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Pet Scan!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Morning Guy's, my Pet Scan came back with a little scare ,but upon further review... lol, all is good! When we picked up my scan it showed activity in my hip bone,(where the original cancer was it's worst). There is still a SUV uptake of 2.1 there, but in talking with my Onc, this is a byproduct of treatment and not a cause for concern. On my past two scans it was never noted. So when I seen it on this one, it threw me for a loop. There is still a burning question in my mind to why I had something there and it was never addressed. The previous uptake was 2.6 in May's scan. Anyone have similiar results??????? Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny,
I usually go and pick up my scans ahead of time before I go back for my visit. I have never noticed any uptake,but I have noted each scan reading is a little differently worded. It depends on who is reading the scan. Different radiologist word them differently. Check and compare who read this one compared to the ones in the past.I have had them read that included everything from jaw to knees. Then some where a lot of the stuff is missing. The most important part is the impression. Thats the first part your Dr. goes too. Glad all is straightened out. John

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Sounds like you're happy overall with the results despite
your burning question.

Should we get out the dancin' shoes :)?

Jim

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Vinny,
Yes...I had 3 scans that had new information added, only to find out from my doctor it was nothing to worry about. My first two scans said nothing about my adrenal glands looking different, but the 3rd one said I had a small mass...What??? Well...my Onc explained the mass was there from the beginning and pointed out where it was stated on the first 2 scans that I misread. I've had 3 different radiologists read my scans and the wording was different on each scan. Bottom line...if your Onc isn't concerned and you are feeling good, then I would go with the thinking that all is good. If you find out anything new, let us know.
Take care and don't worry too much...Love, Sue (FNHL-2-3A-6/10)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks guy's, oh and Jim yes on the dancing, anytime their will be no Chemo involved after a Pet Scan is time to put the dancing shoes on!!!!!! LOL

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Good morning early bird :).

Happy Dance it is ;) I suppose I need to find some more dances.
This one might be getting old :).

Happy Dance Classic

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

that never gets old!!!! hahahahaha

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Well here's an alternative. I posted this once teasing Deb:

Happy Dance Belly! :)

Smiles,

Jim
DX: DLBL 4/2011
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truckingalong
Posts: 444
Joined: Aug 2010

Hi, Vinny,

Always good to hear you are alive and well (no pun intended) because I had been away for a while. It sure gets scary reading those tests. Mine is coming up on the 17th, huh. Just learned that while doing taxes, I learned I had 105 medical visits last year! It is amazing how much we all have to fight with our bodies and win!!!

Now thanks to Jim for the belly dancing!!

Liz

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks Liz, I was thinking the same thing, I finally got down to twice a year for my head and neck surveillance from my first cancer!!!!!

gpespinosa's picture
gpespinosa
Posts: 25
Joined: Aug 2011

I was just curious how often several of you get pet scans? I have only had two, one to diagnose and the other to give the green light for remission. I am going on 8 months of remission and have only gotten 2 ct scans during this time. Should I be pushing for a pet scan?

Gaby

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Gaby,
My doctor has never sent me for a PET scan. I've had 4 CT scans...the first was in June 2010(for diagnosis)..2nd was in Oct 2010 midway during chemo(check for progress)..the 3rd was in Jan 2011(check for remission) and the last one was in April(checking under left arm). I'm scheduled for my next scan in April 2012 which will be one year from my last one. My Onc never said I was in remission...he said I was stable, due to one tumor under my colar bone that didn't shrink to mm size. I'm hoping in April that he will finally be able to say I've reached remission. Hopefully the Rituxan maint is kicking butt and taking numbers. (o: If you've had 2 CT scans in your 8 months of remission and everything is looking good and your feeling fine, I would think you don't need the PET. Run your question by your Onc at your next visit and just ask..can't hurt to ask.
Love...Sue (FNHL-2-3A-6/10)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hi Gaby, I have received 4 PET Scans this year, the chance of recurrence is high for me, so the risk of over radiating is worth it. I think that two a year is worth it, in your situation. I'm down to one every six month's now. I have a positive view of Pet Scans since it saved my life. I really had no symptoms of Lymphoma except a heavy cough, my routine Pet Scan from my first cancer found it. By then I was stage four with bone involvement.........

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Hi Gaby,

Main difference between CT and PET scans is the
CT scan primarily produces a 3D image using xray technology
usually with contrasting dyes that are injected.

The PET scan looks at cell function - you usually drink a
sugary substance that has radiotracers in them. Cancer cells
"light up" in the results.

I think PET scans are more expensive and insurance companies come
into play. From my experience, they did PET scans during chemo
and now that I'm in remission, they are doing CT scans.

My guess is PET scans might be a little more precise as they zero
in on cell activity while the CT scan will show tumors of a certain
size or greater.

Below is a link:

" target="_blank">Difference Between PET and CT Scans

Hope this helps.

Hugs and positive thoughts,

Jim
DX: DLBL 4/2011
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anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Hi Jim,
After reading the differences of the Pet and CT scans, then I can absolutely say that I had a pet scan. I was confused also because on the order sheet it said CT scan but the technicians gave me a sweet liquid which was quite a lot, had to take it then two hours later they did the exam. oops my bad!!! :-)
Thanks Jim for the info...

Sincerely,
Liz

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Liz,
Did they inject a radioactive tracer thru an iv? John

anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Hi John,
Yes they did after I drank the liquid the technician put an iv which he did mention it was some type of radioactive tracer, then he did the scan...:)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Liz,
I think that is a step they only take with the pet scan. So it looks like that is what you had even though the tech said CT. John

anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Thanks to everybody, I'm really learning a lot from all of you guys, since I don't have anybody else to ask...well except my Dr but his answers are so scientific(lol). This is very new to me since most of my family members that have died of cancer were not around too long after their diagnosis. Thanks again
Sincerely,
Liz

gpespinosa's picture
gpespinosa
Posts: 25
Joined: Aug 2011

I dont have many friends or family that can relate to me, but then again I guess that is a good thing. Cancer does not really run in my family. Other then myself I know of two other distant aunts that had breast cancer, so it was a suprise when I was diagnosed with Lymphoma. Although my family and friends are extremely support, I feel like they do not REALLY understand me sometimes. Everyone on here is sooo nice and supportive. I have learned so much from everyone and although it sucks going down this cancer path, its nice to know there are great people taking it with me. I really wish everyone the best of luck and thank you for all your kind words and information.

Gaby

gpespinosa's picture
gpespinosa
Posts: 25
Joined: Aug 2011

I dont have many friends or family that can relate to me, but then again I guess that is a good thing. Cancer does not really run in my family. Other then myself I know of two other distant aunts that had breast cancer, so it was a suprise when I was diagnosed with Lymphoma. Although my family and friends are extremely support, I feel like they do not REALLY understand me sometimes. Everyone on here is sooo nice and supportive. I have learned so much from everyone and although it sucks going down this cancer path, its nice to know there are great people taking it with me. I really wish everyone the best of luck and thank you for all your kind words and information.

Gaby

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Hi Liz,

I have had CT scans that have involved me being NPO for four hours and then start drinking a substance AKA called gastrographin two hours before the scan time. And then a whole other huge container "on-call" to the cat scan. Once in the cat scan machine, I'm scanned, pulled out while a nurse injects me with a dye thru my IV site. Back in the machine I go. Scans done.

When I have a PET/CT, I report to the department. The tech starts an IV site. She then injects me with a substance with a radio isotope tag. There is a 40 minute wait period while the substance circulates and the " uptake" process happens. The test itself takes around 30 minutes and is done inside a CT scan machine. Since this test can cause you to react positively to any scan for types of radioactive explosive things, the tech must provide you with a medical release for the next two days; I call it my get out of jail free card! I hope this helps some. It can be very confusing. Te pet scan is the one that gives you values that speak to SUV, uptake values.

Kellie

anliperez915's picture
anliperez915
Posts: 772
Joined: Sep 2011

Hi Gaby,
I had one CT scan and I'm having another one on the 30th of Nov. The first one was for diagnosis and since I haven't started treatment the Dr. wants to see how much my tumors have grown, then he'll decide if we should start treatment or wait again. I think that if you feel that something is wrong then you should definitely go and ask him for another one (always trust your intuition). Take care of yourself and God bless you.

Sincerely,
Liz

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

I get a pet scan every 6 months. I have had 3 so far and in remission with no activity. I feel they are more accurate because they actually show the activity. The CT shows the size,but do they show if there is activity or not. I do not really know. John

truckingalong
Posts: 444
Joined: Aug 2010

Because I had cancer in my bone, PET was done in Feb and Aug this year to check out for that. I had my first PET/CAT in Aug 2010. Now my onc said with the new procedure, I get CT scan and PET alternatively every 6 months. Next is early Feb 2012 for CT scan. Hope I am correct with my memory, grins.

Hey, I just thought of using mneumonic strategy to remember which stands for which: CAT scan is - cat drinking something - i.e., barium! Hahaha - yuck!

Love,
Liz
HL4Bcell,8/10-Remission-2/2011

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

Hey Liz,

I agree with John. My last scan was a CT but they did give
me something to drink and an IV. The IV makes you feel real
warm. I tell them it's the most "tasteless" tequila I've ever
had ;).

The procedures are very similar. And I think in some cases they
do both at the same time (PET and CT).

Hope all is good with you.

Jim

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Hey Jim,
I got that injection too and I thought I was peeing myself. The guy asked me if I had that feeling later and said everybody feels that way. HAHA. John

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

LOL - yeah I think last time I asked if I could have a lime
with the injection ;). Jim

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