chronic celulitis?

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robang13
robang13 Member Posts: 333
I know you all must be getting tired of hearing me complain about this, but I was wondering if anyone else has a chronic case of this? This is my 4th infection since my feb. surgery. It's getting real annoying now. First the redness, then the swelling, then the shooting pains, then the fever. The worst part is the antibiotics to get rid of it! I am on cipro since it seems to work for me and I'm allergic to everything else. Cipro adds to the aches in the joints that I already have from the tamoxifen. Makes you wonder if the cure is worse than the sickness : ).

My surgeon told me that some woman get it once a year, while others it turns into a chronic condition and the only way to treat it is with antibiotics.He did a sonogram in his office and while there is some fluid and scar tissue, it's not enough to warrant surgery. So I just have to live with it. Does anyone else live with this? It's really getting depressing. I feel great for a week or two and then it starts all over. I'm so tired of feeling this way it makes me want to scream~

Angela
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  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    Lalalilala...ditto!
    Hi Angela - As you already know, I'm going through the same thing. I am taking antibiotics 4 times a day, for 6-7 weeks (poor kidneys of mine). I really don't like taking additional drugs. But it is very uncomfortable to feel your breast 5 pounds heavier, swollen, and with shooting pains. I have to say there is less pain, but when I wear a bra of something that has direct contact with breast, it starts hurting - more like throbbing pains (beating).

    I'm worried about the infection spreading or causing my beast to be removed because of it. I also hear that some Doctors decide to drain the fluid, but mine hasn't made up her mind yet. Plus we still don't know if there is any fluid. One thing I meant to mention, this infection started right after I had my mammo. It was so painful! I had just finished my rads a few weeks before (probably 3).

    I really hope we both get better soon.
  • robang13
    robang13 Member Posts: 333
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    Lalalilala...ditto!
    Hi Angela - As you already know, I'm going through the same thing. I am taking antibiotics 4 times a day, for 6-7 weeks (poor kidneys of mine). I really don't like taking additional drugs. But it is very uncomfortable to feel your breast 5 pounds heavier, swollen, and with shooting pains. I have to say there is less pain, but when I wear a bra of something that has direct contact with breast, it starts hurting - more like throbbing pains (beating).

    I'm worried about the infection spreading or causing my beast to be removed because of it. I also hear that some Doctors decide to drain the fluid, but mine hasn't made up her mind yet. Plus we still don't know if there is any fluid. One thing I meant to mention, this infection started right after I had my mammo. It was so painful! I had just finished my rads a few weeks before (probably 3).

    I really hope we both get better soon.

    What doctor are you going to
    What doctor are you going to for this? I went to my surgeon the other day. Normally my rads onc was treating me for it but he wanted my surgeon to have a look. My surgeon did a sonogram right there in his office to see how much fluid was in there. Maybe you should ask about getting one after you finish your meds? Like I said before, the meds you are on are not strong ones compared to the others out there. I am taking Cipro. I get good results from them in a week or 2 when an infection starts IF I catch it before it gets too bad. Maybe you should ask about changing meds if these don't work by the end of 7 weeks? You can take them even if allergic to penicillin. I don't think the infection would spread to cause your breast to be removed. I mean I sure as heck hope not!! Now you have given me something else to worry about :) Kidding~

    I know it's uncomfortable as heck! I had to wear a bra today and am paying for it now. I never thought I would be going bra-less at 51!! Were you told to put on warm compresses? I keep forgetting to do it, but he said it would help.

    Fingers crossed for the both of us!
    I wonder if we are the only 2 here that are getting this?

    Angela
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    I see my rad Dr. because my
    I see my rad Dr. because my surgeon refuses to see me. A lot of times they just look and say "oh it's normal after treatments!". Ugh. So my rad. took it upon herself to treat me since she was the last Dr. I dealt with. Everyone else blames it on the radiation...since it changes the tissue inside. I will def. ask for more drugs if this continues. I see her on Wed. - YAY! :-/

    I am not using hot compresses. Should I? Then if so I will start. Thanks for the tip!

    Don't worry about what I said...LOL, I just always over think, but in our situation, I think we can be excused of that. :)

    I so much hope this ends for the both of us. I know there were other ladies who have experienced this in the past, but probably a lot less than us.

    I started to go braless last February! Ever since the surgery, I can't wear a thing. I hope THIS doesn't start a new issue...(e.g. back problems, changes in tissue because they hang low? lol).

    Anyway...I will def. keep you posted on my recovery and see how long it lasts. Please keep me updated about yours as well.

    Anyone else here with same issues?....
  • robang13
    robang13 Member Posts: 333
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    I see my rad Dr. because my
    I see my rad Dr. because my surgeon refuses to see me. A lot of times they just look and say "oh it's normal after treatments!". Ugh. So my rad. took it upon herself to treat me since she was the last Dr. I dealt with. Everyone else blames it on the radiation...since it changes the tissue inside. I will def. ask for more drugs if this continues. I see her on Wed. - YAY! :-/

    I am not using hot compresses. Should I? Then if so I will start. Thanks for the tip!

    Don't worry about what I said...LOL, I just always over think, but in our situation, I think we can be excused of that. :)

    I so much hope this ends for the both of us. I know there were other ladies who have experienced this in the past, but probably a lot less than us.

    I started to go braless last February! Ever since the surgery, I can't wear a thing. I hope THIS doesn't start a new issue...(e.g. back problems, changes in tissue because they hang low? lol).

    Anyway...I will def. keep you posted on my recovery and see how long it lasts. Please keep me updated about yours as well.

    Anyone else here with same issues?....

    Nice surgeon!! Mine is just
    Nice surgeon!! Mine is just a breast surgeon and prides himself on listening. He told me when I first went to him that if I needed anything or had any questions to call him any time night or day. He also said that no question is a dumb question if it is bothering me. He seems to care. Whenever I have called his office he gets right on the phone. But you are right, they have a tendency to say things are just normal. I don't think swelling and pain are normal! I also love my rads onc. He seems to listen also and really care what I think.

    I started going braless after my surgery this feb. Never thought I would do it. I bought a bunch of tank tops and wear one under a regular loose fitting shirt and you can't tell. I am big breasted so I thought it would look horrid, but it actually looks better. They actually look smaller. Weird!

    I was just laying here tonight and started to feel my breast, strange things I do now, and felt this huge lump shaped thing on the inner bottom. I made my daughter feel it too. Now, I just saw him on Monday and he felt the crap out of me and sonogramed me, so it shouldn't be anything, yet I worry. I'm going to see if it's still here on Mond and call him to see what he has to say. Do we ever stop worrying??!!

    Yes, warm, compresses I was told. I was using a heating pad and that felt good, so I guess that's good too?

    Talk to you soon!! What is your first name, by the way?

    Angela
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    Hi again! :0)My first name
    Hi again! :0)

    My first name is Rebecca.

    Funny you mentioned about feeling your breasts and feeling a "lump" like shape thing...hmmm..in the lower side? So do I! It feels like scar tissue, but I worry because the feeling is so strange, as if there was something there that didn't belong, and it's attached to my breast wall, right? Harder the rest of the tissue. Yup. We never stop worrying! What can I say? You should always triple check, but also allow some room for trust (on our doctors). We are just on the wrong boat so it's difficult not to worry all the time. I feel like i am on a raise all the time..so I get it.

    I love your photo.
  • robang13
    robang13 Member Posts: 333
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    Hi again! :0)My first name
    Hi again! :0)

    My first name is Rebecca.

    Funny you mentioned about feeling your breasts and feeling a "lump" like shape thing...hmmm..in the lower side? So do I! It feels like scar tissue, but I worry because the feeling is so strange, as if there was something there that didn't belong, and it's attached to my breast wall, right? Harder the rest of the tissue. Yup. We never stop worrying! What can I say? You should always triple check, but also allow some room for trust (on our doctors). We are just on the wrong boat so it's difficult not to worry all the time. I feel like i am on a raise all the time..so I get it.

    I love your photo.

    Rebecca,

    Yes, the lower side. Mine is my right breast, so lower left side attached to the breast wall!! Yes, harder than the rest. Weird feeling. I can't find it in my other breast, but then again that one is a lot bigger too so I might not be able to? I never felt it before so it took me by surprise. I can't believe it grew in 3 days so it must have been there, I hope. I will call him on Monday if I still feel it just to settle my mind.

    Thanks, that is my poor Sandi. She died 2 years ago from oral cancer! Talk about a surprise. Never even thought a dog could get that. It came fast and furious too. She had 2 surgeries but it had already spread before we even saw the lump. She was gone within 6 months at the age of 13. I will be extra careful of any pet I have from now on to always check their gums. I never want to go through that again!!

    Talk to you soon. We haven't gotten any other answers, so I think we may be in the minority here.

    Angela
  • missrenee
    missrenee Member Posts: 2,136 Member
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    robang13 said:

    Rebecca,

    Yes, the lower side. Mine is my right breast, so lower left side attached to the breast wall!! Yes, harder than the rest. Weird feeling. I can't find it in my other breast, but then again that one is a lot bigger too so I might not be able to? I never felt it before so it took me by surprise. I can't believe it grew in 3 days so it must have been there, I hope. I will call him on Monday if I still feel it just to settle my mind.

    Thanks, that is my poor Sandi. She died 2 years ago from oral cancer! Talk about a surprise. Never even thought a dog could get that. It came fast and furious too. She had 2 surgeries but it had already spread before we even saw the lump. She was gone within 6 months at the age of 13. I will be extra careful of any pet I have from now on to always check their gums. I never want to go through that again!!

    Talk to you soon. We haven't gotten any other answers, so I think we may be in the minority here.

    Angela

    I have read your posts and
    some of my situation is similar but I don't think exactly the same as what you two ladies have going on. I had a lumpectomy in Dec. '09 and a re-excision for clear margins about a week later. Well--now it's been almost 2 years and I still have a large, hard lump--sort of attached to the ribs in my lower left breast along with slight (some days) to moderate (other days) swelling. I have always had shooting type pains since the surgery. Both my surgeon and med. onc. tell me they are "post-op" changes and the swelling represents a degree of lymphedema. I have also seen a lymph.therapist. Seems like this is something I will have to live with. No one has ever mentioned cellulitis and I have not had redness or fever.

    Hugs, Renee
  • New Flower
    New Flower Member Posts: 4,294
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    I see my rad Dr. because my
    I see my rad Dr. because my surgeon refuses to see me. A lot of times they just look and say "oh it's normal after treatments!". Ugh. So my rad. took it upon herself to treat me since she was the last Dr. I dealt with. Everyone else blames it on the radiation...since it changes the tissue inside. I will def. ask for more drugs if this continues. I see her on Wed. - YAY! :-/

    I am not using hot compresses. Should I? Then if so I will start. Thanks for the tip!

    Don't worry about what I said...LOL, I just always over think, but in our situation, I think we can be excused of that. :)

    I so much hope this ends for the both of us. I know there were other ladies who have experienced this in the past, but probably a lot less than us.

    I started to go braless last February! Ever since the surgery, I can't wear a thing. I hope THIS doesn't start a new issue...(e.g. back problems, changes in tissue because they hang low? lol).

    Anyway...I will def. keep you posted on my recovery and see how long it lasts. Please keep me updated about yours as well.

    Anyone else here with same issues?....

    no HOT compresses
    please make sure nothing hot, including hot tub too.
    Warm and hot are two different things.
    Wishing you both get well soon
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
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    Cellulitis
    I worked an a facility that had 60 residents a few years back and we had a guy that would get celulitis about 3-5 times a year. Considering he did not have cancer I guess it seemed like a lot of times to me. So I can see how cancer running down your body could easily make you a bit more suseptible. Perhaps your suseptibility to this will decrease once you are done with treatment.

    My daughter was allergic to the cheaper anti biotics and she always seemed to get strep throat about 10 yrs ago. I hope you have health insurance as this used to be a very expensive antibiotic and one of the few my daughter could take.
  • robang13
    robang13 Member Posts: 333
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    missrenee said:

    I have read your posts and
    some of my situation is similar but I don't think exactly the same as what you two ladies have going on. I had a lumpectomy in Dec. '09 and a re-excision for clear margins about a week later. Well--now it's been almost 2 years and I still have a large, hard lump--sort of attached to the ribs in my lower left breast along with slight (some days) to moderate (other days) swelling. I have always had shooting type pains since the surgery. Both my surgeon and med. onc. tell me they are "post-op" changes and the swelling represents a degree of lymphedema. I have also seen a lymph.therapist. Seems like this is something I will have to live with. No one has ever mentioned cellulitis and I have not had redness or fever.

    Hugs, Renee

    Renee,
    We have 2 things going on. the cellulitis and now we both noticed this hard lump. I never felt this lump before. It is exactly where you said yours is. And yes, it seems swollen. I too had a lumpectomy and then re-incision for clear margins resulting in a partial mastectomy. What you say makes sense because my onc did tell me I had lymphedema there a month ago! It just took me by surprise last night when I felt it. I did just see my surgeon on monday so I don't think it's something that grew in 3 days, but it is reassuring that others have it too! I don't think what you are describing is cellulitis. You would know if you had it because it makes it's presence known: swelling, heaviness, shooting pains, a low grade fever, cold like symptoms,tiredness, achiness in the breast, sometimes trouble breathing, redness, sometimes itchiness and it doesn't go away on it's own. Hopefully you will never get this~

    Hugs, angela
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
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    missrenee said:

    I have read your posts and
    some of my situation is similar but I don't think exactly the same as what you two ladies have going on. I had a lumpectomy in Dec. '09 and a re-excision for clear margins about a week later. Well--now it's been almost 2 years and I still have a large, hard lump--sort of attached to the ribs in my lower left breast along with slight (some days) to moderate (other days) swelling. I have always had shooting type pains since the surgery. Both my surgeon and med. onc. tell me they are "post-op" changes and the swelling represents a degree of lymphedema. I have also seen a lymph.therapist. Seems like this is something I will have to live with. No one has ever mentioned cellulitis and I have not had redness or fever.

    Hugs, Renee

    I have never had this and I
    I have never had this and I hope I don't. That is awful that it takes so long to clear up. I wish you the best and hope the antibiotics get rid of it soon for you.


    Hugs, Jan
  • robang13
    robang13 Member Posts: 333
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    I have never had this and I
    I have never had this and I hope I don't. That is awful that it takes so long to clear up. I wish you the best and hope the antibiotics get rid of it soon for you.


    Hugs, Jan

    Thanks Jan! I hope this is
    Thanks Jan! I hope this is my last encounter with it.4 times is way too many for me! My surgeon thinks it may be a chronic condition though. For once I hope he is wrong : )


    angela
  • jnl
    jnl Member Posts: 3,869 Member
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    robang13 said:

    Thanks Jan! I hope this is
    Thanks Jan! I hope this is my last encounter with it.4 times is way too many for me! My surgeon thinks it may be a chronic condition though. For once I hope he is wrong : )


    angela

    Hoping your surgeon is wrong
    Hoping your surgeon is wrong too! Praying that the cellulitis will clear up and never come back.


    Hugs, Leeza
  • robang13
    robang13 Member Posts: 333
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    jnl said:

    Hoping your surgeon is wrong
    Hoping your surgeon is wrong too! Praying that the cellulitis will clear up and never come back.


    Hugs, Leeza

    Thanks Leeza : ) I sure
    Thanks Leeza : ) I sure hope he is wrong too. I've had enough of this already!

    Angela
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    robang13 said:

    Thanks Leeza : ) I sure
    Thanks Leeza : ) I sure hope he is wrong too. I've had enough of this already!

    Angela

    Hi Angela!
    So I went to see my rad Dr. yesterday and she said I must likely have edema. The breast is still swollen and somewhat still pink. She said it can take up to 2 years for this to go away. Now, I don’t want to wait two years! I am trying to get a second opinion. She didn’t give me more antibiotics to take as she thinks it’s not an infection. Ugh! Help please? Anyhow, just wanted to give you an update. I hope you’re feeling much better by now.

    BTW, here’s a link I found that may be helpful to you: http://community.breastcancer.org/forum/6/topic/766595

    I was also told (by my nutritionist), there are rare cases of early stages of localized lymphedema. We’ll see about that. She also suggested acupuncture (not in the affected area, but on the surrounded areas).

    It feels so heavy and annoying right now (breast)….

    Ok, hugs to you!
  • Megan M
    Megan M Member Posts: 3,000
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    Hi Angela!
    So I went to see my rad Dr. yesterday and she said I must likely have edema. The breast is still swollen and somewhat still pink. She said it can take up to 2 years for this to go away. Now, I don’t want to wait two years! I am trying to get a second opinion. She didn’t give me more antibiotics to take as she thinks it’s not an infection. Ugh! Help please? Anyhow, just wanted to give you an update. I hope you’re feeling much better by now.

    BTW, here’s a link I found that may be helpful to you: http://community.breastcancer.org/forum/6/topic/766595

    I was also told (by my nutritionist), there are rare cases of early stages of localized lymphedema. We’ll see about that. She also suggested acupuncture (not in the affected area, but on the surrounded areas).

    It feels so heavy and annoying right now (breast)….

    Ok, hugs to you!

    I hope you can get a 2nd
    I hope you can get a 2nd opinion LoveBabyJesus as you have been treating this for long. If your doctor didn't give you any more antibiotics, what did she suggest then?

    I hope both of you can get this cleared up.

    Hugs, Megan
  • robang13
    robang13 Member Posts: 333
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    Hi Angela!
    So I went to see my rad Dr. yesterday and she said I must likely have edema. The breast is still swollen and somewhat still pink. She said it can take up to 2 years for this to go away. Now, I don’t want to wait two years! I am trying to get a second opinion. She didn’t give me more antibiotics to take as she thinks it’s not an infection. Ugh! Help please? Anyhow, just wanted to give you an update. I hope you’re feeling much better by now.

    BTW, here’s a link I found that may be helpful to you: http://community.breastcancer.org/forum/6/topic/766595

    I was also told (by my nutritionist), there are rare cases of early stages of localized lymphedema. We’ll see about that. She also suggested acupuncture (not in the affected area, but on the surrounded areas).

    It feels so heavy and annoying right now (breast)….

    Ok, hugs to you!

    I was told I had that the
    I was told I had that the second time around. He gave me the cipro for it and it worked. Did she ever think that the ones she gave you just aren't strong enough for for this?! If you look up cellulitits meds they list cipro or the one I was on before but you would be allergic to it since it is a cousin of penicillin. I would get a second opinion for sure because it just doesn't sound right. My rads onc. told me with the edema that the cipro would take care of it and it did until my latest outbreak. If it is edema the application of warm compresses and massage will help, but if the inside is infected you need an antibiotic that will work for it. The one you are on is more for mouth problems than body parts. So if you took one that isn't specified for the breast it will not do anything. I'm really confused as to why she put you on that in the first place. I have never been given that by anyone except my dentist! Please go to some-one who will listen to you and treat you correctly. You shouldn't be suffering this long with this!! I would ask for the cipro from who-ever you go to. It has worked 4 times for me in 10 days!!

    I am feeling better, for now. Just finished my 10th day. Hopefully it will stay away this time or atleast longer than a month!! Let me know what you do. I am concerned about you : )

    Hugs,

    Angela
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    robang13 said:

    I was told I had that the
    I was told I had that the second time around. He gave me the cipro for it and it worked. Did she ever think that the ones she gave you just aren't strong enough for for this?! If you look up cellulitits meds they list cipro or the one I was on before but you would be allergic to it since it is a cousin of penicillin. I would get a second opinion for sure because it just doesn't sound right. My rads onc. told me with the edema that the cipro would take care of it and it did until my latest outbreak. If it is edema the application of warm compresses and massage will help, but if the inside is infected you need an antibiotic that will work for it. The one you are on is more for mouth problems than body parts. So if you took one that isn't specified for the breast it will not do anything. I'm really confused as to why she put you on that in the first place. I have never been given that by anyone except my dentist! Please go to some-one who will listen to you and treat you correctly. You shouldn't be suffering this long with this!! I would ask for the cipro from who-ever you go to. It has worked 4 times for me in 10 days!!

    I am feeling better, for now. Just finished my 10th day. Hopefully it will stay away this time or atleast longer than a month!! Let me know what you do. I am concerned about you : )

    Hugs,

    Angela

    Thanks for the information
    Thanks for the information Angela!!! I appreciate your concern. :)

    I saw my primary Dr. today and mentioned it to him. He looked at it and said I have signs of localized lymphodema (the skin looks like an orange skin). Ugh - I give up! I really want this to clear for me, badly. I will call my oncologist to ask about this again, thanks for your suggestion. And I will def. let you know what happens. In the meantime, I'm having a sonogram of my entire abdominal area because of pains I've been having.

    So glad you're feeling better. I hope it continues that way.

    Hugs to you!!!
  • robang13
    robang13 Member Posts: 333
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    Thanks for the information
    Thanks for the information Angela!!! I appreciate your concern. :)

    I saw my primary Dr. today and mentioned it to him. He looked at it and said I have signs of localized lymphodema (the skin looks like an orange skin). Ugh - I give up! I really want this to clear for me, badly. I will call my oncologist to ask about this again, thanks for your suggestion. And I will def. let you know what happens. In the meantime, I'm having a sonogram of my entire abdominal area because of pains I've been having.

    So glad you're feeling better. I hope it continues that way.

    Hugs to you!!!

    When they do the sonogram
    When they do the sonogram you should ask them to do your breast too. Mine did it in his office. This way they can see if there is extra fluid in there or not. If there is it may have to be drained.

    Good luck!!!
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
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    robang13 said:

    When they do the sonogram
    When they do the sonogram you should ask them to do your breast too. Mine did it in his office. This way they can see if there is extra fluid in there or not. If there is it may have to be drained.

    Good luck!!!

    Thanks Angie! Wow, really? I
    Thanks Angie! Wow, really? I will ask then. I hope they say YES!!!! Ir not, I will ask my primary Dr. to help me. :)

    I hope you have a lovely weekend.