Insular Thyroid Cancer

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kimdebern
kimdebern Member Posts: 1
in Thyroid Cancer #1
Hi, everyone. I was wondering if anyone else here have been diagnosed with insular thyroid cancer? I was diagnosed with this about 5 years ago and have had 3 RAI treatments. Now my thyroglobulin level is rising. Was 8 in 2010, 11 in 6-2011 and now it is 16. I think I have had my lifetime max of RAI, and I am just wondering what is next.

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  • sunnyaz
    sunnyaz Member Posts: 582
    #2
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    Insular Thyroid Cancer
    I don't know a lot about your type of cancer. I do know that it is more rare than others. I did find this however in an article:

    Insular carcinoma has been shown to be thyroglobulin-positive and calcitonin-and carcinoembryonic-antigen-negative.

    This is where the information came from
    http://findarticles.com/p/articles/mi_m0BUM/is_5_82/ai_102274507/

    I would be inclined to ask for a PET scan to see if there is metastasis. If nothing is found I wouldn't worry about your Thyroglobulin levels as it seems to be the nature of this type of cancer.

    If metastasis is found, they will typically go to External Beam Radiation. Sometimes in extreme cases Chemotherapy can be used.

    I hope this helps a little.

    Blessings,
    Julie-SunnyAZ
  • Unknown
    Unknown
    #3
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    itc
    hi i was diagnosed with itc in march 2011 after first being thought to have atc there is a trial currently recruiting called e7080 world wide you can look it up on google under insular thyroid cancer e7080 trial good luck

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