to what is right for us individually.

Until today, I thought that each and every person on this site contributed something to my situation. I'm a caregiver to a loving man who has been sentenced to life in cancer He!!. He leans on me and trusts me to help him make informed decisions about his life. When I'm not caring for him or at work, I am on the computer researching, seeking answers and a lot of that is done on this Discussion Board. The other day he said "hey, how about asking your friends ......" meaning, "please post a question for me." I also come here for support, which I have received from most members.

If you choose to be bullied away from this site, so be it, but I for one, would like to know more. And I believe there are others out there like me that don't particularly care for the silly bickering, but do need the knowledge and experience that you have to share.

JMHO

Deb

Goldie1's picture
Goldie1
Posts: 264
Joined: Sep 2011

I am also a caregiver to my husband and we are total newbies on his care and treatment. I for one am always interested in any info that is shared on this board. Right now he is going through conventional treatment but there could be something posted that might be of help in the future, whether it is about juicing, diet, etc. I may not post a lot (because I am so green) but the knowledge I gain by visiting this board, has helped me to help my husband.

Keep on posting!

Ellen C.

toyfox's picture
toyfox
Posts: 158
Joined: Apr 2011

Thanks for all the information and help you have provided over the past ten years.
I have only been on this site for about six months. I am a care giver
for my husband. I lost a son from cancer and a daughter from an accident.
I want to do everything possible to fight the beast...cannot lose another loved one. We are really interested in nutrition to build the immune system. I have looked at quite a few of your posts from the past. I am now into juicing. I hope you will not remove past posts.
Take care....Linda

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Thank you for all the juicing tips and effort for ten years. That's quite a record. We'll miss you. I am truly sorry that CSN is no longer a safe and happy place for you. You deserve a lot more appreciation.

Best wishes to you and yours.

elizabethgd
Posts: 146
Joined: May 2009

I have not visited the board in a long time.. but you were there for me when I came to the board initially...I urge you to continue your sharing of information .. .. your knowledge and experiences are needed by many.. we need to be given an opportunity to hear more than just one opinion... more than one voice.. please continue to make your voice heard. Thank you for all you do .. Elizabeth

sharpy102's picture
sharpy102
Posts: 370
Joined: Apr 2009

Hello:

I don't post much, but I do check in and out of this board...and yeah, I have no idea who is Emily and what actually happened that all of a sudden I'm reading numerous posts how some people decided to leave because of what is going on over the board...I don't know...when I open a topic and don't like the content of it, I just push my "ignore button" and move on without any postings as obviously that would just trigger more that person (or more than one person) who has opposite belief/idea than I do to reply and "argue". I believe that people posting up to the board how they are fed up and therefore leaving isn't a solution at all. That's always the easiest...just to bail out...and not care who would miss them and their advices (many of which hasn't arrived to this board yet). But really, it is all of your call. But I think it is not a solution. I think, simply, if we open a topic to read and someone, we feel, is trying to outsmart someone else, or their treatment, or the lack thereof, just don't reply, and just read the next thread. There's no need to stop and reply and "argue"....those who like to argue will eventually give up as they realize no one is reacting to their thread, and writes back to them for an argument to start. I read tons of posts here, and barely ever leave a note....either because I don't want to get involve in an argument in something that I don't agree with, or simply, it is of no interest to me....by this I'm not trying to be disrespectful, but, I'm sure you all know what I mean. Such when I read people praying for some others, or talk about God and things...I'm not religious and thus, I don't find the need or urge to reply, and say "what are you talking about? There's no God..." or "you're funny you think praying helps"...there's no need for these....if someone believes that's totally fine. If someone finds comfort, help and support in that, that's totally cool. I am not "looking down" at those people. I accept them, this is their view, their belief, their perspective...this is what keeps them going. And it's good for them. If someone believes in alternative treatment, fine, go ahead! I wish the best to you. If someone strictly believes that only medicals can help and drugs and radiation, go ahead! And I wish the best to you as well. And if someone is being obsessively mean, or arrogant about something....I just move on from that thread. I think all of you who started bombarding the topic that you're leaving because of being tired of what is going on should reconsider this. Why would you punish other people who are actually in desperate need of your help/experience/expertize? Why would you give "joy" to the ones who were mean to you over the board? Just don't reply, just don't soak in what they write/say. Just move on to the next thread...there's so many thread here you can choose from, and reply to. Please consider this! Someone out there who is just about to get their first scan result back that will show they have colon cancer will pop up here and will be missing the opportunity to get to know, and get advice from you. Come on! Seriously! You guys should stay...
All the best everyone, whether you believe in alternative treatment, or solely in chemo, or in God, or the without of it, or that diet and exercise helps, or that it ruins everything....whatever you believe in, I wish you the best! :)
- Sophie

Grace14
Posts: 65
Joined: Sep 2011

I could not agree with you more..I belong to the colon club but I come on here and lurk and I also think it's crazy that these two people are leaving because of other peoples opinion to me they are just as bad sorry to say!! I don't mean to be rude but come on it's like High School!!

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

....dittos to what Sophie said, Im with you on that.
Whenever you have a large group of people on a msg board there will always be disagreements people hurt ect. Esp with the ananimity of posting behind a puter screen.
If you think its bad here (I dont) you should see some of the trash that gets spewed on a few fishing msg boards I frequent.

Plz reconsider, 10 yrs is a long time to just walk away. I value your experience and dearly hope I'll be posting here 10yrs from now but never know.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

people get mean on a board about fishing? Not that fishing isn't serious stuff, but...holy cow. And I'm with Sophie-I wish everyone here well regardless of what path they follow (my path involves way too much candy and martinis, but I'm probably in the minority). Ann

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

Thanks Sophie; and to all who have helped me tons on this board, whether you are aware of it or not. Priceless.

all the best, Leslie

thready's picture
thready
Posts: 475
Joined: Sep 2009

Emily, I did want to post here and once again say thank you. I will do the same for Scotty (Lisa). Never have I felt any sort of negative or judgemental post from you or Lisa. Emily and Lisa you have been the bravest and most encouraging individuals one would ever meet. Your knowledge has value beyond riches. This is a sad day.

Although I am not in treatment we are on the constant look out, watching those pesky lymph nodes and spots that for some reason want to just irritate us, they sit there an taunt, I hate that.
I can tell you that your kind words and ever useful information have for me and my family been more useful post treatment than we would have ever thought. You see Emily I get to be one of those who has to deal with all the "possibilities of adverse long term reactions" that chemo can offer. It is in this present situation of more than wanted auto-immune disorders that all your sharing has helped. You and Lisa both provided very valuable information-you both are my role models!

At this time I have the inability to absorb anything of value I get to be anemic, have very low D and B levels,I have lost much of my muscle mass, have difficulty walking and have never ending pain, plus a host of other issues that chemo has caused, but I am so very grateful to be alive, to not be in treatment, to live with the most handsome man alive.

It is because of what you and Lisa were willing to share that I know anything about juicing, about gluten free diet and about eating protien that is not made of beef. It is because of what you have shared that I know what has caused me to lose my mobitly and have never ending pain. It is because of what you have shared that I know soon I will once again be an active person. Things are getting so much better since I spend time juicing and eat a diet glueten reduced (trying to be glueten free just not there yet). From you I have learned that although cancer and treatment haave taken so much-I have the ability to take it back. For that I thank you.

To all the semis out there, something I have learned, no matter what you do-always take care of you! Don't wait. And just so you know I made the choice to have surgery and chemo. Would I do it again- yes but I would go kicking and screeming, with a glass of pom-apple-carrot-grape-parsily juice in my hand.
Love to all Jan

KFalvey
Posts: 118
Joined: Mar 2005

Dear Emily,

I haven't been around for awhile so I missed all the problems this board have developed. I'm really sorry it has happened and really want to Thank You for your post over the years. It was because of you I changed my way of thinking and eating and it also saved my life. I was Stage 3b when diagnosed, had recurrances and 6 surgeries in a 3 year span, was given Folfox4 and Folfiri with Avastin and was told to return for more chemo when I decided to try your way and it worked. I understand your decision but I'm truely sorry for the people on this board who will not have your help and encouragement in the future. God Bless you and your Family! We will miss you very much! Thank you for all your help!

Kandy

crazylady
Posts: 544
Joined: Jun 2004

Dear Emily,

I am very saddened to hear that you are leaving the board. Though I don't post much any more I have always been inspired by how passionate you are and how much you care about everyone.

I wish that all the people on this board could be more open minded. They might actually learn something valuable.

I know that you will continue to teach and help others.

Take care,
Jamie

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Boo, hoo!

I love to read your posts. Thanks for all your help, through the years. Lisa has my email address, maybe you can drop me a line.

Sonja51
Posts: 4
Joined: Mar 2011

I just want you to know that I only posted on this site several times, but many times I searched for your entries. There are not many forums where alternatives are discussed. In fact I can't find any. I found myself as a member on some lymphoma forums, where I was literally run out of town with my crazy alternative viewpoints! So I sympathize.
However, you need to know that you gave me the courage to pursue this road. I have an incurable lymphoma, and one year in I have not received Chemo or any allopathic treatment. That's given me an extra year at the back end the way I see it. I am on a Macrobiotic diet, and juice. I'm not sure if the cancer is retreating yet, but I feel amazing and I'm sure it hasn't grown. You made a difference in my courage to take a stand for my own health. Emily you made a difference to me. Thank you. I'm sorry to see you go and I'm sorry that new cancer victims will not benefit from your convictions. Be well. Live long and prosper.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I'm not a "Victim", I just happen to have cancer...


Sonja51
Posts: 4
Joined: Mar 2011

I just want you to know that I only posted on this site several times, but many times I searched for your entries. There are not many forums where alternatives are discussed. In fact I can't find any. I found myself as a member on some lymphoma forums, where I was literally run out of town with my crazy alternative viewpoints! So I sympathize.
However, you need to know that you gave me the courage to pursue this road. I have an incurable lymphoma, and one year in I have not received Chemo or any allopathic treatment. That's given me an extra year at the back end the way I see it. I am on a Macrobiotic diet, and juice. I'm not sure if the cancer is retreating yet, but I feel amazing and I'm sure it hasn't grown. You made a difference in my courage to take a stand for my own health. Emily you made a difference to me. Thank you. I'm sorry to see you go and I'm sorry that new cancer victims will not benefit from your convictions. Be well. Live long and prosper.

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