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Had My 1st Chemo Treatment

I had my 1st chemo treatment on Tue,. 11/29 and felt great afterwards. On Wed, I was still ok and thought maybe I'd be one of those who doesn't get side effects. They hit about 1:30 a.m on Thursday -- profuse sweating, nausea and dry heaves, and then the awful fatigue/weakness. I also haven't been able to eat much 'cause I have no appetite. Today is Monday and I'm still feeling crappy. I thought most people only get side effects for a couple of days and then recover. Please tell me it does get better.

Comments

  • jazzy1
    jazzy1 Member Posts: 1,379
    Noodles
    Yes it does get better. I had my infusion and took me approx 4-5 days before I was what I'd call "normal self". I had a bit of nauseous symptoms which helped with meds and was achy all over my body. Be kind to yourself and rest, as your body needs to recover. Also drink lots of fluids...so very important and if you can get something "small" amounts of food in your stomach. Can't function without some food inside us, so keep crackers and small bites of food close and nibbling throughout the day. Don't force big amounts at one setting, but smaller meals/snacks.

    What drugs are you on? When's your next infusion? Chemo is cumulative so watch out as the last few might be a bit worse, and if you're lucky, you just fly thru them as well.

    Hang in there and glad you're feeling good!!
    Jan
  • noodles886
    noodles886 Member Posts: 25
    jazzy1 said:

    Noodles
    Yes it does get better. I had my infusion and took me approx 4-5 days before I was what I'd call "normal self". I had a bit of nauseous symptoms which helped with meds and was achy all over my body. Be kind to yourself and rest, as your body needs to recover. Also drink lots of fluids...so very important and if you can get something "small" amounts of food in your stomach. Can't function without some food inside us, so keep crackers and small bites of food close and nibbling throughout the day. Don't force big amounts at one setting, but smaller meals/snacks.

    What drugs are you on? When's your next infusion? Chemo is cumulative so watch out as the last few might be a bit worse, and if you're lucky, you just fly thru them as well.

    Hang in there and glad you're feeling good!!
    Jan

    My 1st Infusion
    Today is day 5 and was hoping to feel a little better. Managed to have a croissant, cup of chicken soup w/noodles and 2 scrambled eggs today. Trying to drink lots of water too. It was chore eating them. I'm in the clinical trial and am on 3 drugs (can't remember names right now). My 1st infusion was only 2 drugs since I had recently had surgery and they couldn't give one of the drugs. My next infusion is Dec. 20 but I have to go for bloodwork on Dec. and a doctor's appointment on Dec. 16. My legs are like jelly so the thought of going anywhere is frightening. Went outside in my driveway for a short walk which was torture.
  • noodles886
    noodles886 Member Posts: 25

    My 1st Infusion
    Today is day 5 and was hoping to feel a little better. Managed to have a croissant, cup of chicken soup w/noodles and 2 scrambled eggs today. Trying to drink lots of water too. It was chore eating them. I'm in the clinical trial and am on 3 drugs (can't remember names right now). My 1st infusion was only 2 drugs since I had recently had surgery and they couldn't give one of the drugs. My next infusion is Dec. 20 but I have to go for bloodwork on Dec. and a doctor's appointment on Dec. 16. My legs are like jelly so the thought of going anywhere is frightening. Went outside in my driveway for a short walk which was torture.

    Fever
    I've also been running a low grade fever since my infusion (99.3). Doctor's office says that's ok as long as it doesn't go above 100.5. Anyone else run a fever?
  • Kaleena
    Kaleena Member Posts: 2,059

    Fever
    I've also been running a low grade fever since my infusion (99.3). Doctor's office says that's ok as long as it doesn't go above 100.5. Anyone else run a fever?

    I ran a low grade fever off
    I ran a low grade fever off and on for awhile. I was told the same thing. As long as it is below 100, it is ok.
  • Ro10
    Ro10 Member Posts: 1,561
    Kaleena said:

    I ran a low grade fever off
    I ran a low grade fever off and on for awhile. I was told the same thing. As long as it is below 100, it is ok.

    Noodles hope you are feeling better
    Hope your next treatments go easier for you. Do you have anti nausea medicine to take after your treatments? I took decadron and compazine for three days after my treatments and did not have any nausea. Tell your doctor how you felt after your first treatment and maybe he can give you something to help with the symptoms. In peace and caring.
  • Double Whammy
    Double Whammy Member Posts: 2,832
    Ro10 said:

    Noodles hope you are feeling better
    Hope your next treatments go easier for you. Do you have anti nausea medicine to take after your treatments? I took decadron and compazine for three days after my treatments and did not have any nausea. Tell your doctor how you felt after your first treatment and maybe he can give you something to help with the symptoms. In peace and caring.

    When food was awful
    I forced myself to eat things like scrambled eggs (protein), smoothies (through a straw, I could get past the metallic taste that way), and ice cream was always, always comforting. I would think I was hungry for something and I'd try to eat it and be unable to. But those three things I could typically eat so that's what I ate when I didn't feel like eating. And rice. You do need calories. They're really important. I was always able to drink but again used a straw a lot. I don't drink enough under normal circumstances, but I knew how important this was during chemo, so I drank lots of water all the time.

    Yes, I ran a fever - every single cycle. It might get to 100.5 in the evening when I wasn't about to go to the ER, but then it would go down. A couple of times it would be during the day and I'd make myself go to the doctor and they'd get all crazy for a little while looking for an infection they never found and send me off on antibiotics with a lecture about what to be on the lookout for that never happened. Best to be safe with the fevers.

    Crazy, scarey chemo. Most side effects can be managed, so be sure to tell your doctor about what you're experiencing. I got help for diarrhea and mystery infections/fevers, skin toxicity, and was watched carefully for low blood pressure, tachycardia, and anemia. My nausea was managed well with meds after chemo.

    Hang in there and check back for support. That's what we're here for.

    Suzanne
  • noodles886
    noodles886 Member Posts: 25

    When food was awful
    I forced myself to eat things like scrambled eggs (protein), smoothies (through a straw, I could get past the metallic taste that way), and ice cream was always, always comforting. I would think I was hungry for something and I'd try to eat it and be unable to. But those three things I could typically eat so that's what I ate when I didn't feel like eating. And rice. You do need calories. They're really important. I was always able to drink but again used a straw a lot. I don't drink enough under normal circumstances, but I knew how important this was during chemo, so I drank lots of water all the time.

    Yes, I ran a fever - every single cycle. It might get to 100.5 in the evening when I wasn't about to go to the ER, but then it would go down. A couple of times it would be during the day and I'd make myself go to the doctor and they'd get all crazy for a little while looking for an infection they never found and send me off on antibiotics with a lecture about what to be on the lookout for that never happened. Best to be safe with the fevers.

    Crazy, scarey chemo. Most side effects can be managed, so be sure to tell your doctor about what you're experiencing. I got help for diarrhea and mystery infections/fevers, skin toxicity, and was watched carefully for low blood pressure, tachycardia, and anemia. My nausea was managed well with meds after chemo.

    Hang in there and check back for support. That's what we're here for.

    Suzanne

    Food
    I remember my mom telling me that when I was a little girl and was sick, all I wanted to eat was swiss cheese and potato chips. Have no idea why I wanted that combo. Today my hubby went out and bought them and I loved them! Didn't eat too much 'cause I didn't want to shock my system. I think the salt from chipsand protein from cheese gave me some energy. He also bought me some ice cream so I'll try that later.
  • noodles886
    noodles886 Member Posts: 25
    Ro10 said:

    Noodles hope you are feeling better
    Hope your next treatments go easier for you. Do you have anti nausea medicine to take after your treatments? I took decadron and compazine for three days after my treatments and did not have any nausea. Tell your doctor how you felt after your first treatment and maybe he can give you something to help with the symptoms. In peace and caring.

    Nausea
    Nausea hasn't been a problem for me. I do have Zofran and Compazine on hand. I took the Zofran for 2 days after my treatment as a precaution.
  • noodles886
    noodles886 Member Posts: 25
    Ro10 said:

    Noodles hope you are feeling better
    Hope your next treatments go easier for you. Do you have anti nausea medicine to take after your treatments? I took decadron and compazine for three days after my treatments and did not have any nausea. Tell your doctor how you felt after your first treatment and maybe he can give you something to help with the symptoms. In peace and caring.

    Nausea
    Nausea hasn't been a problem for me. I do have Zofran and Compazine on hand. I took the Zofran for 2 days after my treatment as a precaution.
  • JoAnnDK
    JoAnnDK Member Posts: 275

    Nausea
    Nausea hasn't been a problem for me. I do have Zofran and Compazine on hand. I took the Zofran for 2 days after my treatment as a precaution.

    EMEND
    Ask your doctor for EMEND. It is billed as an anti-nausea drug, but what it really does is help with the "I have the worst flu in the world and have also been run over by a truck" feeling.

    I had the worst side effects and I do not mind telling you that. No one told me what it could be like. Or that it was cumulative. My side effects lasted for 19 out of the 21 days after my infusion and then did me the favor of lingering for another 6 months. The last 3 months of that time I gradually started to feel human and stronger.

    Best wishes to you.

    JOANN
  • noodles886
    noodles886 Member Posts: 25
    JoAnnDK said:

    EMEND
    Ask your doctor for EMEND. It is billed as an anti-nausea drug, but what it really does is help with the "I have the worst flu in the world and have also been run over by a truck" feeling.

    I had the worst side effects and I do not mind telling you that. No one told me what it could be like. Or that it was cumulative. My side effects lasted for 19 out of the 21 days after my infusion and then did me the favor of lingering for another 6 months. The last 3 months of that time I gradually started to feel human and stronger.

    Best wishes to you.

    JOANN

    Feeling Better
    Took 6 days but finally started eating more on Wed & Thur. Appetite seems to be returning and fatigue isn't as bad. My next infusion is December 20 so I wonder how I'll feel afterwards. Was hoping to be ok for Xmas but I guess I'll just take it one day at a time.
  • imackie48
    imackie48 Member Posts: 96

    Feeling Better
    Took 6 days but finally started eating more on Wed & Thur. Appetite seems to be returning and fatigue isn't as bad. My next infusion is December 20 so I wonder how I'll feel afterwards. Was hoping to be ok for Xmas but I guess I'll just take it one day at a time.

    Meds
    Noodles, did you have to take all the premeds prior to your infusion, I mean like 12 hrs and 6 hrs, I'm starting chemo Jan I'm stage 1a, I'm having adjuvant therapy. I'm am scared as heck, Im already thin and don't want to lose any more weight, I'm glad I'm retired 63, I don't know how woman go to work feeling like this. I have this UPSC cell, how about you ?
    Well I hope your other treatments get better. How long is the infusion?
    Take care
    irene
  • LizGrrr
    LizGrrr Member Posts: 124
    imackie48 said:

    Meds
    Noodles, did you have to take all the premeds prior to your infusion, I mean like 12 hrs and 6 hrs, I'm starting chemo Jan I'm stage 1a, I'm having adjuvant therapy. I'm am scared as heck, Im already thin and don't want to lose any more weight, I'm glad I'm retired 63, I don't know how woman go to work feeling like this. I have this UPSC cell, how about you ?
    Well I hope your other treatments get better. How long is the infusion?
    Take care
    irene

    Chemo no big whoop - until later :)
    I had my first UPSC Ia chemo Monday. Like Noodles, it went smoothly for me- relaxing to recline for 5 hours. Needle was easy, no pain, but lots of peeing due to the amount of saline in the various bags (including anti nausea, anti allergy, anti heartburn pre meds). Felt good until the next night when soreness hit, and the past 3 days have been uncomfortable but not excruciating. Bad, for sure, but not as bad as I'd feared. I've got a good appetite but did get constipated, but prune juice/milk of magnesia cocktail does the job. I've heard the first session is the worst because it's closest to surgery, but time will tell. The day-after shot of neulasta also produces bone pain because it stimulates bone marrow activity.

    Anyhow, it gets better. Power through it!
  • noodles886
    noodles886 Member Posts: 25
    LizGrrr said:

    Chemo no big whoop - until later :)
    I had my first UPSC Ia chemo Monday. Like Noodles, it went smoothly for me- relaxing to recline for 5 hours. Needle was easy, no pain, but lots of peeing due to the amount of saline in the various bags (including anti nausea, anti allergy, anti heartburn pre meds). Felt good until the next night when soreness hit, and the past 3 days have been uncomfortable but not excruciating. Bad, for sure, but not as bad as I'd feared. I've got a good appetite but did get constipated, but prune juice/milk of magnesia cocktail does the job. I've heard the first session is the worst because it's closest to surgery, but time will tell. The day-after shot of neulasta also produces bone pain because it stimulates bone marrow activity.

    Anyhow, it gets better. Power through it!

    Allergic Reaction
    I had my 2nd chemo treatment on 12/20 and had an allergic reaction to one of the drugs. Was surprised 'cause I had been given that drug during the 1st treatment with no problem.
    My face/chest got flushed and very red; they had to stop the infusion. Gave me some more Benedryl, waited 1/2 hour and then started infusion again at a slower rate. All was fine after that. Having same side effects again -- loss of appetite and fatigue but no diarrhea or nausea/vomiting. Last time this lasted 6 days and now I'm on day 3. My hubby made homemade chicken soup last night and I even had a hard time eating that.
  • LizGrrr
    LizGrrr Member Posts: 124

    Allergic Reaction
    I had my 2nd chemo treatment on 12/20 and had an allergic reaction to one of the drugs. Was surprised 'cause I had been given that drug during the 1st treatment with no problem.
    My face/chest got flushed and very red; they had to stop the infusion. Gave me some more Benedryl, waited 1/2 hour and then started infusion again at a slower rate. All was fine after that. Having same side effects again -- loss of appetite and fatigue but no diarrhea or nausea/vomiting. Last time this lasted 6 days and now I'm on day 3. My hubby made homemade chicken soup last night and I even had a hard time eating that.

    Glad to hear
    That must have been scare Noodles! Like you, my side effects from round 1 lasted 6 days. Clinic staff said it wasn't normal but nothing to worry about (just something to deal with). Glad your hubby is supportive and a good cook!

    Happy holidays,
    Liz in Dallas