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osmotar
osmotar Member Posts: 1,006
in Head and Neck Cancer #1
Tomorrow I will be 1/3 of the way thru my rad treatments...not so bad so far. I see the rad doc every wed and he says I am doing well, keeping my weight, my mouth is a little sore, but no sores, the right side of my throat hurts a tad when I swallow, dry mouth annoying but manageable, still have saliva function..... BUT, a favorite friend of mine , my taste is slowly leaving me, adios, aloha, adieu my friend, I hope you come back sooner than much later. I was hoping you would stay until after the Thanksgiving celebration :(

Oh well, it is what it is, and I'm in it for the long haul, as Dylan Thomas wrote " Do not go gentle into that good night".

Blessings and Light

Linda

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
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    I'LL BE BACK....
    More than likely, things are going to start changing more and more....

    But by next year you shoud be weel on your way to enjoying Turkey Day.

    It's a small sacrifice for the chance to enjoy many more Thanksgivings...

    Yes, it stinks, but like you said basically, "It is what it is"....

    Thoughts With You,
    John
  • osmotar
    osmotar Member Posts: 1,006
    #3
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    Skiffin16 said:

    I'LL BE BACK....
    More than likely, things are going to start changing more and more....

    But by next year you shoud be weel on your way to enjoying Turkey Day.

    It's a small sacrifice for the chance to enjoy many more Thanksgivings...

    Yes, it stinks, but like you said basically, "It is what it is"....

    Thoughts With You,
    John

    Amen
    Amen to that...next year
  • osmotar
    osmotar Member Posts: 1,006
    #4
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    Skiffin16 said:

    I'LL BE BACK....
    More than likely, things are going to start changing more and more....

    But by next year you shoud be weel on your way to enjoying Turkey Day.

    It's a small sacrifice for the chance to enjoy many more Thanksgivings...

    Yes, it stinks, but like you said basically, "It is what it is"....

    Thoughts With You,
    John

    Amen
    Amen to that...next year
  • osmotar
    osmotar Member Posts: 1,006
    #5
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    osmotar said:

    Amen
    Amen to that...next year

    I
    I hate it when my finger stutters :)
  • Hondo
    Hondo Member Posts: 6,636 Member
    #6
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    Hi Linda

    I must agree with John, a small sacrifice now and very good taste and life next years at this time. Keep on doing well and before long you will post It Is Dome

    Wishing you the best
    Hondo
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #7
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    XXXXXXXXXXXX
    Keep x-ing them off! Sorry your friend, Taste, is leaving. I was hoping he would stay for Thankgiving dinner with you, too. Taste, walked out on me a couple days before my Easter dinner. He is a fickle jerk.
  • Ingrid K
    Ingrid K Member Posts: 813
    #8
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    sweetblood22 said:

    XXXXXXXXXXXX
    Keep x-ing them off! Sorry your friend, Taste, is leaving. I was hoping he would stay for Thankgiving dinner with you, too. Taste, walked out on me a couple days before my Easter dinner. He is a fickle jerk.

    thanksgiving dinner
    try and eat anyway... the good thing about turkey day is that there will most likely be lots of different things that you could try and might still be able to eat... stuffing or mashed potatoes with gravy, green bean casserole, jello mold concoctions, pumpkin pie.
    GOOD LUCK with the rest of your treatments also.
  • Hal61
    Hal61 Member Posts: 655
    #9
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    Adios bud
    Hi Linda, you're doing great on the rads. I looked forward to half done, because I knew it would mean I was on the downhill side. If your taste is going now, then uh-uh, it won't be home for Thanksgiving. You should still be able to eat, but probably won't want too much. Just have a few bites and tell people, Wow, this turkey tastes like cardboard, wow, this dressing tastes like cardboard. It's not funny, and I know it, but it seemed funny to me when it happened. I remember distinctly drinking from a personal size carton of chocolate milk, and I had to look down at the label to make sure what I was drinking. It's a weird thing. I'm closing on two years in a few months, post treatment, and my taste has returned in stages. But it was only six to eight months post that my taste started coming back. Excepting the first couple of months, I could always eat eggs, and taste them, and I've heard the same from lots of others.

    best, Hal
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #10
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    One day at a time
    and soon you will be done. You are about wherer I was with radiation. mouth never got that bad. I really had to work on eating. the no taste thing meant itcwas hard to convince myself to eat two pieces of chocolate cake:)
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #11
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    No Taste
    I have a friend that just couldn't grasp the no taste thing....

    He would go down a list of food items..

    I'd have to keep telling him, nope, nothing, can't taste it....LOL

    I CAN'T TASTE ANYTHING......

    Even water tasted like sweat...

    Well, I guess I could taste, just everything tasted like crap.

    JG
  • ratface
    ratface Member Posts: 1,337 Member
    #12
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    Skiffin16 said:

    No Taste
    I have a friend that just couldn't grasp the no taste thing....

    He would go down a list of food items..

    I'd have to keep telling him, nope, nothing, can't taste it....LOL

    I CAN'T TASTE ANYTHING......

    Even water tasted like sweat...

    Well, I guess I could taste, just everything tasted like crap.

    JG

    Meatball through the tube
    Hi Linda. I to approached Thanksgiving while ravished by radiation in 2009. My Italian wife had made some wonderful meatballs which were to painful to eat. Into the blender and off with it's head it went as it slowly was sucked up into my feeding tube. Best meatball I ever ate. You will find a way.
  • osmotar
    osmotar Member Posts: 1,006
    #13
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    ratface said:

    Meatball through the tube
    Hi Linda. I to approached Thanksgiving while ravished by radiation in 2009. My Italian wife had made some wonderful meatballs which were to painful to eat. Into the blender and off with it's head it went as it slowly was sucked up into my feeding tube. Best meatball I ever ate. You will find a way.

    MY sister
    My sister who is here with me can't wait to hear the whir of the blender blades...she knows I don't like peppers or onions and teases me that with no taste I won't know the difference...I said I'm not blind or without smell..of course she is teasing, well maybe except that sinister laugh of hers...hahahah
  • osmotar
    osmotar Member Posts: 1,006
    #14
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    longtermsurvivor said:

    One day at a time
    and soon you will be done. You are about wherer I was with radiation. mouth never got that bad. I really had to work on eating. the no taste thing meant itcwas hard to convince myself to eat two pieces of chocolate cake:)

    Cake
    Cake with a lot of milk :)
  • jtl
    jtl Member Posts: 456
    #15
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    Taste
    I just looked back at my notes. My taste went at about rad #10 and the sore throat started a few treaments later. I don't recall when I lost the saliva function but in some ways that has been the most aggravating part. I am getting some of may taste back after 2 weeks post rads but the saliva is still in very short supply. I am drinking a Gatorade and can taste the flavor, but Thanksgiving is still likely to be a bust. Good Luck and soon it will be recovery time.
    John
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #16
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    Hal61 said:

    Adios bud
    Hi Linda, you're doing great on the rads. I looked forward to half done, because I knew it would mean I was on the downhill side. If your taste is going now, then uh-uh, it won't be home for Thanksgiving. You should still be able to eat, but probably won't want too much. Just have a few bites and tell people, Wow, this turkey tastes like cardboard, wow, this dressing tastes like cardboard. It's not funny, and I know it, but it seemed funny to me when it happened. I remember distinctly drinking from a personal size carton of chocolate milk, and I had to look down at the label to make sure what I was drinking. It's a weird thing. I'm closing on two years in a few months, post treatment, and my taste has returned in stages. But it was only six to eight months post that my taste started coming back. Excepting the first couple of months, I could always eat eggs, and taste them, and I've heard the same from lots of others.

    best, Hal

    Hal made a funny
    :)
  • osmotar
    osmotar Member Posts: 1,006
    #17
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    jtl said:

    Taste
    I just looked back at my notes. My taste went at about rad #10 and the sore throat started a few treaments later. I don't recall when I lost the saliva function but in some ways that has been the most aggravating part. I am getting some of may taste back after 2 weeks post rads but the saliva is still in very short supply. I am drinking a Gatorade and can taste the flavor, but Thanksgiving is still likely to be a bust. Good Luck and soon it will be recovery time.
    John

    Thanksgiving
    What I find funny, but not in a hahahah way, is there are somethings I can still taste really well and others not so much or the taste of them is not the same, some sour things are sweet and vice versa. Ice crean still tastes good, I seem to still have a good taste for chocolate, even in the boost and glucerna products. As for Thanksgiving I will have extended family from PA here , so if nothing else it will be a hee haw of a time laughing and talking. So what if they are using plates and forks, and me a straw & a glass.

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