starting hyperthermia with iv vit c, thank god, what a nice xmas present.

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited December 2011 in Colorectal Cancer #1
god works in mysterious ways.

i got news today that i can start down melbourne to iv vit c and hyperthermia.

its a 12 hour drive, i may take the kids and our little 4wd motorhome as i think the protocol is 6 sessions over 6 weeks. i will know more on monday when i call to book appointments.

now i think i can relax this weekend and go back to meditation and exercise.

all my treatment options are organised, i need a rest, its been a very very busy
week, but i though i would share the news. i am so satisfied that going to the conference only this time 2 weeks ago has opened up a few excellent alternative treatments.

now if my cea is down next friday great, if its up great, becuse i have everything i can do this week.

again the sensitivity of my tumours to hyperthermia and vit c will be tested in the rgcc test.

if i have a little micromet trying to take root somewhere its days are numbered. i am going to the gym now.

hugs,
pete
«1

Comments

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    $?
    If I may be so bold, how much do they ask for treatments a la carte'?
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    tanstaafl said:

    $?
    If I may be so bold, how much do they ask for treatments a la carte'?

    its about the same price as a massge
    of course you can ask tanstaafl,

    each hyperthermia is about $120 it lasts for 2 hours.

    the iv vit c is about $250 depending on vit c dose.

    so say $400 for each week, its goes for 6 weeks.
    so about $2400, but i think it will be less, i am almost friends with these guys,
    we are out of money at the moment as i have been hammering the supplements.

    did you see i am doing rgcc for the ctc tests. have a look at the press release on the rgcc usa website. i value your opinion.

    have you research hyperthermia yourself ?

    basically the iv vit c price is is reasonable here or melbourne. i know you can buy a bottle of the stuff for only $68, i am going to ask my nurse friends if they csan put me of a drip and i'll do it myself if i need to continuie.

    initially i want the care, guidance and support of the only practicioneer in australia who has the most experience. he has a 4 month waiting list, he replied the same day, he said come down straight away. going on cancer retreats, going on conferences, beiong known and making a contribution on the local seen has i believe meant the door was open straight away when i needed the treatment.

    i will have to drive to melbourne, 11 hours away and live with family and friends. melbourne is lovelly.

    hugs,
    pete
  • lauragb
    lauragb Member Posts: 370 Member

    its about the same price as a massge
    of course you can ask tanstaafl,

    each hyperthermia is about $120 it lasts for 2 hours.

    the iv vit c is about $250 depending on vit c dose.

    so say $400 for each week, its goes for 6 weeks.
    so about $2400, but i think it will be less, i am almost friends with these guys,
    we are out of money at the moment as i have been hammering the supplements.

    did you see i am doing rgcc for the ctc tests. have a look at the press release on the rgcc usa website. i value your opinion.

    have you research hyperthermia yourself ?

    basically the iv vit c price is is reasonable here or melbourne. i know you can buy a bottle of the stuff for only $68, i am going to ask my nurse friends if they csan put me of a drip and i'll do it myself if i need to continuie.

    initially i want the care, guidance and support of the only practicioneer in australia who has the most experience. he has a 4 month waiting list, he replied the same day, he said come down straight away. going on cancer retreats, going on conferences, beiong known and making a contribution on the local seen has i believe meant the door was open straight away when i needed the treatment.

    i will have to drive to melbourne, 11 hours away and live with family and friends. melbourne is lovelly.

    hugs,
    pete

    I am continually intrigued
    I am continually intrigued by all of the work and research you are doing. I just feel
    like there is so much going on out there in the world that I don't know about......
    Thanks for sharing,
    Laura
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member

    its about the same price as a massge
    of course you can ask tanstaafl,

    each hyperthermia is about $120 it lasts for 2 hours.

    the iv vit c is about $250 depending on vit c dose.

    so say $400 for each week, its goes for 6 weeks.
    so about $2400, but i think it will be less, i am almost friends with these guys,
    we are out of money at the moment as i have been hammering the supplements.

    did you see i am doing rgcc for the ctc tests. have a look at the press release on the rgcc usa website. i value your opinion.

    have you research hyperthermia yourself ?

    basically the iv vit c price is is reasonable here or melbourne. i know you can buy a bottle of the stuff for only $68, i am going to ask my nurse friends if they csan put me of a drip and i'll do it myself if i need to continuie.

    initially i want the care, guidance and support of the only practicioneer in australia who has the most experience. he has a 4 month waiting list, he replied the same day, he said come down straight away. going on cancer retreats, going on conferences, beiong known and making a contribution on the local seen has i believe meant the door was open straight away when i needed the treatment.

    i will have to drive to melbourne, 11 hours away and live with family and friends. melbourne is lovelly.

    hugs,
    pete

    size
    Approximately how big was your blood sample that got sent to Greece, small/large test tube(s), vials, a US/GB pint?

    "... i know you can buy a bottle of the stuff for only $68"
    how many grams of vitamin C per bottle there? the standard bottle (50 ml vial actually) in the US has been 25 grams of vitamin C dissolved in 50 milliliters of concentrated solution but various patients have ranged 25-200 grams per infusion. Also color counts, the concentrate is yellow to brown or clear liquid?
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    lauragb said:

    I am continually intrigued
    I am continually intrigued by all of the work and research you are doing. I just feel
    like there is so much going on out there in the world that I don't know about......
    Thanks for sharing,
    Laura

    thanks laura, i am also continually intrigued
    hi Laura,
    I get so few posts and replies for all my research, i know what i learn is good for my
    health. given family and time commitments and my research and experimentation on myself.

    I am effectiviely going on an xmass break for about 8 weeks, most of which will be hyperthermia in melbourne.

    I am taking a break from csn forum 128 until my cea is dam well back to zero.

    re "so much going on in the world" well i think yes, now i am mixing circles that are i believe on the cutting edge of cancer treatments in greece, germany and austria.
    i will post of my adventures on my blog.

    merry xmass and good health.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    tanstaafl said:

    size
    Approximately how big was your blood sample that got sent to Greece, small/large test tube(s), vials, a US/GB pint?

    "... i know you can buy a bottle of the stuff for only $68"
    how many grams of vitamin C per bottle there? the standard bottle (50 ml vial actually) in the US has been 25 grams of vitamin C dissolved in 50 milliliters of concentrated solution but various patients have ranged 25-200 grams per infusion. Also color counts, the concentrate is yellow to brown or clear liquid?

    less than a coke can
    not a pint, more than a siringe.

    as for the vit c, i just was offered medical grade vit c for iv, sounds reasonable they buy it for $68 and charge us $300 per infusion, thats life in our medical system here.

    i did not buy the iv vit c so i have no details, sorry. ,
    i have another product vitc and k3 coming, its called apatone, great for prostrate , its also tested by rgcc.

    info about apatone
    http://advancedprostatecancer.net/?p=302

    not sure why my newest integrative specialist is recommended this, its about $15 per week.
    I will find out, i have not fully researched it. most of the time i take the advice of my specialists and fill in the blanks when i have time.

    i got k2 drops today $120 for a bottle, could have purchased it over the net for much less.
    but i had a 3 hour discussion with a pharmacologist compounding chemist about my entire protocol, every supplement and every cofactor. my mind is still digesting it all. yes i am on all the supplements he would recommend, he said to drop a few and pick up some others which i will do.

    Products / Vitamin Section
    Vitamin K2 Liquid
    concentrated vitamin K2 in a convenient liquid form
    effective in maintaining bone health*
    combine with vitamin D for optimal bone health*
    supports a healthy cardiovascular system*
    provides nutritional support for oncology patients*
    Item Product Size Price
    K170 Vitamin K2 Liquid 1 fl oz (30 mL) $61.20
    PRODUCT INFO INGREDIENTS WARNINGS
    Product Information
    Vitamin K2 exerts a more powerful influence on bone than does vitamin K1.* Vitamin K2 is a series of molecules known as menaquinones, some of which are found naturally in fermented soybeans. The most common and well studied of the menaquinones is MK-4. Thorne's vitamin K2 is MK-4.

    Vitamin K2 appears to offer significant benefit for supporting bone health.* Although much of the vitamin K2 research has been conducted on postmenopausal support for bones, because vitamin K2 does not have any estrogenic effects, vitamin K2 also offers bone support for other populations, including anorexics, dialysis patients, individuals with Parkinson's disease, those who have cirrhosis of the liver, individuals who have had a bone marrow transplant, those immobilized after a stroke, and individuals on chronic steroid therapy.*

    Thorne's Vitamin K2 Liquid supplies 1 mg of vitamin K2 per drop. Research shows doses up to 15 mg three times daily may be used.*

    given most on folofx have steroids i wonder if k2 is helpful. if you saw my comments above i am having a break here and focusing on meditation and healing and hyperthermia.

    practised hypermthermia tonight in the bath, got core body temp up to 38.6 and a racing heart beat, interesting times i am living in.

    my best wishes to you and for your wife health and happiness this xmass and beyond.
    i will be updating my blog with my adventures and coming here not as often.
    thanks for all the advice support over the last year.

    hugs,
    pete
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member

    less than a coke can
    not a pint, more than a siringe.

    as for the vit c, i just was offered medical grade vit c for iv, sounds reasonable they buy it for $68 and charge us $300 per infusion, thats life in our medical system here.

    i did not buy the iv vit c so i have no details, sorry. ,
    i have another product vitc and k3 coming, its called apatone, great for prostrate , its also tested by rgcc.

    info about apatone
    http://advancedprostatecancer.net/?p=302

    not sure why my newest integrative specialist is recommended this, its about $15 per week.
    I will find out, i have not fully researched it. most of the time i take the advice of my specialists and fill in the blanks when i have time.

    i got k2 drops today $120 for a bottle, could have purchased it over the net for much less.
    but i had a 3 hour discussion with a pharmacologist compounding chemist about my entire protocol, every supplement and every cofactor. my mind is still digesting it all. yes i am on all the supplements he would recommend, he said to drop a few and pick up some others which i will do.

    Products / Vitamin Section
    Vitamin K2 Liquid
    concentrated vitamin K2 in a convenient liquid form
    effective in maintaining bone health*
    combine with vitamin D for optimal bone health*
    supports a healthy cardiovascular system*
    provides nutritional support for oncology patients*
    Item Product Size Price
    K170 Vitamin K2 Liquid 1 fl oz (30 mL) $61.20
    PRODUCT INFO INGREDIENTS WARNINGS
    Product Information
    Vitamin K2 exerts a more powerful influence on bone than does vitamin K1.* Vitamin K2 is a series of molecules known as menaquinones, some of which are found naturally in fermented soybeans. The most common and well studied of the menaquinones is MK-4. Thorne's vitamin K2 is MK-4.

    Vitamin K2 appears to offer significant benefit for supporting bone health.* Although much of the vitamin K2 research has been conducted on postmenopausal support for bones, because vitamin K2 does not have any estrogenic effects, vitamin K2 also offers bone support for other populations, including anorexics, dialysis patients, individuals with Parkinson's disease, those who have cirrhosis of the liver, individuals who have had a bone marrow transplant, those immobilized after a stroke, and individuals on chronic steroid therapy.*

    Thorne's Vitamin K2 Liquid supplies 1 mg of vitamin K2 per drop. Research shows doses up to 15 mg three times daily may be used.*

    given most on folofx have steroids i wonder if k2 is helpful. if you saw my comments above i am having a break here and focusing on meditation and healing and hyperthermia.

    practised hypermthermia tonight in the bath, got core body temp up to 38.6 and a racing heart beat, interesting times i am living in.

    my best wishes to you and for your wife health and happiness this xmass and beyond.
    i will be updating my blog with my adventures and coming here not as often.
    thanks for all the advice support over the last year.

    hugs,
    pete

    xmas
    It's hard to tell about tumor cell recovery and sample size, this could be a limiting factor with RGCC. We pay our money, kick the tires and hope it works. I am all for viable cell testing, we'll have to see how this one works out.

    We initially used K3 3x a week, now just once weekly. We use high dose K2 daily, I'm reasonably certain it works well with the immunochemotherapy. We found our own nurse and supplies were the best deal on IVC although our cross town doctor has the magic hand for IV inserts, my wife is nearing IVC#400. Tired veins, especially since nurse has limited range, whereas our doctor can do deep veins in a lot more places. My wife has a thermal bed, got it for her back, but still doesn't use it much, especially since her back got better with all the vit D, supplements and diet. We wish you and yours a Merry Xmas Pete, drop me a PM if you like.
  • John23
    John23 Member Posts: 2,122 Member

    less than a coke can
    not a pint, more than a siringe.

    as for the vit c, i just was offered medical grade vit c for iv, sounds reasonable they buy it for $68 and charge us $300 per infusion, thats life in our medical system here.

    i did not buy the iv vit c so i have no details, sorry. ,
    i have another product vitc and k3 coming, its called apatone, great for prostrate , its also tested by rgcc.

    info about apatone
    http://advancedprostatecancer.net/?p=302

    not sure why my newest integrative specialist is recommended this, its about $15 per week.
    I will find out, i have not fully researched it. most of the time i take the advice of my specialists and fill in the blanks when i have time.

    i got k2 drops today $120 for a bottle, could have purchased it over the net for much less.
    but i had a 3 hour discussion with a pharmacologist compounding chemist about my entire protocol, every supplement and every cofactor. my mind is still digesting it all. yes i am on all the supplements he would recommend, he said to drop a few and pick up some others which i will do.

    Products / Vitamin Section
    Vitamin K2 Liquid
    concentrated vitamin K2 in a convenient liquid form
    effective in maintaining bone health*
    combine with vitamin D for optimal bone health*
    supports a healthy cardiovascular system*
    provides nutritional support for oncology patients*
    Item Product Size Price
    K170 Vitamin K2 Liquid 1 fl oz (30 mL) $61.20
    PRODUCT INFO INGREDIENTS WARNINGS
    Product Information
    Vitamin K2 exerts a more powerful influence on bone than does vitamin K1.* Vitamin K2 is a series of molecules known as menaquinones, some of which are found naturally in fermented soybeans. The most common and well studied of the menaquinones is MK-4. Thorne's vitamin K2 is MK-4.

    Vitamin K2 appears to offer significant benefit for supporting bone health.* Although much of the vitamin K2 research has been conducted on postmenopausal support for bones, because vitamin K2 does not have any estrogenic effects, vitamin K2 also offers bone support for other populations, including anorexics, dialysis patients, individuals with Parkinson's disease, those who have cirrhosis of the liver, individuals who have had a bone marrow transplant, those immobilized after a stroke, and individuals on chronic steroid therapy.*

    Thorne's Vitamin K2 Liquid supplies 1 mg of vitamin K2 per drop. Research shows doses up to 15 mg three times daily may be used.*

    given most on folofx have steroids i wonder if k2 is helpful. if you saw my comments above i am having a break here and focusing on meditation and healing and hyperthermia.

    practised hypermthermia tonight in the bath, got core body temp up to 38.6 and a racing heart beat, interesting times i am living in.

    my best wishes to you and for your wife health and happiness this xmass and beyond.
    i will be updating my blog with my adventures and coming here not as often.
    thanks for all the advice support over the last year.

    hugs,
    pete

    Costs, costs, and more costs.
    There are times that I feel terrible knowing that a month and a half
    worth of the eight herbs I used in a decoction, had only cost me
    $120 or so per month and a half......

    I haven't taken the herbs for over two years now, and probably
    should start taking them again for six month intervals.

    I guess I'm not doing too bad for a cc4 that was told in 2006,
    that a possible 2-3 year prognosis could be had if I use chemo...

    But they tell me that I'm just a lucky guy because I used medicinal
    strength Chinese herbs instead of man-made chemicals.

    I have trouble understanding why so many people fear not doing
    what is "scientifically acceptable", and doing something that might
    actually save their lives.....

    I have even more trouble understanding why anyone would want
    to spend all their money on products that have not even been
    proven to work by actual practice..... instead of a very small
    amount of money on something that's been tested and proved
    in actual practice and experience.

    Go figger'....


    Best hopes for all that try so hard

    John
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member

    less than a coke can
    not a pint, more than a siringe.

    as for the vit c, i just was offered medical grade vit c for iv, sounds reasonable they buy it for $68 and charge us $300 per infusion, thats life in our medical system here.

    i did not buy the iv vit c so i have no details, sorry. ,
    i have another product vitc and k3 coming, its called apatone, great for prostrate , its also tested by rgcc.

    info about apatone
    http://advancedprostatecancer.net/?p=302

    not sure why my newest integrative specialist is recommended this, its about $15 per week.
    I will find out, i have not fully researched it. most of the time i take the advice of my specialists and fill in the blanks when i have time.

    i got k2 drops today $120 for a bottle, could have purchased it over the net for much less.
    but i had a 3 hour discussion with a pharmacologist compounding chemist about my entire protocol, every supplement and every cofactor. my mind is still digesting it all. yes i am on all the supplements he would recommend, he said to drop a few and pick up some others which i will do.

    Products / Vitamin Section
    Vitamin K2 Liquid
    concentrated vitamin K2 in a convenient liquid form
    effective in maintaining bone health*
    combine with vitamin D for optimal bone health*
    supports a healthy cardiovascular system*
    provides nutritional support for oncology patients*
    Item Product Size Price
    K170 Vitamin K2 Liquid 1 fl oz (30 mL) $61.20
    PRODUCT INFO INGREDIENTS WARNINGS
    Product Information
    Vitamin K2 exerts a more powerful influence on bone than does vitamin K1.* Vitamin K2 is a series of molecules known as menaquinones, some of which are found naturally in fermented soybeans. The most common and well studied of the menaquinones is MK-4. Thorne's vitamin K2 is MK-4.

    Vitamin K2 appears to offer significant benefit for supporting bone health.* Although much of the vitamin K2 research has been conducted on postmenopausal support for bones, because vitamin K2 does not have any estrogenic effects, vitamin K2 also offers bone support for other populations, including anorexics, dialysis patients, individuals with Parkinson's disease, those who have cirrhosis of the liver, individuals who have had a bone marrow transplant, those immobilized after a stroke, and individuals on chronic steroid therapy.*

    Thorne's Vitamin K2 Liquid supplies 1 mg of vitamin K2 per drop. Research shows doses up to 15 mg three times daily may be used.*

    given most on folofx have steroids i wonder if k2 is helpful. if you saw my comments above i am having a break here and focusing on meditation and healing and hyperthermia.

    practised hypermthermia tonight in the bath, got core body temp up to 38.6 and a racing heart beat, interesting times i am living in.

    my best wishes to you and for your wife health and happiness this xmass and beyond.
    i will be updating my blog with my adventures and coming here not as often.
    thanks for all the advice support over the last year.

    hugs,
    pete

    Hey Pete...I looked at the
    Hey Pete...I looked at the apatone on line, looks really interesting....kinda back to the cancer loves sugar, and apatone looks like sugar to the cancer so it takes it in. The trials look promising. May I ask do you need a prescription for this?? How are you getting it.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    smokeyjoe said:

    Hey Pete...I looked at the
    Hey Pete...I looked at the apatone on line, looks really interesting....kinda back to the cancer loves sugar, and apatone looks like sugar to the cancer so it takes it in. The trials look promising. May I ask do you need a prescription for this?? How are you getting it.

    any good compounding pharmistict can make it
    i did need a script from my integrative doctor before they would supply.
    it cost $118 delivered 200 capsules, at 6 capsules a day its $30 per week, not cheap.

    you maybe be able to source it cheaper.

    hugs,
    pete
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    John23 said:

    Costs, costs, and more costs.
    There are times that I feel terrible knowing that a month and a half
    worth of the eight herbs I used in a decoction, had only cost me
    $120 or so per month and a half......

    I haven't taken the herbs for over two years now, and probably
    should start taking them again for six month intervals.

    I guess I'm not doing too bad for a cc4 that was told in 2006,
    that a possible 2-3 year prognosis could be had if I use chemo...

    But they tell me that I'm just a lucky guy because I used medicinal
    strength Chinese herbs instead of man-made chemicals.

    I have trouble understanding why so many people fear not doing
    what is "scientifically acceptable", and doing something that might
    actually save their lives.....

    I have even more trouble understanding why anyone would want
    to spend all their money on products that have not even been
    proven to work by actual practice..... instead of a very small
    amount of money on something that's been tested and proved
    in actual practice and experience.

    Go figger'....


    Best hopes for all that try so hard

    John

    oops
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    John23 said:

    Costs, costs, and more costs.
    There are times that I feel terrible knowing that a month and a half
    worth of the eight herbs I used in a decoction, had only cost me
    $120 or so per month and a half......

    I haven't taken the herbs for over two years now, and probably
    should start taking them again for six month intervals.

    I guess I'm not doing too bad for a cc4 that was told in 2006,
    that a possible 2-3 year prognosis could be had if I use chemo...

    But they tell me that I'm just a lucky guy because I used medicinal
    strength Chinese herbs instead of man-made chemicals.

    I have trouble understanding why so many people fear not doing
    what is "scientifically acceptable", and doing something that might
    actually save their lives.....

    I have even more trouble understanding why anyone would want
    to spend all their money on products that have not even been
    proven to work by actual practice..... instead of a very small
    amount of money on something that's been tested and proved
    in actual practice and experience.

    Go figger'....


    Best hopes for all that try so hard

    John

    integrative TCM
    John, probably a new thread, what do think a TCM doc would say about trying to add some part of your menu to a massive integrative effort like my wife's?
  • John23
    John23 Member Posts: 2,122 Member
    tanstaafl said:

    integrative TCM
    John, probably a new thread, what do think a TCM doc would say about trying to add some part of your menu to a massive integrative effort like my wife's?

    tanstaafl -
    Most orthodox TCM practitioners do not like to use medicinal
    herbs in the manner western medicine uses chemicals.

    By that.... western medicine treats the symptom(s) -not- the
    reason for the symptoms, and the herbs I've personally used
    are all "dose dependent" I.E. : they only work when you take
    them. (same as chemo)

    The TCM physician prefers to get to the root cause of the
    reason the cancer was allowed to grow, and fix that.

    At the time of my diagnosis (and the poor prognosis), I didn't
    feel I had the time to "do it right"; I wanted the cancer gone
    as soon as possible, and then begin TCM treatments later.

    My TCM doc didn't agree with my use of herbs in that manner,
    since he doesn't use them in that manner, but he did understand
    my position. He was there if I needed any help. He did admit
    that the herbs were well known to do as the reports claimed.

    The individuals I met at the supplier's shop (customers) all said
    that the first two herbs on my list were used by cancer patients
    with amazing results. (one of the two herbs are being studied by
    Merck - but using one will not work; the two are used in combination)

    There is absolutely no reason not to use the herbs in combination
    with chemo, or any other modality, but I would strongly recommend
    any individual trying to treat themselves with herbs or otherwise,
    have a qualified practitioner they can call upon for help if needed.

    The last herb on my list can present problems for the kidneys if
    too much is taken. I developed a problem, called (and went to) my
    TCM doc for verification of my diagnosis. He agreed and gave me
    a decoction for it; I was back to normal the next day. That is why
    a TCM practitoner or very qualified herbalist is required.
    (that last herb btw, can be left out altogether; a small amount
    helps urine flow, while too much will restrict urine flow)

    If nothing else, the first two herbs are reported to do wonders.
    They not only address cancer cells, but help restore the immune system.
    The cost averages around $5 to $6 per pound for each of those herbs.
    One pound will last about 6 weeks. Since the decoction calls for
    a two to one ration, one pound of one herb will last longer...

    Neither of those two herbs are known to cause any problems
    or interactions with any other herbs or chemicals.

    Inexpensive to try, and safe as all hell. I can't understand anyone's
    reluctance to try it.

    Since I used a bevy of the various herbs, I can't say which one may
    have made the spots in my lungs and liver disappear.... or if the
    herbs actually did anything at all. But I did not do chemo or radiation,
    and dearly hope I will never have to. (original cc4 dx 2006)

    (I never had a restrictive diet; I ate fat, red meat, junk food,
    and drink like a fish. I presently get magnesium via PICC due
    to the last operation)

    (I have not taken the herbs for over two years now; and may start
    again tomorrow... All these recurrances around here are starting to
    scare me).

    The loss of most of my intestines due to adhesions and obstructions
    may make herbal broths a thing of the past for me, since my system
    no longer absorbs much of anything it should.

    If for any reason things fall apart and I need to turn to some other
    modality, I'll find out who Phil's physicians are, and head north for
    a visit.

    Unless of course, I can take herbal broths via PICC line......
    (wouldn't that be a neat experiment?)

    Take care, and be well (wife too!)

    John
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member

    any good compounding pharmistict can make it
    i did need a script from my integrative doctor before they would supply.
    it cost $118 delivered 200 capsules, at 6 capsules a day its $30 per week, not cheap.

    you maybe be able to source it cheaper.

    hugs,
    pete

    Apatone schedule?
    Pete, "6 caps a day", is that divided into 6 times? I see Apatone has been tried from 1x per day, up to every 2 hours (8-9x/day).
  • jimch
    jimch Member Posts: 2

    any good compounding pharmistict can make it
    i did need a script from my integrative doctor before they would supply.
    it cost $118 delivered 200 capsules, at 6 capsules a day its $30 per week, not cheap.

    you maybe be able to source it cheaper.

    hugs,
    pete

    same product?
    http://www.iherb.com/Life-Enhancement-ProsStay-180-Capsules/12321?at=0
  • jimch
    jimch Member Posts: 2
    John23 said:

    tanstaafl -
    Most orthodox TCM practitioners do not like to use medicinal
    herbs in the manner western medicine uses chemicals.

    By that.... western medicine treats the symptom(s) -not- the
    reason for the symptoms, and the herbs I've personally used
    are all "dose dependent" I.E. : they only work when you take
    them. (same as chemo)

    The TCM physician prefers to get to the root cause of the
    reason the cancer was allowed to grow, and fix that.

    At the time of my diagnosis (and the poor prognosis), I didn't
    feel I had the time to "do it right"; I wanted the cancer gone
    as soon as possible, and then begin TCM treatments later.

    My TCM doc didn't agree with my use of herbs in that manner,
    since he doesn't use them in that manner, but he did understand
    my position. He was there if I needed any help. He did admit
    that the herbs were well known to do as the reports claimed.

    The individuals I met at the supplier's shop (customers) all said
    that the first two herbs on my list were used by cancer patients
    with amazing results. (one of the two herbs are being studied by
    Merck - but using one will not work; the two are used in combination)

    There is absolutely no reason not to use the herbs in combination
    with chemo, or any other modality, but I would strongly recommend
    any individual trying to treat themselves with herbs or otherwise,
    have a qualified practitioner they can call upon for help if needed.

    The last herb on my list can present problems for the kidneys if
    too much is taken. I developed a problem, called (and went to) my
    TCM doc for verification of my diagnosis. He agreed and gave me
    a decoction for it; I was back to normal the next day. That is why
    a TCM practitoner or very qualified herbalist is required.
    (that last herb btw, can be left out altogether; a small amount
    helps urine flow, while too much will restrict urine flow)

    If nothing else, the first two herbs are reported to do wonders.
    They not only address cancer cells, but help restore the immune system.
    The cost averages around $5 to $6 per pound for each of those herbs.
    One pound will last about 6 weeks. Since the decoction calls for
    a two to one ration, one pound of one herb will last longer...

    Neither of those two herbs are known to cause any problems
    or interactions with any other herbs or chemicals.

    Inexpensive to try, and safe as all hell. I can't understand anyone's
    reluctance to try it.

    Since I used a bevy of the various herbs, I can't say which one may
    have made the spots in my lungs and liver disappear.... or if the
    herbs actually did anything at all. But I did not do chemo or radiation,
    and dearly hope I will never have to. (original cc4 dx 2006)

    (I never had a restrictive diet; I ate fat, red meat, junk food,
    and drink like a fish. I presently get magnesium via PICC due
    to the last operation)

    (I have not taken the herbs for over two years now; and may start
    again tomorrow... All these recurrances around here are starting to
    scare me).

    The loss of most of my intestines due to adhesions and obstructions
    may make herbal broths a thing of the past for me, since my system
    no longer absorbs much of anything it should.

    If for any reason things fall apart and I need to turn to some other
    modality, I'll find out who Phil's physicians are, and head north for
    a visit.

    Unless of course, I can take herbal broths via PICC line......
    (wouldn't that be a neat experiment?)

    Take care, and be well (wife too!)

    John

    first two herbs on list?
    John, you may have discussed this elsewhere, but would you be willing to share the names of the first two herbs on your list so I can research them. Thank you.
  • Kimo Sabe
    Kimo Sabe Member Posts: 64

    any good compounding pharmistict can make it
    i did need a script from my integrative doctor before they would supply.
    it cost $118 delivered 200 capsules, at 6 capsules a day its $30 per week, not cheap.

    you maybe be able to source it cheaper.

    hugs,
    pete

    Upcoming treatments
    Pete,

    Please do keep us posted on your progress. I have an interest in the modalities you are going to use.

    I had a friend some 25 years ago with metastatic prostate cancer. He had three days of intensive hyperthermic treatment, and experienced a virtual remission. He felt good for at least a year without the pains et cetera. In fact, he felt so good that he stopped seeing doctors. Unfortunately, he died at age 49 of prostate cancer. I have wondered why we don't hear more about hyperthermic treatment.

    I have been involved over the past year in a project related to football injuries. We've looked at injuries and of course the hot topic of head injuries. We've also considered corporate aspects, cultural issues, etc. I haven't personally done very much in the last six months due to my cancer. We are however almost done and ready for presentation shortly.

    Along the way, another person and I have become quite interested in the potential for both vitamin C and hyperbaric oxygen therapy to help (cell) recovery from head injury. Some of the principles here seem to me to apply also to cancer.

    Best wishes and keep us posted.

    Norm
  • John23
    John23 Member Posts: 2,122 Member
    jimch said:

    first two herbs on list?
    John, you may have discussed this elsewhere, but would you be willing to share the names of the first two herbs on your list so I can research them. Thank you.

    Hi jimch -

    All the info regarding my poisons of choice, along with as much
    other data and links as I have time to dig up, are all on the
    "Blog" section of the ACS provided "personal space" right
    here on this website.

    I do try to add to and update data as I have time to, and/or
    as new information comes to my attention.

    I'm trying to build a small section designated to ostomy specific
    purposes also. Other's ideas, personal choices, and personal
    experiences, are also welcomed here, with the hopes it will
    all benefit others.

    You can check to se if any member here has info, blog or otherwise,
    by clicking on their name and going to their "About Me" page.
    (As with all blog pages, don't forget to click the "read more" button)

    (Link: John23's ACS Personal Blog page)

    Best wishes!

    John
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    jimch said:
    I looked at the life
    I looked at the life enhancement .... looks to be the same....the one on line supplier is out of stock.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Kimo Sabe said:

    Upcoming treatments
    Pete,

    Please do keep us posted on your progress. I have an interest in the modalities you are going to use.

    I had a friend some 25 years ago with metastatic prostate cancer. He had three days of intensive hyperthermic treatment, and experienced a virtual remission. He felt good for at least a year without the pains et cetera. In fact, he felt so good that he stopped seeing doctors. Unfortunately, he died at age 49 of prostate cancer. I have wondered why we don't hear more about hyperthermic treatment.

    I have been involved over the past year in a project related to football injuries. We've looked at injuries and of course the hot topic of head injuries. We've also considered corporate aspects, cultural issues, etc. I haven't personally done very much in the last six months due to my cancer. We are however almost done and ready for presentation shortly.

    Along the way, another person and I have become quite interested in the potential for both vitamin C and hyperbaric oxygen therapy to help (cell) recovery from head injury. Some of the principles here seem to me to apply also to cancer.

    Best wishes and keep us posted.

    Norm

    spent a day flying to another city to see the hyperthermia
    it was a really interesting experience, i am not doing hyperthermia until and if i started again on chemo. i still have much more research to do, the principles seem promising but its proven effacicy is in conjunction with chemo, and not iv C on its own.

    i am learning that life in the alternative universe has many challenges as well. i still love my conventional team and am seeing them monday and tuesday. i suspect i will have my chemo port back in before i post again.

    i am grateful and sad at the same time.

    hugs,
    pete